Saturday, 28 May 2011

FMSSAS eNews 11.05.28

Hi there
I would like to thank all those of you who have sent me messages of encouragement, appreciation, and goodwill, and even birthday wishes especially on Facebook!  I am now walking with a stick – and no splint.   Progress is slow but sure.  I greatly value your support.
21.  The two hardest things to say in life are ‘Hello’ for the first time and ‘Goodbye’ for the last.
Bracklesham Bay Fibromyalgia Conference – 8-11 April 2011
Report by Kelly Thompson
Press Release by Jeanne Hambleton
Photos of the Conference – 1 The Fibro Duck Competition by Rebecca Toogood
Photos of the Conference – 2 General Pictures by Rebecca Toogood
Photos of the Conference – 3 Miscellaneous Photos
If anyone else has photos or opinions I can add to the website please send them to me at
University of Maryland Medical Center
Article about Fibromyalgia including treatment options.
Fibromyalgia Medication
There is no cure for fibromyalgia, but medication aims to ease your symptoms as much as possible and to improve your quality of life.
Brain Fog & Sleeping Brains in Fibromyalgia & Chronic Fatigue Syndrome
Has brain fog ever made you feel like your brain just "shut off" or "went to sleep" for a bit? New research on sleep-deprived brains suggests that could be exactly what's happening.
Managing Fibromyalgia by Pati Chandler
The Natural Approach
Everyone's Fibromyalgia is different, and no one treatment is going to work for everyone.  But there is a huge plethora of options out there that really and truly do help.  It became one of my missions in life to share these possibilities with all Fibromyalgia sufferers.
 Stress & Body-Pain      Part 1
 Stress. That's a scarey word for anybody. Over the years we have learned what stress can do to a body. And for those of us with Fibro, or any chronic illness for that matter, stress has many different meanings, and they all spell P.A.I.N.  Stress= Put It Away Now.
Chronic fatigue, fibromyalgia cause 'bone-crushing fatigue,' pain for many
“The days are dotted with medications and supplements. To keep her awake. To keep her asleep. To keep her comfortable.  It is a constant struggle to maintain even a sliver of normalcy.”
"Reframing: Combining Acceptance & Hope"
"Living successfully with CFS or FM requires not only changing what we do but also how we think. Without adjusting how I thought about myself, I would never have developed the approach that led to my recovery."
Exploring attentional disruption in fibromyalgia using the attentional blink
JZP-6 Sodium Oxybate
Clinical trials on FMS have shown that the drug can significantly improve sleep quality and reduce pain.
Your Health Detective – May 2011
Magnesium Deficiency Linked to Chronic Disorders (including fibromyalgia)
Enjoy the bank holiday weekend.  Here’s hoping the sun shines.

N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.
Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.
I also include various awareness and local issues as well as general health considerations.

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