Sunday, 15 May 2011

FMSSAS eNews 11.04.11

Hi there

I am finishing this message at the beginning!  Having promised eNews on Friday, before leaving for the fibromyalgia conference, I failed you.  I am sorry.  I am also sorry I had to miss the conference.  I am finishing this in hospital following a fall as well as dislocating my prosthetic hip (two unrelated events!) 
I hope that you are following up the links that I give you in eNews!  You need to left mouse click, or double click, or even hold Control and click, - depending on how your computer is set up.  If all those fail, copy and paste into your web browser’s address bar.  What I give you is skeletal!  You need to flesh it out from the pages I have linked to to get the benefit.  If something looks particularly useful add it as a Favorite/Bookmark it, or even save it to your computer.  Then you can find it again when you want it.
14.  What seems like the right thing to do could also be the hardest thing you have ever done in your life.
Worthing Fibro News – April
Aids to Pacing, Part 2
In addition to having personal rules and guidelines (see first article), you can use timers, pedometers and other devices to improve your success in pacing.
The Power of P.R.I.D.E.
Pacing, Rest, Informing, Delegating, and Enjoyment,  five pointers to managing your life.
$2-million program targets chronic diseases  By Pamela Fayerman, Vancouver Sun - March 31, 2011
After the release of reports this week showing flaws in the diagnosis and treatment of Lyme disease patients, the provincial government has announced a $2-million program to help complex chronic disease patients such as those with Lyme disease (and FM & CFS).
ME/CFS /FM: What It Is and What It Is Not.
Saturday 14th May 2pm.  Talk by Professor Kevin Davies (Honorary Consultant Physician and Rheumatologist) from Brighton and Sussex Medical School.   The venue is The Sheldrake Suit, The Martlets Hall, Civic Way, Burgess Hill, West Sussex. RH15 9NN.
 Tickets £3 to include refreshments and entry is by ticket only. Please contact reMEmber for more details and tickets, and send a Stamped Addressed Envelope with your cheque.
(The Chronic Fatigue Society), PO Box No 1647, Hassocks, West Sussex. BN6 9GQ
Tel 01273 831733 
Who Else Wants More Energy, Less Pain While Improving Sleep and Eliminating Brain Fog? 
Join Us for TWO FREE Tele-seminars and Learn…
6 Simple Steps to Help You Decrease Pain, Increase Energy, Improve Your Sleep, and Reduce *Fibromyalgia Symptoms*
So, that’s it for now.
Take care, which is what I should have done!!


N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.
Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.
I also include various awareness and local issues as well as general health considerations.

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