Saturday, 4 June 2011

FMSSAS eNews 11.06.04

Hello everyone
Loads of links have been dropping into my Inbox this week.  I’m saving some for next week otherwise you will all be suffering from information overload, and I did want to include some local information for you.  Happy reading!
22.  Growing old is mandatory, growing up is optional.
Gamma-Hydroxybutyrate (GHB)/ Xyrem for Fibromyalgia?
Beginning in the late 1990s, researchers found a surprising link between the use of Xyrem and a dramatic decrease in fibromyalgia symptoms of muscle pain and fatigue. It is now believed that GHB can significantly reduce fibromyalgia pain and fatigue by increasing the amount of slow-wave sleep that fibromyalgia patients experience on a nightly basis.
Breaking the Vicious Circle of Fibromyalgia
Have you been living on ever-increasing doses of pain medication? Have you been told to learn acceptance, prioritizing, and relaxation, etc.? Well, you don't have to do any of that any more! Please read this vitally important article — it unveils an incredibly easy solution to ending your Fibromyalgia pain naturally in as little as seven days!
Ask Dr. H: Using D-Ribose for fibromyalgia
Uses for D-Ribose range from folks with chronic fatigue syndrome or fibromyalgia to athletes looking to improve their exercise endurance.
The most popular treatments for fibromyalgia and chronic fatigue syndrome include increasing the available levels of serotonin, which is best known as a neurotransmitter but also acts as a hormone. SSRI/SNRI drugs do it, supplements such as SAM-e and 5-HTP do it, and some frequently recommended foods do it.
8 Natural Remedies That May Help You Sleep
Before you rush to the drugstore to buy an over-the-counter sleep medication, try one of the following natural sleep remedies. They are safer and have fewer side effects. Many of these can not only help you fall asleep and stay asleep, but they can also promote muscle relaxation.
Suicide Warnings on Fibromyalgia,Chronic Fatigue Syndrome Drugs
A huge number of the drugs prescribed for fibromyalgia and chronic fatigue syndrome carry a black-box warning about increased risk of suicide or suicidal thoughts. A black-box warning is reserved for the most dire of U.S. FDA alerts, and it's something we should all take seriously.
Experimental: Treating CFS, fibromyalgia with statins, coenzyme Q10 and pregnenolone
A Note of Caution: Always consult with a physician before taking any kind of supplement or medication. Not only can chemical compounds cause reactions when taken alone, some side effects may occur in combination with other chemical compounds including dietary
Message Board
Don’t forget we have a message board where you can ask questions about fibromyalgia and provide your own stories and opinions.
Brighton Coffee Morning – Thursday 16th June
Anyone in the Brighton area is invited to a Coffee get together for fibro sufferers
Thursday, 16 June 2011 at 12:30
Emmaus Cafe, Drove Road, Portslade Old Village, Brighton, East Sussex, BN41 2PA
Contact Caroline for further information  Tel: 0844 887 2376
Horsham Group moves to Horsham Hospital
As from Monday 6th June the Support Group meetings will be held in the Club Room at Horsham Hospital.  For full details, directions and future speakers please see or
Camberley Suupport Group
This is a new group that we would like people in that area to support.
Venue:  Camberley Adult Education Centre Cafeteria, France Hill Drive, Camberley GU15 3QB
Meetings are held monthly on the 1st Monday of the month (as long as it is not a bank holiday) from 12.45-2.45pm.  For more details of meetings contact Amanda Tel: 01276 63595
Best times to call are Mon,Tue,Wed 10am - 2pm and weekends Sat/Sun between 4pm-6pm
Publicity Posters
Posters are available from the website for you to print and display in your vicinity.  At present there is one for the Horsham area, a template for individual groups to complete to advertise their own meetings and a general one for where there are no groups.
If group leaders have their own I will be pleased to display those too if you send them to me.
Details of all meetings can be found at
East Sussex LINk Annual Report for 2010/11
The agenda for the Annual Review Meeting on 14thJune:
Directions to the venue can be found here
If you haven’t yet booked but would like to attend please contact the office to book your place.  If you have already booked your place at the meeting on June 14thwe look forward to seeing you there.
The LINk Team
The NEW Big Hug Health & Well-being Centre in Brighton Marina offers community membership and individualised support to enable users to see “Self-Healing” as an important aspect of our lives. The purpose of this meet up group is to create a community of like minded people who develop the ability to feel at peace, experience joy, and alleviate pain and illness.
So, there you have it!  Another weekly bundle.  I hope you find some solutions to your problems, meetings you wish to attend and treatments you want to try.
Jentl hugz

N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.
Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.
I also include various awareness and local issues as well as general health considerations.

No comments:

Post a Comment