Sunday, 15 May 2011

FMSSAS eNews 11.05.14

Hi fibro folks

When I was admitted to hospital on 7th April I never dreamt I would be there for over five weeks!  I am so sorry that I have not been able to produce eNews during this time.  I am indebted to Kelly Thompson who has accumulated a number of articles for you which are included in this issue.  I hope I will be able to do some research for you next week.  I felt very deprived with no wifi connection but intend to make up for it now I am home where I arrived by ambulance at 11pm yesterday!
Thank you to those of you who sent messages to me through the  address.  I was not able to view them until today but I do appreciate your concern and best wishes.  My leg is in a brace, walking limited but aided by a zimmer frame, I have my bed downstairs and have caused chaos with household organisation!  Hopefully all will be well – eventually.
Here are the WORDz for the missing weeks.
15.  If today was perfect there would be no need for tomorrow.
16.  Life isn’t about waiting for the storm to pass . . . it’s learning ro dance in the rain.
17.  You are only young once but you can be immature for ever.
18.  You don’t stop playing because you are old; you grow old because you stop growing,
19.  If you are going to dance on thin ice, you might as well dance.
D-Ribose for fibromyalgia?
Supporters of D-Ribose claim it decreases pain, improves mental clarity, increases energy, improves stamina, creates an improved sense of well-being, and strengthens heart performance. Uses for D-Ribose range from folks with chronic fatigue syndrome or fibromyalgia to athletes looking to improve their exercise endurance. It may also be helpful, in theory, to those who experience muscle aches and pains as a side effect of cholesterol-lowering statin drugs.  Read more here:-
From CFIDS Self Help Library
"Lifting the Fog"
Strategies for controlling brain fog
"Taming Stressful Thoughts"
The three step process for making your self-talk more realistic and more
"Pacing By Numbers: Using Your Heart Rate to Stay Inside the Energy Envelope"
How to control symptoms using a heart rate monitor.
"Dr. Lapp's Recommendations on Supplements"
The supplements that pass the three tests of this prominent CFS/FM physician.
“The Healing Power of Gratitute”
"Problem Solving"
A three-step process for addressing issues in your life. (Third in a series on self-management skills.)
CoCure Articles
“Distinguishing fibromyalgia from rheumatoid arthritis”

“Quantitative Sensory Testing Profiles in Chronic Back Pain Are
Distinct From Those in Fibromyalgia.”

“Coenzyme Q(10): A novel therapeutic approach for Fibromyalgia? Case series with 5 patients.”

“Multisensory hypersensitivity in women with fibromyalgia: implications for well being and intervention.”
Pain Support Newsletter
Getting the Best from Medical Consultations
Worthing Fibro News for May
New Support Group in Bracklesham
Teresa White has started another Support Group meeting on 2nd Monday in every month, 2-4pm, at Bracklesham Barn, Beech Ave. Bracklesham Bay in Community Room 2.  Contact Teresa for details 0844 567 2879.  She already runs a successful group at Selsey.  So if you live at the south west end of West Sussex there are ample opportunities to attend meetings,
NFA on Fibromyalgia Awareness Day
I hope this isn’t information overload!  It’s just so good to be in communication with you all again.


N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.
Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.
I also include various awareness and local issues as well as general health considerations.

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