Saturday, 20 October 2012

FMSSAS eNews 12.10.20

Hi there
I have taken a couple of weeks off!  I am still in Spain but as a few items have been assembled I thought I would send this anyway, especially as I want to remind you about the AGM on 27th October - next Saturday.  This has now taken on a new format because of lack of support for the original plans, no lunch, no competitions, only 2 speakers, a different venue – and no charge!  Please see  for details.
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90.  The bad things in life open your eyes to the good things you weren’t paying attention to before,
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Read the latest reports from the West Sussex Local Involvement Network (LINk)
The hyperlink below will take you to the LINk's latest reports including:
A Review of the impact of changing social care eligibility criteria
A Review of Nutrition, Hydration and Feeding in five wards of St Richard's Hospital, Chichester.
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Inflammation & Stress Feedback in Fibromyalgia
A recent study suggests that a relationship between inflammation and stress-system dysregulation are an underlying part of fibromyalgia.
Researchers analyzed the blood of 25 women with the condition, along with healthy controls, and found 100% of the fibromyalgia group had markers of an inflammatory state and altered stress response. They say that was demonstrated by high circulating levels of interleukin 8, a major mediator of inflammatory response, and C-reactive protein, which rises in response to inflammation.
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New-Doctor Woes With Fibromyalgia & Chronic Fatigue Syndrome
'm just a few days away from my first appointment with a new primary care doctor. I'm trying not to be too hopeful or too pessimistic, but I keep going back and forth between the extremes.
Most people with fibromyalgia or chronic fatigue syndrome will know exactly why. Like most of you, I'm worried . . . . . . .
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Melatonin Therapy for Fibromyalgia
A recent article in the journal Current Pain and Headache Reports discusses the use of melatonin as a treatment for fibromyalgia. First the authors reported on four studies that measured melatonin levels at various times of day and night using both FM patients and healthy controls. The results of those studies suggested that FM is not associated with a major change in nocturnal melatonin synthesis or release.
Conversely, they reported on two small, open studies testing the use of melatonin as a treatment for FM. In both studies all FM patients participating reported significant improvement.
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Message from Sophie Neville

If you don't already have it, please help yourselves to a free copy today of my illustrated ebook 'Funnily Enough' about my time stuck in bed with CFS/M.E., and how my friends and family helped me to cope.
For all the Amazon Kindle regional links, and also a few simple directions to download the Kindle app for your device, click on:
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The Combination Approach by Norah Wickerson
This is a long but well worth the read document you may like to save in a folder to read at your leisure.  It tells how Norah found a way to conquer FM and how she helps others.
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An official video about taking your ESA appeal to Tribunal / HM Courts and Tribunal Service
by Tony Britton on October 15, 2012
Dr Jane Rayner, Chief Medical Member of the Social Security Tribunals service, has prepared this video for people considering an Employment and Support Allowance appeal to Tribunal.
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What is fibromyalgia? See pictures explaining symptoms, muscle pain, fatigue, tests, causes, and treatments.
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I hope to see some of you on 27th.  If you are not a member of FMSSAS you will not be able to vote.  If you want to become a member email  giving your name, postal address, email address and tel. no.
I wish I could send you a bit of Spanish sunshine!
Best regards
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N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.
Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.
I also include various awareness and local issues as well as general health considerations.    Anyone wishing to reproduce any of the above items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr.
Past issues of FMSSAS eNews can be found at and on a blog at