Saturday, 29 September 2012

FMSSAS eNews 12.09.29

Hello once again
If you are a member of FMSSAS you will be receiving the Trustees’ Newsletter (TN13) today.  Do look out for it and read about all the arrangements for the AGM which have CHANGED.  If you don’t receive it and would like to, please send me an email with the subject AGM/TN13.  To ensure you receive future issues of TN please email with subject FMSSAS MEMBERSHIP and include your name, postal address & Tel no. in your message.   You will then be entered on the membership database.
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89.  You never see the bad days in your photo albums . . .   but it’s those days that get you from one picture to the next
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National Fibromyalgia & Chronic Pain Association
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Fibromyalgia and Chronic Fatigue Syndrome No longer a mystery
One of the best articles to date on FM.  It was sent as an email from Rollins Health Integrative Medicine Center.
‘Imagine being so tired that you can't function. I'm not talking about being pooped at the end of a long day at work or exhausted after a big hike. I mean the kind of tired that prevents working a normal job or the kind of tired that only allows doing a few hours of chores before having to go back to bed from being so wiped out. Normally exercise gives one a bit of energy but not this type of tired - if not careful exercise just makes it worse. ‘
Read the rest of the article here:-
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Getting to the Root of Fibromyalgia
While many researchers are studying blood and urine of fibromyalgia patients to determine if mineral abnormalities exist, one team from Korea is taking a novel approach by going directly to the root of the problem.* Their study of trace elements in hair samples shows fibromyalgia patients have lower levels of important minerals compared to healthy adults.
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Coping Advice - Family Involvement
While only one person in a family may suffer from fibromyalgia the entire family is affected by it. Your family faces a troublesome time while learning to cope with the anxieties, fears and trauma produced by fibromyalgia. Thus, it is essential that the family become part of your therapeutic program. More explicitly, family support is crucial to the successful management of any chronic and painful condition.
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Misleading Label Dangers:  How to Choose High-Quality Supplements and Avoid Cheap and Dangerous  Imitations
National surveys indicate that half of Americans take some kind of dietary supplement, and if you've visited your local drug store (or even grocery store) recently you know that weeding out the good from the bad can seem like a nearly impossible feat.
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Dangers of Root Canalled Teeth
Do you have a chronic degenerative disease? If so, have you been told, "It's all in your head?"
Well, that might not be that far from the truth… the root cause of your illness may be in your mouth.
There is a common dental procedure that nearly every dentist will tell you is completely safe, despite the fact that scientists have been warning of its dangers for more than 100 years.
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Shop for good with Give as you Live.
Give as you Live helps you raise money for Fibromyalgia Support for Surrey and Sussex (FMSSAS) – at no cost to you – every time you shop online. Start raising money today.

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Find out more so every time you shop online you can shop for good.
© Fibromyalgia Support for Surrey and Sussex (FMSSAS). All rights reserved.                                         
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Give  as you Live - Digital Donor Review, help us win £5000
Every day we work hard to make sure donors like you are proud to be a Fibromyalgia Support for Surrey and Sussex (FMSSAS) supporter. We know that your donations are an investment in our work - thank you.
At Fibromyalgia Support for Surrey and Sussex (FMSSAS) we strive to keep our costs low and to make the most of the donations we receive. This is why we are currently looking closely at our online communications.
We know that communicating online can be a more cost effective way to share our latest news and updates, but we need your help in understanding how you would like to hear from us online.
To help get these answers, we have joined the Digital Donor Review 2012. Sponsored by Give as you Live, the survey takes less than 5 minutes to complete and will help us understand how we can communicate with you better.
As an added incentive, when you complete the survey your name will be entered into a draw on the 31st of December for us to win £5,000.
Take the Digital Donor Review now and help us win £5,000.
© Fibromyalgia Support for Surrey and Sussex (FMSSAS). All rights reserved.                             
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Question:  Do I Need Dietary Supplements?
Answer:  Eating a healthy, well-balanced diet should provide you with all of the individual nutrients you need, but if you're diet isn't so good, some of those nutrients might be deficient. For example, a person who hates fruits and vegetables might not get enough vitamin C and someone who refuses to eat dairy products will frequently need extra calcium.  Read more . . .
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Aspartame: Safety Approved in 90 Nations, but Damages the Brain
 More than 90 countries have given the artificial sweetener aspartame the green light to be used in thousands of food and beverage products.1
Two hundred times sweeter than sugar, aspartame allows food manufacturers to produce sweet foods they can market as “low calorie,” “diet,” or sugar-free,” appealing to hundreds of millions of consumers looking to cut sugar from their diets.
No doubt about it, the less sugar you include in your diet, the better. But replacing sugar with aspartame is not the solution, and in fact is likely to be even worse for your health.
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what’s with all the gluten intolerances?? let me explain…
You might have read a column by a former colleague of mine Mia Freedman recently where she questioned people’s food intolerances, specifically gluten, and avoidance of certain foods, specifically sugar. Funnily, I’m both intolerant to gluten and had to quit sugar due to an autoimmune disease.
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going gluten-free? some hiccups you need to know about
Gluten’s got a grimy name just now. I’ve previously outlined my thoughts on going gluten-free (who should, why it’s not a “fad” etc). It’s worth a read if you’re a little unsure about the whole debate. If you’ve already made the move, or have contemplated it, then you might learn a lot from this rundown of the tricky things that might stump you in your tracks along the way.
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MediGuard - Lyrica - monitoring more than 1,500 patients
71% of patients are at least somewhat satisfied with Lyrica.
MediGuard regularly polls our more than 1,500 users taking Lyrica (or similar drugs with the same active ingredient(s)) using the Treatment Satisfaction Questionnaire for Medications (TSQM). This feedback is continuously updated for the benefit of the MediGuard community.
You can check out other medications on this site.  See Savella & Cymbalta which are also used to treat FM.
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I do not know whether I shall be able to compile or send any eNews whilst I am in Spain.  I shall be away from 3rd -25th October, so if you don’t hear from me until after the AGM you will know why.  You may not get any reminders, but I hope I will see a goodly number of you on 27th Oct.  Don’t forget, all details are in TN13.
My fondest greetings to you all
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N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.
Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.
I also include various awareness and local issues as well as general health considerations.    Anyone wishing to reproduce any of the above items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr.
Past issues of FMSSAS eNews can be found at and on a blog at

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