Saturday, 1 September 2012

FMSSAS eNews 12.09.01

Hello to you All
The Paralympics have got off to a good start with 20 medals for GB as I write.  What dedication and perseverance in the face of adversity!  We may not achieve such heights but it does not mean we can’t achieve anything.  Small successes along life’s way are also worthy of celebration.  Let me know some of yours.  Let’s celebrate together.
85.  If you want something you’ve never had, then you will have to do something you’ve never done.
Living Despite Fibromyalgia - Seminar, Competitions & AGM Day – 27th October
Don’t forget to book for this splendid opportunity to hear three eminent doctors speak on different aspects of FM, and to show your own prowess in creativity.  It will be held at The Barn, Field House, Worthing including lunch and ending with the AGM of FMSSAS.  The cost is only £15 for the day, including lunch. 
Further details are here   Initially, this information was sent out in a trustees’ newsletter at the beginning of August.  Anyone not having received this and would like to become a member are invited to send their name, address, email and tel number to
 A booking form for the seminar day  is available here So BOOK NOW before it’s too late.
15 Terms Everyone With Fibromyalgia Should Know
“When you have fibromyalgia , the more you learn about your illness the better you can take care of yourself. While medical terminology can be overwhelming and hard to understand (especially on foggy days!), it can really help to know a few key terms. I went through my fibromyalgia glossary and picked out the ones I thought were most important:!
Self-Help Strategies and Lifestyle Changes
When the symptoms of fibromyalgia seem overwhelming or worse than usual, there are self-help methods to ease your discomfort and make you feel better about yourself. Making certain lifestyle changes will also give you a greater sense of control. Below are just a few examples of self-help strategies you may want to incorporate into your daily care.
Believe in Yourself—Steering Clear of Self-Doubt and Destructive Thoughts
How do you believe in yourself when others trivialize your symptoms? Or how do you continue to like yourself when fibromyalgia keeps stealing your energy and ability to function as you once did? These situations fuel ongoing battles and undermine your self-esteem. But no matter what others say or do, it is essential that you believe in yourself.
Wall Photos of Fibromyalgia
If you like visual illustrations there are plenty here.  Photos, diagrams, wisdom, inspirational, symbolic, artistic, realistic, fanciful, humorous, educational – mostly depicting fibro. Click on one picture to see an enlargement then use the nest button to scroll through
Tough Lifestyle Decisions With Fibromyalgia & Chronic Fatigue Syndrome
Making important decisions about your life is hard enough when you're healthy. When you have fibromyalgia and chronic fatigue syndrome, there's a permanent wrench in all of your plans.
Dysautonomia in Fibromyalgia & Chronic Fatigue Syndrome
Not everyone with fibromyalgia and chronic fatigue syndrome has problems with homeostasis, but most of us definitely do. That's because of abnormalities in our autonomic nervous system. A whole "family" of illnesses have this same problem, and they fall under the umbrella term "dysautonomia."
Diary of a Benefit Scrounger - Cameron and the Paralympics
Well my friends, it is 2012.
Just 2 years ago, this coalition government, led by David Cameron and Nick Clegg launched the single biggest attack on the lives and livelihoods of sick and disabled people this country has ever seen.
They did it as wolves dressed in sheep's clothing. They lied about their intentions, justifying their attacks with pretty words. They told the people of this country that they were "supporting us" into work, but there is no support. They told the country so many of us were just cheats and scroungers, not really sick or disabled at all, but leeches on the state, sucking money from hard working people. But fraud is less than 1%.  Rwad on . . . .
Paralympic sponsor engulfed by disability tests row
Atos accused of wrongly classing benefit applicants as fit for work
More than 40 doctors and nurses working for major Paralympics sponsor Atos have been reported to medical regulators for professional misconduct amid growing concerns that disabled people are being wrongly deprived of benefits, The Independent can reveal.
Types of Healing Therapies, from Acupuncture to Yoga
Exploring natural treatment options? Browse this informative section on complementary and alternative therapies, such as acupuncture, chiropractic, herbal medicine, aromatherapy, massage, ayurveda, yoga, and more.
Jenny Sladen, Chrysalis Effect Practitioner, Supporting ME, CFS & Fibromyalgia Recovery
This is Jenny’s August newsletter giving details of health and wellbeing events at Eastbourne, Crawley, Caterham and Worthing.
Living Well with Fibromyalgia – a new newsletter by Fibro Modem (Simone)
“Welcome to the first issue of Living Well With Fibromyalgia. I am not sure, as yet, how often this newsletter will be produced. That may depend on you.
Currently, I am the one and only contributor, and I have sourced articles from all over the internet. I hope, in time, that you will help to make this newsletter another successful resource for Fibromyalgia sufferers.”
More from Simone
Next month I am going to Spain.   I am having the greatest difficulty in finding affordable travel insurance, for my husband and myself, because of our age (both over 75 but not quite 80) and our medical conditions.  Can anyone recommend an insurance company which doesn’t charge more for the insurance than the cost of the air fares?!
Fondest wishes to you all
N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.
Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.
I also include various awareness and local issues as well as general health considerations.    Anyone wishing to reproduce any of the above items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr.
Past issues of FMSSAS eNews can be found at and on a blog at

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