Hello my fibro friends
What a lovely morning! Late
summer I suppose it could be called.
Late is sometimes good, but sometimes late is TOO LATE. As you will see below there has been little
response to the wonderful seminar the trustees had planned for 27th
October. It will have to be cancelled if
there is not enough support, and the AGM rescheduled to a different venue. I will keep you informed.
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WORDz FOR THE WEEK
87. Life is not measured
in minutes but by moments.
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Visit to Wiston TeaRooms, Sat 15th September
Join the meet-up of fibro folk and friends at 2pm
TODAY. Members from Brighton, Horsham
and Worthing groups are expected to attend but you don’t have to be a member of
a group to come along. For more info:
www.fms-sas.co.uk/docs/TeaParty12.09.15.doc
Hope
to see you there.
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I am disappointed!
Why is it that nobody responds to requests and invitations? Only 2 people have booked for the Seminar Day
on 27th October. This has
been arranged FOR YOUR BENEFIT. It will
sadly have to be cancelled if there are not enough bookings in this coming
week.
To remind you – the information about it is here www.fms-sas.co.uk/PDF/LDF.pdf
And the booking form is here www.fms-sas.co.uk/docs/BookingForm12.10.27.doc
Neither has anyone attempted to guess the number of blanket
squares that have been knitted! Just a
bit of fun that will benefit your charity – and you could be a winner.
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Spend and Raise
Thanks - the more you buy,
the more we earn! You can help us to
raise valuable funds today by shopping online – and you won’t spend any more
than going to the retailer’s website directly.
In fact, if you visit the ‘Today’s offers’ tab, chances are you’ll even
save money.
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Overlap: Inflammatory Back Pain & Fibromyalgia
New research
shows a significant overlap between fibromyalgia
tender points and inflammatory sites associated with back pain in
spondyloarthropathies (SpA), which are joint diseases of the spinal column.
In SpA, the inflammatory sites are called enthesitis. They're
right where your tendons and ligaments attach to bone.
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Cope With Stress and Become More Resilient
Emotional resilience is partially inborn, but it can (and should)
be learned and developed. If you’d like to be able to handle life’s challenges
(both major and minor) with greater ease, to grow from adversity, and to turn
potentially negative events into positive ones, the following steps can help
you to become more resilient to stress.
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Avoiding Distractions With Fibromyalgia & Chronic Fatigue
Syndrome
When you have cognitive dysfunction along with your fibromyalgia
and chronic
fatigue syndrome, distractions can be a big problem. It can be hard enough
for us to follow our trains of thought, and a distraction can derail us
completely.
Being distracted isn't just an annoyance and possibly
embarrassing. It can also make our brain fog
worse, and sometimes it can really increase our anxiety.
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Morning Stiffness in Fibromyalgia
“When clinicians are asked which symptoms are the most
debilitating in patients with fibromyalgia, the most common responses include
pain, fatigue, and sleep disturbances,” states lead author of a recent study by
Robert Bennett, M.D.,
of Oregon Health and Science University in Portland.1 He also adds
patients report stiffness as an important symptom. And who wouldn’t complain
about waking up each morning to a body that feels in the final stages of rigor
mortis?
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Muscle Relaxants: Do they work for fibromyalgia?
Your muscles are tight and achy. You may even feel ropy bands with
firm knots in the mid-section of the muscle. These are myofascial trigger
points, and their location often overlaps with the 18 tender points used for
diagnosing fibromyalgia. Just pressing on them can send your pain through the
roof. But can muscle relaxants ease the tension in your muscles and help
untie (or at least loosen) your painful knots?
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Fibromyalgia: Creating a Treatment Plan
Fibromyalgia is a
complicated medical disorder. It has no specific causes and no known cure. Yet
for those who have it -- as many as one in 50 Americans -- the chronic pain,
fatigue, and psychological strain of fibromyalgia are all too clear.
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Fibromyalgia Exercise, One Step at a
Time
When Lynne Matallana was
first diagnosed with fibromyalgia, she spent most of her time in bed. Then her
doctor suggested she get some exercise.
“I knew I’d have to start
really slowly, so I started exercising while I was still in bed,” says
Matallana, president and founder of the National Fibromyalgia Association. “I’d
do some stretching for about half an hour and then take a rest.”
Gradually she worked up to
walking to the mailbox and back, and then to more steady exercise on a
treadmill. Today, she credits exercise with playing a big role in improving her
fibromyalgia pain.
This step-by-step plan can
get you started on your own exercise program for fibromyalgia.
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More Fibromyalgic Graphics
Thank you Emma
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Fibro TV Graphics Contest
Are you artistic and want to win a little $$$ching ching?
FibroTV is holding a graphic contest. You see our pictures with quotes everyday
and we want YOU to be a part of the positivity here at FibroTV. So put on
your creativity hat and have some fun!
Go here to find out more
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Because they are responsible for DWP assessments
If you disagree with the methods of assessment please sign the
petition. 5,000,000 signatures are
needed. When I signed it there were less
than 2,000 signatures si iy has a long way to go. The link is embedded in the header, as well
as below.
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Are you sitting comfortably?
Watch this video for hot tips
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The Challenges of Living with Invisible
Pain or Illness
Caregivers and those they
care for often live in an invisible world.
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Tips for Coping With Caregiver Stress
Sometimes, the pressure of
caring for someone who is elderly or who has a chronic illness can lead to
stress and a condition called "caregiver burnout." To prevent this,
it's essential to know how to manage your caregiver stress.
What Is Caregiver Stress?
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Dietary ‘excitotoxins’ linked with
fibromyalgia and irritable bowel syndrome
A lot of conventional medicine is about symptom
suppression. For example, with someone with ‘cramping’ in the gut we may give a
drug to reduce the cramping. A better (I think) though more alternative
approach would be to attempt to find out what’s causing the cramping and sort that
out. As an aside, cramping in the gut and ‘irritable bowel syndrome’ is very
often caused by food sensitivity in my experience, and wheat and perhaps other
grains are common culprits.
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Is Herpes Virus Connected to
Fibromyalgia?
Alabama researchers have
announced that they're launching a study on two antivirals as possible fibromyalgia treatments, based on their
hypothesis that the condition may be linked to herpes simplex 1.
This particular herpes
virus causes cold sores. Researcher William Pridgen, MD, says he began
suspecting viral involvement because of the way symptoms wax and wane, which is
typical of certain viruses. Once he began prescribing drugs known to be
effective against herpes simplex 1, he says 90% of his patients got better.
Pridgen says, in his
practice, he's seen improvements in gastrointestinal problems, fatigue,
anxiety, energy levels, depression and other fibromyalgia symptoms.
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Optimum Health Clinic
Newsletter 13th Sept.
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Brain Fog in Chronic Fatigue Syndrome and Fibromyalgia
Brain fog is a classic part of chronic fatigue syndrome and
fibromyalgia, presenting as:
Horrible short-term memory, Difficulty with word finding and word
substitution (e.g., substituting the word "fork" for
"knife"), and Occasional disorientation — Approximately 30 percent of
those with CFS or fibromyalgia have episodic disorientation lasting around
30-60 seconds. This often occurs when driving or even turning down a
supermarket aisle. It can feel scary, but is not dangerous. Though you may not
know where you are (or are going) people seem able to drive or walk safely till
it passes. This can also manifest as briefly not recognizing common objects or
names (even of children).
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Sleep Problems Triple Women's Fibromyalgia Risk
Women plagued by sleep
problems have more than triple the risk of developing the pain disorder
fibromyalgia compared to their better-rested peers, a new study from Norway
suggests.
The more often a woman
experienced insomnia and other sleep problems, the more likely she was to have
developed fibromyalgia 10 years later, according to the study, the largest to
date to follow women who were initially free from chronic pain.
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That all for now – ‘more than enough’ did I hear you say? At least ‘more’ offers choice.
Have a great day and a fruitful weekend.
Best regards
Stella
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N.B.
I would like to point out to you all that the information in my eNewsletters
does not necessarily infer endorsement by the charity Fibromyalgia Support for
Surrey & Sussex. Any advice or recommendation of a medical or
legal nature must always be discussed with a qualified professional. The
charity cannot be held responsible for omissions and/or errors.
Sites
I refer you to are for information only. They might conflict in their
opinions, they might not even be medically sound, but I merely offer them for
you to peruse and make your own judgements, accept or reject as you will.
Only by reading widely can we get an overall picture of fibromyalgia syndrome
and how we can deal with its symptoms, learn to cope with them and still have a
life.
I
also include various awareness and local issues as well as general health
considerations. Anyone wishing to
reproduce any of the above items in printed form should seek permission from
the originators.
Wordz
for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr.
Past
issues of FMSSAS eNews can be found at www.fms-sas.co.uk/fmseNews.html
and on a blog at http://fmssas-enews.blogspot.com/
FMSSAS
website is www.fms-sas.co.uk
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