Saturday, 15 September 2012

FMSSAS eNews 12.09.15

Hello my fibro friends
What a lovely morning!  Late summer I suppose it could be called.  Late is sometimes good, but sometimes late is TOO LATE.  As you will see below there has been little response to the wonderful seminar the trustees had planned for 27th October.  It will have to be cancelled if there is not enough support, and the AGM rescheduled to a different venue.  I will keep you informed.
87.  Life is not measured in minutes but by moments.
Visit to Wiston TeaRooms, Sat 15th September
Join the meet-up of fibro folk and friends at 2pm TODAY.  Members from Brighton, Horsham and Worthing groups are expected to attend but you don’t have to be a member of a group to come along.  For more info:
I am disappointed!
Why is it that nobody responds to requests and invitations?  Only 2 people have booked for the Seminar Day on 27th October.  This has been arranged FOR YOUR BENEFIT.  It will sadly have to be cancelled if there are not enough bookings in this coming week.
To remind you – the information about it is here
And the booking form is here
Neither has anyone attempted to guess the number of blanket squares that have been knitted!  Just a bit of fun that will benefit your charity – and you could be a winner.
Spend and Raise
Thanks - the more you buy, the more we earn!  You can help us to raise valuable funds today by shopping online – and you won’t spend any more than going to the retailer’s website directly.  In fact, if you visit the ‘Today’s offers’ tab, chances are you’ll even save money.
Overlap: Inflammatory Back Pain & Fibromyalgia
New research shows a significant overlap between fibromyalgia tender points and inflammatory sites associated with back pain in spondyloarthropathies (SpA), which are joint diseases of the spinal column.
In SpA, the inflammatory sites are called enthesitis. They're right where your tendons and ligaments attach to bone.
Cope With Stress and Become More Resilient
Emotional resilience is partially inborn, but it can (and should) be learned and developed. If you’d like to be able to handle life’s challenges (both major and minor) with greater ease, to grow from adversity, and to turn potentially negative events into positive ones, the following steps can help you to become more resilient to stress.
Avoiding Distractions With Fibromyalgia & Chronic Fatigue Syndrome
When you have cognitive dysfunction along with your fibromyalgia and chronic fatigue syndrome, distractions can be a big problem. It can be hard enough for us to follow our trains of thought, and a distraction can derail us completely.
Being distracted isn't just an annoyance and possibly embarrassing. It can also make our brain fog worse, and sometimes it can really increase our anxiety.
Morning Stiffness in Fibromyalgia
“When clinicians are asked which symptoms are the most debilitating in patients with fibromyalgia, the most common responses include pain, fatigue, and sleep disturbances,” states lead author of a recent study by Robert Bennett, M.D., of Oregon Health and Science University in Portland.1 He also adds patients report stiffness as an important symptom. And who wouldn’t complain about waking up each morning to a body that feels in the final stages of rigor mortis?
Muscle Relaxants: Do they work for fibromyalgia?
Your muscles are tight and achy. You may even feel ropy bands with firm knots in the mid-section of the muscle. These are myofascial trigger points, and their location often overlaps with the 18 tender points used for diagnosing fibromyalgia. Just pressing on them can send your pain through the roof. But can muscle relaxants ease the tension in your muscles and help untie (or at least loosen) your painful knots?
Fibromyalgia: Creating a Treatment Plan
Fibromyalgia is a complicated medical disorder. It has no specific causes and no known cure. Yet for those who have it -- as many as one in 50 Americans -- the chronic pain, fatigue, and psychological strain of fibromyalgia are all too clear.
Fibromyalgia Exercise, One Step at a Time
When Lynne Matallana was first diagnosed with fibromyalgia, she spent most of her time in bed. Then her doctor suggested she get some exercise.
“I knew I’d have to start really slowly, so I started exercising while I was still in bed,” says Matallana, president and founder of the National Fibromyalgia Association. “I’d do some stretching for about half an hour and then take a rest.”
Gradually she worked up to walking to the mailbox and back, and then to more steady exercise on a treadmill. Today, she credits exercise with playing a big role in improving her fibromyalgia pain.
This step-by-step plan can get you started on your own exercise program for fibromyalgia.
More Fibromyalgic Graphics
Thank you Emma
Fibro TV Graphics Contest
Are you artistic and want to win a little $$$ching ching? FibroTV is holding a graphic contest. You see our pictures with quotes everyday and we want  YOU to be a part of the positivity here at FibroTV. So put on your creativity hat and have some fun!
Go here to find out more
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Because they are responsible for DWP assessments
If you disagree with the methods of assessment please sign the petition.  5,000,000 signatures are needed.  When I signed it there were less than 2,000 signatures si iy has a long way to go.  The link is embedded in the header, as well as below.
Are you sitting comfortably?
Watch this video for hot tips
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The Challenges of Living with Invisible Pain or Illness
Caregivers and those they care for often live in an invisible world.
Tips for Coping With Caregiver Stress
Sometimes, the pressure of caring for someone who is elderly or who has a chronic illness can lead to stress and a condition called "caregiver burnout." To prevent this, it's essential to know how to manage your caregiver stress.
What Is Caregiver Stress?
Dietary ‘excitotoxins’ linked with fibromyalgia and irritable bowel syndrome
A lot of conventional medicine is about symptom suppression. For example, with someone with ‘cramping’ in the gut we may give a drug to reduce the cramping. A better (I think) though more alternative approach would be to attempt to find out what’s causing the cramping and sort that out. As an aside, cramping in the gut and ‘irritable bowel syndrome’ is very often caused by food sensitivity in my experience, and wheat and perhaps other grains are common culprits.
Is Herpes Virus Connected to Fibromyalgia?
Alabama researchers have announced that they're launching a study on two antivirals as possible fibromyalgia treatments, based on their hypothesis that the condition may be linked to herpes simplex 1.
This particular herpes virus causes cold sores. Researcher William Pridgen, MD, says he began suspecting viral involvement because of the way symptoms wax and wane, which is typical of certain viruses. Once he began prescribing drugs known to be effective against herpes simplex 1, he says 90% of his patients got better.
Pridgen says, in his practice, he's seen improvements in gastrointestinal problems, fatigue, anxiety, energy levels, depression and other fibromyalgia symptoms.
Optimum Health Clinic
Newsletter 13th Sept.
Brain Fog in Chronic Fatigue Syndrome and Fibromyalgia
Brain fog is a classic part of chronic fatigue syndrome and fibromyalgia, presenting as:
Horrible short-term memory, Difficulty with word finding and word substitution (e.g., substituting the word "fork" for "knife"), and Occasional disorientation — Approximately 30 percent of those with CFS or fibromyalgia have episodic disorientation lasting around 30-60 seconds. This often occurs when driving or even turning down a supermarket aisle. It can feel scary, but is not dangerous. Though you may not know where you are (or are going) people seem able to drive or walk safely till it passes. This can also manifest as briefly not recognizing common objects or names (even of children).
Sleep Problems Triple Women's Fibromyalgia Risk
Women plagued by sleep problems have more than triple the risk of developing the pain disorder fibromyalgia compared to their better-rested peers, a new study from Norway suggests.
The more often a woman experienced insomnia and other sleep problems, the more likely she was to have developed fibromyalgia 10 years later, according to the study, the largest to date to follow women who were initially free from chronic pain.
That all for now – ‘more than enough’ did I hear you say?  At least ‘more’ offers choice. 
Have a great day and a fruitful weekend.
Best regards
N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.
Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.
I also include various awareness and local issues as well as general health considerations.    Anyone wishing to reproduce any of the above items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr.
Past issues of FMSSAS eNews can be found at and on a blog at
FMSSAS website is

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