Friday, 27 July 2012

FMSSAS eNews 12.07.28

Hi there
The opening ceremony of the London Olympic Games has just ended.  I sat and watched it – spellbound.  It really did depict the best of British . . . even the Health Service.  What a spectacle!  So I thought, now it is already Saturday I would send this off to you instead of waiting until I get up, which might be late.  There is much for you in this week’s eNews so if you don’t spend all week watching the Games you might find time to read some of it.
80.  I often wonder . . . . Why do we live our lives unhappy, when we have all the power to change it?
Dr Holman’s lecture on PC3
(Positional Cervical Spinal Cord Compression)
Abstract of online article.
The leaflet handed out at the meeting last Sunday
Thanks to Benefits and Work member papasmurf for alerting us to two programmes about the WCA both being broadcast on Monday 30 July.
Dispatches. 8pm, Channel 4
“Using undercover filming, reporter Jackie Long investigates the shocking processes used to assess whether sickness and disability benefit claimants should be declared fit for work.”
Disabled or faking it? 8.30pm, BBC2
“Panorama investigates the government's plans to end the so-called 'sick note culture' and their attempts to get millions of people off disability benefits and into work. In Britain's modern welfare state, millions are being paid to private companies to assess sick and disabled claimants but is the system working? Or are new tests wrongly victimising those who deserve support the most?”
New type of MRI helping fibromyalgia patients
Now local doctors are using a new type of MRI screening that's providing some surprising answers, as well as a new way to treat patients who've never been able to find relief.
Video with Andrew Holman,

Have you had a work capability assessment, the medical test for employment and support allowance?
Or better still, have you had more than one?
If so, Professor Harrington, the independent reviewer of the WCA, wants to hear from you as he gathers evidence for his third independent review.
The deadline for responses is 7th September 2012.
Pain management overview
Pain management is important for ongoing pain control, especially if you suffer with long-term or chronic pain. After getting a pain assessment, your doctor can prescribe pain relieving medicine or other pain treatments to help you get pain relief. Sometimes psychotherapy is also useful to learn how to cope with chronic pain.
Many people both in and out of the yoga community were moved and inspired recently by a video posted on YouTube chronicling the transformation of veteran Arthur Boorman, who used a yoga-based fitness system to drastically improve his health. (Refresh your memory here.) The program he used is DDP Yoga, so of course I wanted to see what this method is all about. Let's take a look at a few other fitness-based approaches to yoga too.
Yoga, Health and Wellbeing Weekend Friday 28 September - Monday 1 October 2012 at
South Downs Holiday Village, Near Chichester, West Sussex
This Yoga weekend is uniquely different to others in that it incorporates a programme for those living with long term health conditions like Fibromyalgia, ME, CFS, Arthritis, IBS etc. There is a gentle seated yoga class everyday so there is no need to get down on a mat unless you want to, and a plethora of other activities like Tai Chi, Alexander Technique and Relaxation that are all inclusive and will accommodate any limitations that you might have.
In addition to yoga sessions and other tutorials, you have the opportunity to book (for an
additional fee) one to one therapies including Acupuncture, Iridology, Reflexology, Indian Head Massage etc.
The cost for the weekend is just £159 per person ( Double / Twin Bed ) or £189 for single
occupancy. There is a limited availability of mobility chalets.
To book contact Sarah - 70, The Hornet, Chichester, PO19 7JJ  Tel: 0844 887 2505 or Email:
8 Energy-Boosting Supplements for Fighting Fibromyalgia Fatigue
Fatigue, often extreme fatigue, is a key symptom of fibromyalgia. For many, it can be even more debilitating than the pain. 
Doctors generally tend to shy away from prescribing medications to treat fatigue. I suspect that's because most of them are stimulants and can be highly addicting.
The anti-fatigue drug I most often hear being prescribed for fibromyalgia is Provigil, which is FDA approved for narcolepsy, obstructive sleep apnea and multiple sclerosis-related fatigue. However, Provigil tends to stop working if it is taken every day.
The problem I personally have with taking prescription drugs for fatigue is that, although they may make me feel like I have more energy, they don't address the core problem causing the fatigue. I'm afraid that if I do more because I feel more energetic, I may actually be harming my body by pushing myself too much.  Read more . . . .
 “Epic 10½ Hour Hypnosis Session for Insomnia" (Hypnosis with Jason Newland)
Plat it overnight!
New type of MRI helping fibromyalgia patients
Local doctors are using a new type of MRI screening that's providing some surprising answers, as well as a new way to treat patients who've never been able to find relief.  Watch the video.
Fibromyalgia and Alternative Treatments
From acupuncture to chiropractic, from massage to meditation, alternative treatments are in great demand. That's especially true for people with pain-related illnesses such as fibromyalgia. Alternative medicine, including herbal therapy and homeopathy, is used in place of conventional medicine. These systems are based on the belief that the body has the power to heal itself with multiple techniques including those that involve the mind, body, and spirit. Complementary medicine is used together with conventional medicine.
Fibromyalgia: Creating a Treatment Plan
Fibromyalgia is a complicated medical disorder. It has no specific causes and no known cure. Yet for those who have it -- as many as one in 50 Americans -- the chronic pain, fatigue, and psychological strain of fibromyalgia are all too clear.
Fibromyalgia symptoms are treatable, however. Many experts believe the best treatment is a multifaceted approach that combines medication with lifestyle changes and alternative treatments.  
You may need to work with your doctor, a physical therapist, and possibly others to tailor a treatment plan to your needs. Here’s how to get started.
So, there you have it.  Some things I have kept back for next week, believe it or not!  Enjoy the Plympic Games but enjoy the contents of this eNews as well.
Fondest wishes to you all
N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.
Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.
I also include various awareness and local issues as well as general health considerations.    Anyone wishing to reproduce any of the above items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr.
Past issues of FMSSAS eNews can be found at and on a blog at
FMSSAS website is

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