Saturday, 21 July 2012

FMSSAS eNews 12.07.21

Greetings fibromites and fibro friends
Who saw an Olympic torch?  Did one pass by near you?  I met someone yesterday who proudly showed me a photo she had taken on her mobile phone of one of the runners in Crawley.  We see them all the time on TV, and there’s plenty on the web, but somehow that mobile phone shot made it seem more real to me.  How much more real will meeting Andrew Holman seem than just reading his lectures and watching videos of him?  But you can do all of those things!  See the items about him in the news items this week.
79.  To be old and wise, you must first be young and stupid.
Andrew Holman’S Lecture tomorrow
There was a hitch with the enquiry email address given for this.  If you wanted to book and couldn’t, then please just turn up and pay at the door; £17.50 each or £50 for 5.  Chichester Park Hotel, 2pm – doors open from 1.30pm.  Do make an effort to attend.  See you there?
Some videos on YouTube by Andrew Holman
"Central Autonomic Nervous System Regulation.." Andrew Holman, M.D.
"Central Autonomic Nervous System Regulation, Dopamine Agonists and Fibromyalgia" was a presentation given by Andrew Holman, M.D., during the 2004 Provider's Conference hosted by OFFER in 2004.
"Fibromyalgia: A Unifying Theory" Dr. Andrew J. Holman
This presentation was made during the 2007 OFFER Provider's Conference by Andrew J. Holman, M.D.
"Treatment Pearls: Fibromyalgia" Dr. Andrew Holman
This presentation was made during the OFFER 2007 Provider's Conference by Andrew Holman, M.D.
The 80+ Chemical Ingredients in Febreze – Beware!
Febreze Air Effects is showcased as the ultimate odor eliminator, with untold godlike powers.  In fact, it's represented as the one product in all of existence that will get you to breathe happily, as if it were happy pills in aerosol form  ...  as if it were health food in a spray ... even an organic cleaning product that works like a magic wand.  Febreze was even said to be phthalate-free.  Well, the empirical fact is that Febreze is nothing more than a cauldron of chemicals.  It's injurious to humanity in a number of quantitative ways.
Special Igennus  Vegepa Supplements Promotion, July 19th – 31st
Every item sold earns a donation towards Fibromyalgia research, at no extra cost to the buyer.
Holland and Barratt Penny sale is back
With over 250 products available in the Penny Sale; buy one, get one for a penny. Virtually half price!
Personal Independence Payment and eligibility for a Blue Badge
This is a consultation document about the Government’s changes to welfare reform and the effect they will have on eligibility for a Disabled Person’s Parking Permit, or Blue Badge. The consultation closes on Tuesday 2 October 2012.
Links to the Document are on this page
Depression in fibromyalgia is a controversial topic. In support of the contention that fibromyalgia is not a psychiatric illness, some authors believe that no correlation exists between fibromyalgia symptoms and psychological factors; others have determined that fibromyalgia is not a psychiatric disorder. The depression associated with fibromyalgia is believed to result from the pain, sleep deprivation, and dysfunction.
Predictors of the pain perception and self-efficacy for pain control in patients with fibromyalgia.
OBJECTIVE: This study analyzes the role of a number of cognitive-affective dimensions in the experience and coping of pain in patients with fibromyalgia (FM). Specifically, it was examined whether anxiety, depression, pain catastrophizing and pain-related anxiety predict the pain perception and the self-efficacy expectations in these patients.
Fibromyalgia symptoms are puzzling, but treatment strategies can help.
Get the latest on symptoms, treatment and coping for your fibromyalgia.
Treating CFS/FM Self-Study
Develop an individualized treatment plan for your CFS or FM in this free online self-study course developed jointly with CFS/FM authority Dr. Charles Lapp, director of the Hunter-Hopkins Center in Charlotte.
Course includes modules on treating symptoms, pacing, stress, emotions, relationships and building a new life. Each module includes worksheets and steps for implementation. 
 FibromyalgiaGlobal Impact Survey - Advancing Understanding, Aiding Diagnosis
In January 2008, the European Network of Fibromyalgia Associations (ENFA) and Pfizer Inc part­nered to develop the Fibromyalgia Global Impact Survey among fibromyalgia patients and among physicians to advance understanding and aid diagnosis of fibromyalgia.  Read the report!
The American College of Rheumatology Preliminary Diagnostic Criteria for Fibromyalgia
and Measurement of Symptom Severity
To develop simple, practical criteria for clinical diagnosis of fibromyalgia that are suitable for use in primary and specialty care and that do not require a tender point examination, and to provide a severity scale for characteristic fibromyalgia symptoms.
VAT Exemption on Disability and Mobility Products
From time to time, we are asked for clarification on the rules regarding VAT exemption, and it seems that there may be many people missing out on buying products without VAT, because they don't realise that they can.  If you are disabled or have a long-term illness, then you are eligible for buying some products without VAT for your own personal, domestic use.
I thought there wasn’t going to be much news this week, but I’m wrong again!  But it’s the sort of wrong I prefer to be.  When I have pessimistic thoughts I LIKE to be proved wrong.  In other instances I prefer not to be, but Hey ho! no-one’s perfect.
That’s all for now folk.  Have a great weekend.
Best wishes to you all
N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.
Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.
I also include various awareness and local issues as well as general health considerations.    Anyone wishing to reproduce any of the above items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr.
Past issues of FMSSAS eNews can be found at and on a blog at
FMSSAS website is

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