Saturday, 1 October 2011

FMSSAS eNews 11.10.01

Hello again
This week at the knitting group I discovered that one of the ladies used to attend the same Yoga class as me!  Small world!!  She has ME.  I can see that I am not alone in thinking that knitting has beneficial effects on health.  We all knit for charities which ties in with a recent item about the feel good factor engendered by helping others.  It certainly steers us away from our own woes. 
39.  Death leaves a heartache no-one can heal, love leaves a memory no-one can steal.
 Massage as Part of a Multidisciplinary Treatment Program for Fibromyalgia
Massage therapy and other touch therapies, including craniosacral and myofascial release, have been found through research to reduce pain, anxiety and stiffness associated with fibromyalgia.
A new study shows that a health care program that included massage therapy, ischemic pressure on the 18 tender points, aerobic exercise and thermal therapy resulted in "significant" improvement in overall health perception, social functioning, grip strength and a walking test among fibromyalgia patients.
Practical Living with Fibromyalgia  By Maurice S Clarke
An insight into daily living with Fibromyalgia as experienced by sufferers, their partners and carers 
Chronic Fatigue and Fibromyalgia - The Untold Truth
Excerpt from the middle of the report:-
“If you look online at some of the medical establishment’s Web sites, you will quickly note that some of them do not believe that there is a cure for CFS, ME, or fibromyalgia. They will tell you that once you get it, you can expect to live a limited life from then on.
They also will admit that a small percentage of people who get these diseases may be cured – but they do not know how. I desperately wanted to be in the group that gets cured – and I believe that you do too.”
New Research on Fibro Pain
When you tense your upper body muscles to scrub the outdoor grill or work at the computer, it’s understandable that your neck and shoulders will ache. But why would your leg muscles start to hurt if they didn’t even get a workout? Read new research that explains how pain in one area of your body can magnify the discomfort that you feel everywhere, and learn about self-help measures you can take to minimize this pain.
Do you know what causes your Fibro Flare ups? By Rebecca Richmond
“When I was suffering from Fibromyalgia I felt sure that stress was the cause and that it constantly triggered my flare ups.
I began to track the effects of events on my symptoms and quickly discovered that it was not while I was feeling stressed that my Fibro flared up but it was after I had calmed down and all the adrenaline had left my body. Then I felt completely exhausted and the pains would be worse than ever.
By keeping a diary I was able to track the type of things that were making me feel stressed and the effects these were having on my condition. It also allowed me to notice the effect of negative thinking on my symptoms.”  Read more-
Help Navigating Your Treatment Options
Feel like a guinea pig every time your doctor hands you a new prescription? Don’t you wonder what the odds are that a new treatment will work, and wouldn't you like to know the possible side effects in advance? Our new Fibro Meds Resource Kit gives you the opportunity to get ahead of the game when considering how best to relieve your many symptoms. This $29 value is being offered while supplies last for only $12.50.
 Influencing the New Health System in a Local Area- A Briefing for Local Voluntary and Community Groups
The NHS is going through a radical change at the moment. In order to ensure this happens in a
way which takes on board the concerns and expertise of local voluntary and community
organisations (VCOs), you will need to understand the changes and develop relationships with
the new local policy makers and commissioners. This briefing provides a short summary of the
emerging local statutory organisations and how best to engage with them. The NHS is going through a radical change at the moment. In order to ensure this happens in a way which takes  you will need to understand the changes and develop relationships with the new local policy makers and commissioners. This briefing provides a short summary of the emerging local statutory organisations and how best to engage with them. Read more:
The Hardest Hit
Disabled people, those with long-term conditions and their families are being hit hard by cuts to the benefits and services they need to live their lives. The Hardest Hit campaign, organised jointly by the Disability Benefits Consortium (DBC) and the UK Disabled People’s Council, brings together individuals and organisations to send a clear message to the Government: stop these cuts.
Our Webshop has now changed to a Spend and Raise eStore
Thanks - the more you buy, the more we earn!
Thanks for visiting our new eStore! You can help us to raise valuable funds today by shopping online – and you won’t spend any more than going to the retailer’s website directly.
Easy Fundraising
I received this as an email.  I hope it works for you.  It’s an easy way to raise some more funds for us.  Raise a quick 50p for Fibromyalgia Support For Surrey and Sussex by registering with Groupon AND save up to 90% off deals in your area!
and another one!
INVITATION 20th October 2011, free event at the Royal York Hotel Brighton
“My name is Oliver Müller and I would like to invite you to a 2-hour presentation, 12.30 - 14.30 approx, on coMra-Therapy and will include free lunch for all attendees.
Find out about:
            - What is coMra-Therapy and how does it work?
            - What can be treated with coMra-Therapy?
            - How do I apply coMra-Therapy?
            - How can coMra-Therapy benefit me and my charity?
Why should you attend?
coMra-therapy is a very innovative and low-cost form of medical care based on magnetic-infrared laser technology. Whether your charity is involved with supporting sufferers of a certain condition, providing help overseas, caring for animals or other health related issues, you will find this information extremely useful.
There will be NO selling on the day and you will NOT receive any sales calls or emails after the event either.
Following the presentation you can talk to other attendees, ask questions or just leave. No obligation or pressure of any sort.
I do, however, need to know how many people to expect, so please reply with your name and a short note saying you will attend. I will also need this so that I can let you know should something change unexpectedly.  Limited number of places available. Venue:
With kind regards
Oliver Müller Representative: United Kingdom Radiant Life Technologies™ Mobile: +44 7985 340 944,,
M.E. & FIBROMYALGIA INTERNATIONAL CONFERENCE 2011 ~ PROGRAMME ~ Sunday Oct 9th   Tullamore Court Hotel, Tullamore, Co. Offaly, Ireland
See details of programme here.
Kelly’s Kontributions
Kelly recently suffered a family bereavement and has been staying with relatives in Yorkshire.  She says she will catch up with her contributions when she regains internet access.  Thank you Kelly, and we send our condolences to you.
I hope that some of you are progressing with your knitting.  If you haven’t started yet, it’s not too late.  If you missed my original article you can find it here  I have wool and knitting needles available if you wish to collect them.  Just let me know.

With the best of wishes to you all.

N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.
Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.  I also include various awareness and local issues as well as general health considerations.  Anyone wishing to reproduce any of the above items in printed form should seek permission from the originators.
Past issues of FMSSAS eNews can be found at and on a blog at

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