Saturday, 22 October 2011

FMSSAS eNews 11.10.22

Hello again
This is the last eNews before the AGM.  Please be sure to read the notes about this below. 
Here’s wishing you happy reading.  May it be beneficial.
42.  Life is a game, play it; Life is a challenge, meet it; Life is an opportunity, capture it.
AGM 29th 1pm at Chichester Park Hotel
A reminder that the voting forms for the trustees’ nominations should be with me by Thursday 27th.  PLEASE complete your forms asap and send them by email or post.  If you have mislaid your form email me and I will send you one.  Note that only members of FMSSAS are eligible to vote.  Please do your best to attend the meeting as well.  We do need people to be there!  The room where the meeting is to take place is on the GROUND floor, contrary to the information included in the Trustees’ Newsletter 10.  Apologies for this error.
Open Letter To Normals.
How to explain your condition to those who share your life.
Nutritionist Resource
This site was set up to connect visitors with a wealth of information and the ability to search for the most suitable nutritionist.  A useful resource for those looking for support or general advice about nutrition.
For Nature Lovers – Woodland access
VisitWoods have their own web pages within the Woodland Trust website. The purpose of the site is to inspire disabled people to visit woods and make it easy to search for woodlands near to you. The site has also been designed to allow people to share information about their own personal experiences using blogs and by uploading photos.
Stretched to the limit:  An audit of physiotherapy services in England
A report from the Chartered Society of Physiotherapy
Message from Ann Thayre, one of our members
“We have put in a bid to Nat West for funding to keep ourselves open and improve on what we have.  We are through to the final round so please vote for us by going online and voting at
I do warn you that it takes about 5 minutes maybe more as you need to register and then go back to your emails to complete registration. However I implore you to keep going as we really need the money. Our group name is Southlanders and the post code is BN43 6NN and we come under Brighton.  THANK YOU IN ADVANCE FOR VOTING.”
I have voted – will you?  Voting closes tomorrow so act now!  S.
American Pain Foundation
PAIN MONITOR October 2011 (Newsletter)
Scientists find gene that controls chronic pain
British scientists have identified a gene responsible for regulating chronic pain, called HCN2, and say their discovery should help drug researchers in their search for more effective, targeted pain-killing medicines.
Chronic Pain Gene - HCN2 - Identified, Hopes For New Targeted Pain Drugs
A gene called HCN2 produces a protein which regulates chronic pain, researchers from Cambridge Unive rsity, England, and the University of Cadiz, Spain reported in the journal Science. They added that medications which inhibit the gene's protein production could be extremely effective in combating chronic pain.
Gentle Yoga classes in Chichester and Selsey
Gentle Yoga classes for the beginner or those living with long term health conditions ( eg Fibromyalgia, CFS / ME, Arthritis, Diabetes, Cardiac, Hip / Knee replacement etc)
Gentle Seated Yoga ( Yoga in a Chair ) for the absolute beginner or those with limited mobility.
For details of classes in Chichester and Selsey please contact Sarah Owen Tel: 01243 781920 or e-mail:
Managing Fibromyalgia - The Magic of Magnesium 
“Let me start out by saying that magnesium is essential to every living cell in every living organism!  Yet, while actual deadly deficiencies are not common, nearly everyone in the Western world can be classified as having magnesium insufficiency. This fact is especially worrisome for those in pain. “
Positional Cervical Spinal Cord Compression and Fibromyalgia:
A Novel Comorbidity With Important Diagnostic and Treatment Implications
Initial Press Statement from The AONM & The Midlands Fibro Support Group Tullamore - International Conference 2011
Presentation Summaries from Tullamore Conference 2011
I hope you found something useful in this week’s list.  We all grasp at straws to find relief from fibro and this can sometimes come unexpectedly.
Kindest regards to you all

N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.
Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.  I also include various awareness and local issues as well as general health considerations.  Anyone wishing to reproduce any of the above items in printed form should seek permission from the originators.
Past issues of FMSSAS eNews can be found at and on a blog at

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