Saturday, 29 October 2011

FMSSAS eNews 11.10.29

Hi there!
I think I owe you a personal update.  On Thursday last week I had a CT scan for my hip.  I am due to see a surgeon at the Horder Centre in Crowborough on Thursday next (3nd Nov).  I could be called in at any time after that for a revision operation.  So when that happens it will mean that eNews won’t get sent out.  So if none arrives you will know why!  I apologise in advance, but the date is yet unknown. 
43. Expecting the world to treat you fairly because you are “good” is like expecting the bull not to charge because you are a vegetarian.
I put in a reminder of the meeting but could not get internet access before leaving for the meeting.  Attendance was disappointing but thanks to those who used their remote voting facility the trustees were all elected constitutionally.
Kelly’s Kontributions
1) "Obstacles to Pacing & How to Overcome Them"
The beginning of a series on how to succeed at pacing. First article explains what's meant by the term pacing
2) "Getting Through the Bad Days"
One person's strategies for handling relapses.
3) Positive Associations Between Physical and Cognitive Performance Measures in Fibromyalgia
Flupirtine – a new drug to treat FM?
The drug flupirtine has been used in Europe for more than 25 years to treat pain associated with cancer, trauma, surgery and other forms of neuropathic pain, and is now being considered as a possible new treatment for fibromyalgia. What makes this drug so attractive is that it is a non-opiate analgesic meaning that it is non-addictive with no withdrawal effects, has been reported to have minimal side-effects, and works best for pain associated with noninflammatory conditions.
Free Tai Chi Taster session in Horsham
There is a free Tai Chi and Qi Gong taster session on Wednesday 9 November in Horsham, everyone is welcome to join this 1 hour class (7.30-8.30pm) to try out Tai Chi and Qi Gong. Details can be found here:
 If any members would like to try the class, they need to register with Nicola as spaces are limited due to venue size.  See more details and register on the webpage.
Courses and workshops are held in Horsham & Worthing.
New Permit Scheme for taking mobility scooters on buses.
Surrey Disabled People’s Partnership wants to make sure people are aware of a new permit scheme that has been introduced by bus operators. This scheme means that people using mobility scooters are required to apply for a permit to take their scooter on a bus. If they do not show a permit when accessing a bus, they will be refused to travel.
Daily Mail article about Alpha Stim
Could a £299 electric earring help control chronic pain?  The Alpha-Stim sends tiny amounts of electricity into the body via probes, sticky pads or clips attached to the ear lobes.
It is said to work by blocking the transmission of pain signals, in the way TENS machines do — but at a different frequency which, it’s claimed, is closer to the kind of electrical impulses that occur naturally between cells.   The current level is low, so the user barely feels anything.
See also Alpha Stim website
Can changing your diet help you recover?
A healthy body that is a an appropriate weight for your height and age gives you the best base from which to control your Fibromyalgia.
A balanced diet will enable you to get the nutrients your body needs. Details of my balance diet are contained in my book Forget Fibromyalgia, Putting the pieces Together.
Fibromyalgia Self-Help
Article on Worthing Support Group’s website
BioMag Therapy
“Magnetic therapy will free you from all your pains.
Lives have been transformed just by wearing our precious bracelets.”
Cuddle Ewe™ - The Luxurious Gift for All Seasons
20% discount on Cuddle Ewe bedding. 
Fibro Lads Mag - Men with Fibromyalgia - How Men Are Different
For generations women had a tough time convincing doctors to take them seriously for many medical conditions, especially Fibromyalgia. Women have been called hysterical and told to curtail their active imaginations. However, men with Fibromyalgia are dealing with an entirely different issue; they just don't talk about it. Can you blame men for not coming forward with a women's disease when she is being told that it's all in her head?  Read more . .

Enjoy Hallowe’en!  Hope you don’t get too many Trick or Treaters.  Don’t forget to put your clocks back tonight.  Urrh – evenings getting dark even earlier,  never mind – lighter mornings will help.

N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.
Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.  I also include various awareness and local issues as well as general health considerations.  Anyone wishing to reproduce any of the above items in printed form should seek permission from the originators.
Past issues of FMSSAS eNews can be found at and on a blog at

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