Saturday, 24 September 2011

FMSSAS eNews 11.09.24


Hi everyone!
Another Saturday, another eNews.  On Fridays I attend a knitting group comprised of ladies who knit for charity, or for fun.  This week I discovered one of the members is a fellow fibromite.  It taught me that life cannot be compartmentalised.  There are always overlaps.  Two people from the church I attend are also fibromite’s, and are members of the Horsham group.  It’s good when you find you have more in common than just fibro!
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WORDz FOR THE WEEK
38.  Someday everything will make perfect sense . . .  So for now Laugh at the confusion . . .  Smile through the tears . . .  And keep reminding yourself that EVERYTHING happens for a reason.
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Holistic Therapies Day
 Just a reminder that Saturday 24 September is Holistic Therapies Day at the Sanctuary in Shere, near Guildford and a great day is lined up. Doors open at 10.30am, and a wonderful selection of complementary, holistic therapies will be on offer to try out, including colour and sound therapy, Kirlian hand readings, chiropractic back therapy, massage and much more. The Harry Edwards healers will also be on hand for contact healing sessions taking place in the chapel.  Read more:-
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Tried and Tested Report for 2011
Which treatments have been effective for fibromyalgia?  What did the group discover?  Read all about it here:-
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Chelsea Therapeutics Receives New Patent for Use of Droxidopa in Fibromyalgia
Another article about this new drug.
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Scientists find gene that controls chronic pain
British scientists have identified a gene responsible for regulating chronic pain, called HCN2, and say their discovery should help drug researchers in their search for more effective, targeted pain-killing medicines.
Scientists from Cambridge University said that if drugs could be designed to block the protein produced by the gene, they could treat a type of pain known as neuropathic pain, which is linked to nerve damage and often very difficult to control with currently available drugs.
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ICIS: information for life –Autumn 2011 Newsletter
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An Afternoon With Dr Raymond Perrin
Eastbourne Fibro/M.E. Support Group’s special meeting at The Deerfold Centre, 233 Seaside, Eastbourne, Wednesday, October 5 · 2:00pm - 4:00pm
THIS IS AN OPPORTUNITY NOT TO BE MISSED!!!
Dr. Raymond N. Perrin is Honorary Senior Lecturer in the School of Public Health and Clinical Sciences at The University of Central Lancashire and a Registered Osteopath and Specialist in ME.
Treating a patient for back pain in 1989 led him to the concept that there was a structural basis to ME. He has spent over twenty years researching the medical facts and sifting through the scien...tific evidence while successfully treating an increasing number of ME/Fibromyalgia sufferers and teaching fellow osteopaths, chiropractors and physiotherapists around the world the fundamentals of the Perrin Technique.
For further information contact Clare ebournefibrosupport@live.com
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Thyroid Disease in Fibromyalgia & Chronic Fatigue Syndrome
Fibromyalgia and chronic fatigue syndrome are multi-system illnesses. They hit you hard in multiple ways, and confuse doctors of all specialties because not everything can be explained by the one system they focus on.
In recent years, a new term has been gaining acceptance -- neuro-endocrine-immune. That reflects the scope of these illnesses accurately and conveys their complexity.
Still, we don't tend to get a lot of information about the interplay of the systems involved. With fibromyalgia, a lot of the focus in on neurology. In chronic fatigue syndrome, you hear most about the immune system. The "endocrine" part tends to be forgotten.  Read more:-
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For the Love of Purple Kale
Kale is one of the best leafy green vegetables, considered a star amongst healthy-eaters. It is loaded with nutrients including potent phytonutrients from the Cruciferous vegetable family which includes broccoli, cabbage and bok choy. Studies have shown that two phytonutrients in these foods, the Indole-3-carbinols and the sulforaphanes help prevent heart disease and cancer, can act as anti-inflammatories and helps our bodies slow down the aging process.
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I think that is all I have for you for now.   I hope to be back with you next week.  I can’t make promises of any kind at the moment as I don’t know when my hip revision operation will be.  It’s very unlikely to be this week, although the possibility of another dislocation is always omnipresent!!
I wish you all you wish for yourself!
Stella

N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.
Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.  I also include various awareness and local issues as well as general health considerations.  Anyone wishing to reproduce any of the above items in printed form should seek permission from the originators.

1 comment:

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