Saturday, 5 May 2012

FMSSAS eNews 12.05.07

Hi fibro friends
If, like me, you registered your interest with The Chrysalis Effect, you may have been offered complimentary tickets to the Launch Lunch next Monday.  If you did, I hope to see you there.  It should be a good ‘do’, gastronomically, educationally and entertainment-wise.  So I am looking forward to it.
69.  Reputation is what men and women think of us;  character is what God and angels know of us.
Kelly’s Kontributions
International Fibromyalgia Awareness Day Poster
Please will you display this poster to raise awareness of FM before May 12th?
You can also use these as flyers (2 x A5 on an A4 sheet).  Use as hand-outs, on notice boards, in car windows, distribute at support group meetings.
Get us noticed!  Will you wear PURPLE on May 12th?   Thank you.
See other available posters here
Some videos worth watching
This is the Face of Fibromyalgia
Fibromyalgia, The Life of a sufferer
and there are more to just click on and watch!  Take your pick.
Spreading Awareness Throughout the Year
The Fibromyalgia Network invites you to join in on the awareness activities—on May 12 or any day you feel up to it. While we’ve come a long way, we know more is needed. As one Member puts it, “People look at fibromyalgia as a catch-all diagnosis, and for the most part you look quite healthy and they can’t seem to get past that.” This sentiment is often expressed by Members, which is why we offer specially designed awareness items.
 The European Network of Fibromyalgia Associations  (ENFA)
For more European Awareness of Fibromyalgia
Nichola Del Nevo Bond who runs the Worthing Fibro group has joined forces with Caroline to inject a new lease of life into the Brighton group.  They will be meeting every second Wednesday of the month.  First meeting Wednesday 9th May 2pm to 4pm at St Luke's Prestonville Church, 64 Old Shoreham Road, Brighton, BN1 5DD .  For more info contact
Organiser: Nichola 07796653477 Email: or
Caroline on Helpline 0844 8872 376 Email:
Facebook: Fibromyalgia Brighton & Hove Support Group
Buying books about FM?
Get them from our Amazon Shops.
Metaphysical Health - What are Medically Unexplained or Functional Somatic Symptoms?
 Any persistent symptoms that cannot be explained by a medical doctor are referred to as functional symptoms or functional somatic symptoms.  This doesn’t mean these symptoms don’t exist, that they’re not real, or that they are all in the mind. It simply means that the medical profession does not have a mechanism for identifying why these symptoms are present.
To achieve a cessation of fibromyalgia symptoms the energetic blockages need to be addressed.  Our approach offers a fresh perspective on fibromyalgia:  advocate going beyond the medical and beyond the physical to provide all the knowledge, tools, exercises and techniques needed for a successful recovery and return to symptom free health.
Does Fibromyalgia Differ Between Sexes?
The so-called “Battle of the Sexes” stretched into fibromyalgia research earlier this month, and it’s no surprise. Men, often under-represented in fibro research, are often thought to not be as affected as the typical “over-emotional, over-exaggerated” women.  But as expected, the research shows this old sexist view is incorrect.
Pain Alliance Europe website launched
“Chronic Pain effects an estimated 100 million people across Europe according to a Survey of chronic pain in Europe: prevalence, impact on daily life, and treatment by Breivik H, Collett B, Ventafridda V, Cohen R, Gallacher D and published in the European Journal of Pain 2006;10(4):287-333 (11) Chronic pain has a devastating impact on those who suffer with chronic pain. Not only experience they a medical chaos but the social and economical impact on the sufferers as on the society is enormous.”
Some articles from Web MD
1.      Does Acupuncture Fight Fibromyalgia? – View Slideshow
Acupuncture has been used for centuries as a pain remedy.  Learn how it works.
2.      Common Misdiagnoses of Fibromyalgia
Fibromyalgia is a condition marked by widespread chronic pain and fatigue with no known cause. It's not fatal. Though the pain may not have been caused by an injury, it is real.
When fibromyalgia is diagnosed and treated properly, most people have a significant reduction in symptoms and a much better quality of life.
But diagnosing fibromyalgia is often difficult. Its symptoms can mimic those of other conditions.
Here's a look at the common ways that fibromyalgia can be misdiagnosed.
3.      Causes of Fatigue and Sleepiness and How to Fight Them – Slideshow
It may seem obvious but you could be getting too little sleep. That can negatively affect your concentration and health. Adults should get seven to eight hours every night. 

4.   Low Dose Naltrexone (LDN) – Discussion on Health & Social Care Reform Forum
LDN (Low Dose Naltrexone) has been used since the 1980s, to treat a wide range of autoimmune conditions including MS, Crohn’s disease, Cancer, Ulcerative Colitis, Fibromyalgia and Parkinson’s disease. Unfortunately, a large amount of LDN is prescribed privately rather than in the mainstream NHS. GPs and other clinical practitioners are often reluctant to prescribe LDN because of the relatively small number of trials made using the drug. This is because LDN is extremely cheap, so the cost of large-scale trials cannot be justified.
5.      Fibromyalgia: Managing Fibro Fog
Fibromyalgia and the exhaustion that can come with it often lead to confusion.
6.      Chronic Fatigue Syndrome: Using Graded Exercise to Get More Energy
You may be thinking, "How can I exercise when I'm so tired I can barely get through the day?" You can do it, as long as you start out very slowly and are careful not to overexert yourself. Most important, it will make you feel better.
7.      Pain management overview
Pain management is important for ongoing pain control, especially if you suffer with long-term or chronic pain. After getting a pain assessment, your doctor can prescribe pain relieving medicine or other pain treatments to help you get pain relief. Sometimes psychotherapy is also useful to learn how to cope with chronic pain.
New! Free Digital Subscription for WebMD, the Magazine for iPads
WebMD the Magazine for iPad is a new interactive and FREE digital subscription. Now it’s easier than ever to make better health and healthy lifestyle decisions for you and your family anytime, anywhere. WebMD the Magazine is published by, the most visited, trusted, and influential brand in health information. WebMD the Magazine brings health news to life in a whole new way, from expert analysis of medical breakthroughs to celebrity interviews, nutritious recipes, exercise and fitness smarts, parenting and kids’ health tips, expert skin care solutions and more -- all at your fingertips.

You can also read it on your computer.
Here is a new fun way of raising money for FMSSAS.  Join in the fun.
Guess2Give is an easy and fun way to raise money for Fibromyalgia Support for Surrey and Sussex but here’s the twist, everyone who makes a guess, could WIN a cash prize.  Create your sweepstake.
Personal Independence Payment: assessment thresholds and consultation response by the 25% ME Group and Stonebird.
1. The government wants to find new and better ways to work out who gets Personal Independence Payment. This will be done through an assessment.
We are concerned that the true intention is primarily to cut costs rather than meet need. We are aware that the stress surrounding the whole reassessment process will put peoples’ health and lives at risk, especially those with Severe ME, who are extremely vulnerable and likely to deteriorate, under these circumstances.
May is National Mediterranean Diet Month
Scientific studies consistently report that the healthy Mediterranean Diet and its lifestyle practices reduce the risk of chronic diseases such as heart disease, cancer, and diabetes. What makes the Mediterranean Diet so good? It focuses on fruits, vegetables, olive oil, legumes, nuts, seeds and whole grains. Add to that some fish and seafood, and a little poultry, eggs and cheese and you have a healthy diet filled with vitamins, minerals, fiber, and healthful monounsaturated and omega-3 fats.
So, here ends another marathon of informational gems.  Hope you have found some useful ones.  Enjoy – and learn.
Every good wish
N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.
Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.
I also include various awareness and local issues as well as general health considerations.    Anyone wishing to reproduce any of the above items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr.
Past issues of FMSSAS eNews can be found at and on a blog at
FMSSAS website is

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