Saturday, 26 May 2012

FMSSAS eNews 12.05.26

Hi everyone
After all that rain it has been wonderful to see the sun again, even if it has been a little too hot at times!  I’m not complaining though.  Think of all the vitamin D our bodies will be absorbing.  But be careful you don’t overdo it or you might get your skin sun-damaged.  I had actinic keretosis as a result of over exposure to the sun when living in warmer climes.  Not good!
72.  The mind leads by reason but the heart follows by love  . . .
The Queen’s Diamond Jubilee
The Jubilee Hour.  This campaign aims to recognise Her Majesty the Queen’s 60 years of public service by encouraging people to undertake 60 minutes of volunteering, or an act of goodwill. You can pledge your Jubilee hour to be done at any time in the Jubilee year.
Nice idea whether or not you normally give your time to charity.
Heatwave Plan for England 2012 published
The Heatwave Plan and accompanying guidance is intended to raise public and professional awareness on how to prepare in case of severe hot weather and potential heatwaves this summer.
UK GPs Conference has Voted unanimously for an end to the DWP/AtoS Work Capability Assessment régime “with immediate effect”
Chest Pain and Fibromyalgia
If you have fibromyalgia you may have noticed that you often feel intense pain in your ribcage and chest. This aching and stabbing pain is very common in fibromyalgia and can really impact on your enjoyment of life. If your chest pains are making it difficult for you to complete your work, get a good night’s sleep, or even breathe deeply, it is important to visit with your health care provider. Chest pain in fibromyalgia is usually nothing to worry about, but occasionally it can indicate other problems.
The Spoon Theory
I am sure many of you have seen this before, but for those who haven’t . . . an analogy of what it is like to live with sickness or disability. 
About Chronic Fatigue Articles
Teenagers perspective on chronic fatigue syndrome
Purse Organization For Fibromyalgia And Chronic Fatigue Syndrome
Coping with fms & cfs - Laundry tips
Coping with fms & cfs – Grocery shopping
Coping with fms & cfs - Cooking
Less connectivity & pain-dysregulation in fibromyalgia
Fibromyalgia Elimination Diet Success Story
Why Is Fibromyalgia Not Considered an Autoimmune Disease?
Hot weather woes with fibromyalgia and chronic fatigue syndrome
Gluten Intolerance in Fibromyalgia & Chronic Fatigue Syndrome
Web MD Articles
Slideshow: 10 Fast Stress-Busting Pickp-Me-Ups
Eat to Avoid Pain
Many people with migraines find that certain foods trigger their headaches. Keeping a food diary can help you see which foods tend to trigger a headache -- and find out if avoiding that food helps prevent a migraine from striking.
Fibromyalgia and Sleep
Are you having trouble sleeping because you have fibromyalgia? Most people with the disease complain of trouble sleeping. No matter how long they sleep, it is rarely restful. Here's some information that can help you get a better night's sleep.
How to Beat Pain – BBC 1 19.30, 28th May
Dr Jack Kreindler and Professor Greg Whyte tackle pain - one of the most common complaints in Britain. To reveal key facts about chronic back pain, osteoarthritis and acute pain, and give insight into how these debilitating conditions can be treated, these medical mavericks use each other as human guinea pigs in fun and often painful experiments
Irritable bowel syndrome, or IBS, is an uncomfortable and sometimes painful disorder affecting up to 1 in 5 persons. Effective treatment options have been somewhat limited, but researchers recently reported that two prevalent drug therapies — rifaximin and lubiprostone — may be preferred options, depending on the type of IBS. Also important, a unique but simple statistical approach is presented for calculating benefit-to-harm ratios for any therapy.
Gupta Amygdala Retraining
This is a brand new powerful treatment for Chronic Fatigue Syndrome, ME, Fibromyalgia, and associated conditions.
If you would like to receive a FREE online video course about the causes of these conditions, please register your name and email.
Fibro and Your Marriage
Any marriage or intimate relationship has its shares of normal ups and downs. But being diagnosed with a condition like fibromyalgia creates dramatic additional challenges and strains. When you have fibromyalgia, your spouse has to accept you as a somewhat different person, someone whose energy may be limited and whose skills may be reduced. For some people, this transition can be difficult. Your spouse may mistake your fatigue for a lack of interest in what's going on in his life and your pain as an excuse for getting out of chores. It may be hard for him to realize and accept just how sick you are, especially if you have no outward symptoms.
Eastbourne Support Group Meetings Venue Change
The meeting held every first Wednesday of the month  is now held at TJ Hughes, 177/87 Terminus Road, Eastbourne, East Sussex BN21 3NX at 11.30am.
Camberley Support Group now Active Again
For details of meetings please contact Amanda Tel: 01276 63595 Best times to call are Mon,Tue,Wed 10am - 2pm and weekends Sat/Sun between 4pm-6pm or Email:
Brighton & Hove Support Group Back on Track
Meetings every second Wednesday of the month 2pm to 4pm at St Luke's Prestonville Church, 64 Old Shoreham Road, Brighton, BN1 5DD.
For more info contact Organiser: Nichola 07796653477
Email: or
Caroline on Helpline 0844 8872 376 or Email:
I guess I had better sign off now.  I wish you well in all aspects of life – physically, mentally and spiritually. 
Best of wishes to you all
N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.
Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.
I also include various awareness and local issues as well as general health considerations.    Anyone wishing to reproduce any of the above items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr.
Past issues of FMSSAS eNews can be found at and on a blog at

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