Saturday, 24 March 2012

FMSSAS eNews 12.03.24

Hello to you all
I know we desperately need rain, but I must say I have been enjoying the sunshine of late.  Quite a heat wave for March!  Approaching Crawley from Horsham the roadsides are banked with daffodils and they are a truly wonderful sight.  Today I noticed trees and hedges were showing embryonic leaves.  It makes one feel ALIVE!
63.    Life is about change; sometimes it’s painful, sometimes it’s beautiful, most of the time . . . . it’s both.
Kelly’s Kontributions
CFS, FM, ME 'Seasons of Hope' Awareness Postcards
"Fighting Fatigue"
Fatigue can have multiple causes. Learn how to fight back using a combination of strategies.
"Using CBT: A Success Story"
How one person used Cognitive Behavioral Therapy to treat Chronic Fatigue Syndrome.
Clinical dimensions of fibromyalgia symptoms and development of a combined index of severity: The CODI index.
Predictors of Clinical Pain in Fibromyalgia: Examining the Role of Sleep
Prevalence of Fibromyalgia Syndrome in Patients Referred to a Tertiary Pain Clinic
Restrictions in participation in women with fibromyalgia syndrome : An explorative pilot study
A mind-body technique for symptoms related to fibromyalgia and chronic fatigue
The New Normal: Moving Beyond Illness
Find out how one woman found peace after a debilitating diagnosis – fibromyalgia.
Skin Creams, Soaps and Lotions Marketed as Skin Lighteners and Anti-aging Treatments: May Contain the Toxic Metal, Mercury
Just in case!
A warning has been issued not to use skin creams, beauty and antiseptic soaps, or lotions that might contain mercury. The products are marketed as skin lighteners and anti-aging treatments that remove age spots, freckles, blemishes and wrinkles. Adolescents also may use these products as acne treatments. Products with this toxic metal have been found in at least seven states.
Fibro Treatment
The most effective treatment approaches for fibromyalgia symptoms use a combination of medications, non-drug therapies, and self-help strategies when you hurt all over. Three medications are FDA-approved for relieving fibromyalgia pain (Lyrica, Cymbalta and Savella). Others may be prescribed in place of or together with one of these drugs to ease your many symptoms. Non-drug treatment approaches usually reduce achy muscles with trigger point therapies and enhance your ability to function. Some are viewed as mainstream, while others may be considered alternative therapies. Due to the significant impact fibromyalgia may have on your daily activities, simple lifestyle changes or self-help strategies can build upon your treatment success.
A Pain Management Tool for People With Fibromyalgia
An interactive tool to help you create a detailed picture of your pain providing a lot of important information fast, so you and your health care provider can move on to addressing your issues more quickly.
This Tool Recommended for:
Patients diagnosed with Fibromyalgia
Printing a detailed snapshot of Fibromyalgia pain
Move on to the Fibro Log.  Keep a record of how you feel each day
Your pain and other fibromyalgia symptoms can fluctuate day to day, so it is important to communicate regularly with your health care provider and make the most of each appointment.
Mayo trial finds strength & aerobic exercise help fibromyalgia pain equally
Strength training and aerobic exercise have beneficial effects on pain in adults with fibromyalgia. However, the equivalence of strengthening and aerobic exercise has not been reported.
Pain Monitor - March 2012
‘Welcome to a new version of Pain Monitor – here you’ll find articles on living with chronic pain, the latest pain news, events, and much more. We hope you or a loved one finds this information helpful in living a better life with pain. Please help us improve this publication by completing the survey highlighted in every issue.’
Offer for Pet Owners over 65
Thanks to a grant made by The Body Shop Foundation, Wadars have launched a new free scheme to help keep pets safe. The scheme offers a completely free pet micro chipping service for anyone over the age of 65 who live in the Littlehampton, Arundel, Pulborough, Worthing, Lancing and Shoreham areas.
10 Ways to Tell if You Have Fibromyalgia or Chronic Fatigue Syndrome?
A lighthearted look at the symptoms!
Invisible Illnesses
Personality & Physiology in Fibromyalgia: A New Discovery
Fibromyalgia has long been tied to certain personality traits, both by the medical community and by some in the patient community. However, this observation has always been controversial, with many objecting that such stereotyping was erroneous and blamed non-physiological traits for a physiological illness.
Now, new research may resolve the controversy by tying both fibromyalgia AND a personality trait to a physiological root.
PatientsLikeMe Newsletter Issue 15 - March 2012 - MONTHLY MUSINGS
Flare.  Exacerbation.  Attack.  Acute episode.  These are a few of the different terms used to describe a multiple sclerosis (MS) relapse—which can last anywhere from 24 hours to several weeks to even months. 
MS isn’t the only condition that has exacerbations, however.  This pattern is also common with fibromyalgia (FM), rheumatoid arthritis (RA), psoriasis, IBS, depression and more.  Just check out all the threads tagged with either “flares” or “relapses” across the forum. 
Some courses that might be helpful
Sussex -  Time to Talk service for Cognitive Behavioural Therapy ( Positive thinking)
If you are on the Time to Talk program you will also be eligible for courses for adults dealing with mental health issues, with West Sussex adult education
Expert Patient Program, various venues
St Thomas Hospital, London INPUT Program for people dealing with long term chronic pain
Get self help, useful fact sheets
Centre for clinical Interventions (CBT)
Living Life to the Full, an online course in cognitive behavioural therapy
 MOODJUICE, self help guides for coping strategies
Alternative Approaches to Chronic Pain Management and Freedom from Suffering
Dr. Stephen Grinstead discusses the importance of using alternative nonpharmacological (non-medication) based ways to manage chronic pain; especially for pain flare ups.  He also talks about the importance of setting realistic goals for pain management.  Some of the alternatives mentioned are humour, music, art and gratitude to name a few.
See also
When It Comes To M.E., Fibromyalgia & CFS, if You Think You've Tried Everything... Then think again!
New Fusion Counseling Takes the Mystery Out of ME/CFS/Fibromyalgia Recovery
How are you?
Stay positive!
Wow!  Another bumper bundle.  Still the info keeps coming in.  Can ANYONE say that fibro doesn’t exist?
N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.
Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.
I also include various awareness and local issues as well as general health considerations.    Anyone wishing to reproduce any of the above items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr.
Past issues of FMSSAS eNews can be found at and on a blog at

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