Saturday, 3 March 2012

FMSSAS eNews 12.03.03

Greetings to you all
March is here.  Officially it’s Spring.  Daffodils and crocuses are blooming.  The sun has been shining.  Oh joy.  Let us all be happy.  Happiness is good for us - and bad for the fibro.
60.  We were all born for a reason, our job is to find out what it is.
Kelly’s Kontributions
Low Motivation With Fibromyalgia& Chronic Fatigue Syndrome

A SCN9A gene-encoded dorsal root ganglia sodium channel polymorphism associated with severe fibromyalgia

Autonomic dysfunction in women with fibromyalgia.

What is THE Cause of Fibromyalgia& Chronic Fatigue Syndrome?

The cost-effectiveness of pregabalin in the treatment of fibromyalgia: US perspective.

Effects of strength vs aerobic exercise on pain severity in adults with fibromyalgia: A randomized equivalence trial.

Coenzyme Q(10) in salivary cells correlate with blood cells in Fibromyalgia: Improvement in clinical and biochemical parameter after oral treatment.

"Five Treatment Principles"

The foundation for a CFS/FM symptom management plan.

"Learning to Manage Fibromyalgia"

Getting a diagnosis of FM triggered a process of change that led to a greatly improved quality of life.
Give as you Live
Did you know you can support Fibromyalgia Support for Surrey and Sussex (FMSSAS) every time you shop online - at no cost to you?
With ‘Give as you Live’ thousands of brands including, John Lewis and Expedia have signed up to donate a percentage of every purchase you make online to us. All at no cost to you and at no cost to us.
Simply visit and discover ‘Give as you Live’ today. If you sign up by 31st March 2012 ‘Give as you Live’ will donate an additional £5 to us after you spend £10 or more.
It costs you nothing to raise much needed additional funds for us every time you shop online. Please visit today and discover ‘Give as you Live’.
Thank you
Royal Surrey County Hospital Chronic Pain Service
Not only in West Sussex, but in Surrey too!  Fibromyalgia is a condition which is treated if referred by a doctor or specialist.
Do you need to find support and help in West Sussex?
ICIS can help you!  We gather information about support, care and advice services, suppliers, clubs and activities in West Sussex. We can help you find services, groups and opportunities to help you maintain your health, wellbeing and independence. Contact our Enquiry Line and we will search our West Sussex and national databases and reference library to find you help. Or search the ICIS Wellbeing & Community Directory (an extract of our full Directory) to find day-to-day help. ICIS can help you find services you may not know exist.
The BIG Event Conference 2012, Eastbourne
‘Bridging The Gap Between Policy Reforms And Practice’
Pre-booking is essential if you wantto attend the largest annual voluntary sector event in East Sussex onTuesday 13 Marchat the Winter Gardens, Eastbourne, from 9.40am to 2.30pm.
What will 2012 bringfor voluntary and community groups?
How will groups be affected by recent changes to national policy?
What will be gained and what will be lost?
The event will focus on changes to Health and Social Care, and Welfare and Legal Aid.
 The Big Event 2012 will feature local and regional speakers, a Q&A session and discussion groups. There will also be an advice fair offering information about free and low-cost services for organisations (including IT support, training and funding advice).
More details, including booking information, is available here.
Get Exclusive and Instant Access to The 2nd Edition of:
Insider Secrets for Treating Fibromyalgia: 10 Top Experts
Available in One Quality Resource.
Get Instant Access to Not Just One But TEN Top Experts!
Fibro Out-of-Control? … two experts offer treatment advice
Is your fibromyalgia becoming more unmanageable and is staying awake during the day a constant struggle? Both of these situations can make you wonder, “What can I do to get out of this rut?” Two experienced clinicians describe common reasons for why fibro symptoms can worsen and offer their treatment advice to help you get back on your feet.
How To Sleep Well Despite Fibromyalgia
If you're suffering with fibromyalgia, there's a good chance you might also be having a difficult time enjoying a good night's sleep. Those who have fibromyalgia report a wide range of sleep difficulties, including a hard time getting to sleep, continual awakening throughout the night, as well as sleep apnea (characterized by abnormal breathing) and restless leg syndrome (an overwhelming urge to move the legs).
Seven Foods That Cause Migraines
More than 30 million Americans suffer with migraine headaches, and most are women. Although doctors aren’t sure what causes all of them, they suspect more than a quarter of migraine sufferers have specific food triggers. To find out if a particular food is causing your headache, keep a diet diary for at least a month and pay special attention to the most common food triggers. Read more:-
Migraines & headaches health centre
Migraines & headaches overview
Migraines and other types of headache - such as tension headache and sinus headache - are painful and can rob you of quality of life. Migraines affect around 15% of adults in the UK. Migraine symptoms include a pounding headache, nausea, vomiting and light sensitivity. Headache remedies include various types of pain killers. Migraine treatments may also include anti-sickness drugs and medications to prevent or stop headaches.
Is There A Vitamin D Link To Chronic Pain?
We know that diet/nutrition plays an important role is some chronic pain conditions. For example with migraine sometimes just changing your diet may resolve the problem. Another condition, gout (high uric acid levels) can also be triggered or exacerbated by some foods and alcohol. In this discussion I want to share some results I discovered on the role of Vitamin D and some chronic pain conditions.
What do patients take to treat Fibromyalgia and its symptoms?
Commonly prescribed and frequently used treatments
Fibromyalgia Exercise, One Step at a Time
Top Alternative Treatments for Fibromyalgia
Fibromyalgia: Living a Balanced Life
There are many more articles on this site.  Follow the links.
Autonomic dysfunction in women with fibromyalgia
In a recent issue of Arthritis Research & Therapy, Ribeiro and colleagues [1] present data that lend further support to the theory that women with fibromyalgia (FM) suffer from autonomic dysfunction in response to, and during recovery from, acute exercise. Alterations in autonomic function have been suggested to increase the risk for cardiovascular events and mortality [2]. While the data are not fully understood regarding the risk of premature cardiovascular disease in women with FM specifically, it appears that there is definitive evidence to support autonomic dysfunction at rest.
What is the Cause of Fibromyalgia?
The more I try to learn about the cause of fibromyalgia, the more I just get confused. Some sources say it's caused by autoimmune diseases, some say it's hereditary, some say it's because of a virus or a neck injury or diet or chronic stress, and recently someone told me it's caused by depression. What really is the cause of fibromyalgia?
NHS Options - Mr Cameron, why aren't you giving us a choice?
One of the biggest claims made by the government about their health bill is that it will give patients more choice. Who could object to that? It’s like saying 'no' to more freedom. But patients' actions in fact reveal that the locality and availability of healthcare is more to them important than choice, while there is no evidence from other health systems that greater choice improves either quality or efficiency.
Just for Fun
Go to this link and you will get a black screen.  Click anywhere on it, all over it and enjoy the result.  Spring has indeed sprung!
Another long edition but I offer no apologies.  You have choices for gaining information.
Best regards
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N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.
Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.
I also include various awareness and local issues as well as general health considerations.    Anyone wishing to reproduce any of the above items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr.
Past issues of FMSSAS eNews can be found at and on a blog at

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