Saturday, 18 February 2012

FMSSAS eNews 12.02.18

Hello again
The FMS Conference is getting nearer.  Don’t forget to book asap to avoid disappointment.  You can attend the whole weekend all inclusive for £179 or attend as a day visitor on the Saturday and Sunday for £79.  More details are here.  It's Easter weekend, 6th-9th April!
I hope to see you there!
::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::
58.  I think what messes us up most of the time, is that we have these perfect pictures of how things are supposed to be.
::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::
Worthing Area Fibro Group February Newsletter.
::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::
American Pain Foundation Newsletter
::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::
Recording your Atos WCA assessments – email from Paul Smith (Atos Victims Group)
::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::
Pain Body Chart
Chart provided by WS PCT for locating painful areas of the body.  Next time you go to your doctors, you could take one and show them where you are hurting.  Useful for keeping a record – new chart each week?
::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::
Recorded Yoga Nidra Practices led by Deirdre Rawlings, PhD, ND.
Reduce Chronic Pain, Fatigue, & Insomnia  through a Deep Mindful Relaxation Journey that Heals, Renews, and Transforms.   Feb 21st - Register NOW.
::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::
Does your teen complain of pain, tenderness, stiffness, and fatigue?
If so, he or she may have a condition called fibromyalgia. Juvenile fibromyalgia is a chronic condition among teenagers that is characterized by significant widespread pain and fatigue and other symptoms that can make performing their daily activities a real struggle.
::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::
Believe in Yourself—Steering Clear of Self-Doubt and Destructive Thoughts
How do you believe in yourself when others trivialize your symptoms? Or how do you continue to like yourself when fibromyalgia keeps stealing your energy and ability to function as you once did? These situations fuel ongoing battles and undermine your self-esteem. But no matter what others say or do, it is essential that you believe in yourself.
::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::
Muscle Relaxants: Do they work for fibromyalgia?
Are your muscles always tight and achy? Perhaps you have ropy bands with knots in the mid-section, and just pressing on these areas can send your pain through the roof. But the knots do more than hurt, they make the muscles tight and stiff. It’s logical to wonder if muscle relaxants might ease the tension in your muscles and help loosen your painful knots.
::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::
Fibro-Friendly Hobbies and Pastimes
One of the challenges of adjusting to fibromyalgia is finding hobbies and pastimes that don’t aggravate your symptoms. Better yet, you want to seek out activities that provide you with gratification and distraction from the pain. The Fibomyalgia Network surveyed its Members and here are a few of the most endorsed fibro-friendly pastimes:
::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::
Hair Problems in Fibromyalgia
Fibromyalgia affects everything, from your hair to your toenails. And if you're thinking, "Hey, I wonder if my hair problems are related to fibromyalgia," there's a good chance they are.
::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::
Pain & Cognitive Function in Fibromyalgia
A few days ago, a German researcher told the 6th World Congress of the World Institute of Pain that, according to his latest study, the cognitive dysfunction (fibro fog) of fibromyalgia is primarily related to one single factor.
That factor is not depression. It is not anxiety. It is not even unrefreshing sleep. 
That factor is: Pain.
::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::
Develop Coping Skills for Living With Fibromyalgia
When you're diagnosed with fibromyalgia (FM), among the initial things you learn is that there's no cure and that it can be hard to find effective treatments. It's normal to feel sad, angry, helpless and confused. Once you're beyond the initial shock, however, the way you deal with your condition can make a big difference in how you feel.
::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::
Fibromyalgia, Chronic Fatigue Syndrome & Interstitial Cystitis
Fibromyalgia, chronic fatigue syndrome and interstitial cystitis (IC) -- a painful bladder condition -- frequently occur together. Women may be up to 10 times more likely than men to develop it.
See also
::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::
Low Dose Naltrexone (LDN)
This drug is being used as a regulator of the immune system, providing relief to patients with autoimmune diseases, and central nervous system disorders.  Whilst it is not licensed by the FDA specifically for these conditions, physicians are permitted to prescribe LDN ‘off-label’ for any use they think is appropriate.
The apparently diverse conditions in which LDN appears to have a therapeutic effect are united by their ability to benefit from increased levels of endorphins (naturally occurring opioids – specifically OGF).  Fibromyalgia is cited as an example of the successful use of LDN.
::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::
Fibromyalgia Insider Secrets: 10 Top Experts
New eBook with Audio Series with Proven Solutions
::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::
Web MD - Pain management health centre
11 tips for living with chronic pain
::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::
From the Skin Tissue to the Brain… it all signals pain!
How can you hurt from head to toe? Research shows the pain control system in the skin, spinal cord, and brain of fibromyalgia patients is overloaded and offers a reason for why you ache all over.
::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::
A picture of professional organisations calling for the health bill to be dropped.
The Royal College of General Practitioners issued a statement calling for the health bill to be dropped, joining many other health organisations who see it as fatally flawed. The size of professional opposition to the bill is undeniable and overwhelming, but to this can also be added the huge concern of health sector experts, charities, campaigners, economists and the majority of the public. 
::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::
NHS Matters
The pressure on the government to drop their health bill is rising – and there is a real chance to save the NHS from these damaging changes.  Sign the ePetition.
::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::
East Sussex Hospital Trust Clinical Commissioning Strategy- Pre consultatation meeting for Voluntary and Community organisations
The way in which hospital services are run is set to change across East Sussex and the two main hospitals in Hastings and Eastbourne. This may have huge implications for patients and service users and should be of concern for any voluntary and community organisation involved in health and social care.  SpeakUp Forum, the Hastings Community Network, 3VA RVA and East Sussex LINk have come together to offer groups the opportunity to digest, discuss, question and become informed about the issues.
Please join us on Tuesday 28th February at 3VA, 8 Saffrons Road, Eastbourne BN21 1DG from 1.00pm – 3.00pm for a meeting which will give you the chance to hear about the options from the Trust and feed into the East Sussex LINk research which will be one of the key influencing mechanisms throughout the whole decision-making process.  To book a place go  here
::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::
Disabled people face unlimited unpaid work or cuts in benefit
Mental health groups and charities attack plans drawn up by Department for Work and Pensions
::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::
I never cease to be amazed by the amount of information that is gleaned each week.  I hope you can share the knowledge you gain with unsympathetic health professionals.  I will gladly put any of them on my mailing list if they want to be kept informed as well.  Not only the unsympathetic ones either!  The others are more likely to be interested.  Do make the offer to any you have contact with.
I look forward to hearing from them!
Every good wish
::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::-- ::--::--::--::--::
N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.
Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.
I also include various awareness and local issues as well as general health considerations.    Anyone wishing to reproduce any of the above items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr.
Past issues of FMSSAS eNews can be found at and on a blog at

No comments:

Post a Comment