Saturday, 11 February 2012

FMSSAS eNews 12.02.11

Good morning to you
A cold but sunny one.  Oh my, how cold it has been - again!  I hope you have managed to wrap up warmly and avoid frostbite.  Information about fibro continues to flood in and there is a plethora of articles FYI this week.  Enjoy!!
57.  Realise what’s important in your life.  What you can live with, but more importantly what you can’t live without. 
Disability Rights UK Factsheet
The Personal Independence Payment (PIP) replaces working age disability living allowance (DLA) from April 2013.
PIP will have many similarities with DLA. In particular it will have two components: a daily living component (which has similarities to the current care component) and a mobility component.
ME/CFS Community
Abstracts of a variety of articles.
What Doctors Don’t Tell You
Health eBooks now available at £3.95 each + VAT.  Of possible interest to FM patients - CHRONIC PAIN, HEALING FOODS, THE NEW HEALING, SUPPLEMENTS UNDER THE MICROSCOPE.
Dr Sarah Myhill in radio interview
Dr Myhill, the ME/Fibro doctor in Wales, is talking about diet, allergies, etc. in the link below. Be patient when the link first begins, she comes on the programme in the end. She is quite an amazing woman and worth a listen to.  Webpage here
mp3 download here
Pain Negatively Affects Cognition in Fibromyalgia
Pain is the primary factor contributing to cognitive impairment in patients with fibromyalgia syndrome, over and above depression, anxiety, fatigue, sleep complaints, and medication use, reported Stefan Duschek, PhD, from the University of Munich, in Germany, here at the 6th World Congress of the World Institute of Pain.
Do Women Feel Greater Pain Than Men?
A preponderance of research evidence suggests that there are profound differences between men and women in the prevalence, perception, reporting, and treatment of pain. A newly published study adds to that, finding at the least that women seem less shy than men about reporting their level of pain on standard assessment measures. Whether or not women actually feel greater pain and over a broad range of medical conditions, as suggested by this research, may be uncertain.
Chronic Pain Control Basics for ME/CFS and Fibromyalgia
Of the difficult but treatable symptoms of chronic fatigue syndrome (CFS) and fibromyalgia (FM), chronic pain is rarely treated adequately. Headaches, lymph node tenderness, muscle pain and joint pain cause considerable long term discomfort – sometimes mild, sometimes severe. There may be fluctuations in the severity of pain.
Is magnesium citrate treatment effective on pain, clinical parameters and functional status in patients with fibromyalgia?
The aims of this study were to investigate the relationship between magnesium levels and fibromyalgia symptoms and to determine the effect of magnesium citrate treatment on these symptoms.
Intrinsic brain connectivity in fibromyalgia is associated with chronic pain intensity
Fibromyalgia (FM) is considered to be the prototypical central chronic pain syndrome and is associated with widespread pain that fluctuates spontaneously. Multiple studies have demonstrated altered brain activity in these patients. The objective of this study was to investigate the degree of connectivity between multiple brain networks in patients with FM, as well as how activity in these networks correlates with the level of spontaneous pain.
Sleep oh sleep, where art thou? Could your fibromyalgia medications be causing insomnia?
Yes, fibromyalgia medication could be causing your insomnia.
 Cymbalta® (Duloxetine) and Savella® (milnacipran) which have been approved for treating fibromyalgia are in a class of drugs called selective serotonin and norepinephrine reuptake inhibitors (SNRIs) and insomnia is a side effect for both medications.
Fibromyalgia: A Plausible Model for Cause and Cure
Fibromyalgia is a disease of widespread soft-tissue pain and stiffness. It often coincides with symptoms of persistent fatigue, exercise intolerance, disrupted and non-restorative sleep, tension headaches, migraines, blurred vision, abnormalities of the skin or fingernails, painful menstrual periods, numbness or tingling, heart palpitations, sleep apnea, temperature sensitivity, restless legs, impaired cognition, irritable bladder, and intestinal symptoms of irritable bowel, bloating, gas, belching, pain and distention.
Help Yourself Sleep Well Again .  Fibro pain and tenderness don't have to keep you from getting the rest you need.  Get tips for dealing with sleep problems.
Magnesium the Heart Mineral
Magnesium is the most versatile mineral in your body and is known to be required for several hundred different functions. One of the principle functions of magnesium in the body is that it enables muscles to relax. Without sufficient magnesium in the body, the muscles cramp and we can feel tense, nervous and jittery. In fact, anything that is tight, irritable, crampy and stiff – whether it is a body part or even a mood – is a sign of magnesium deficiency.
Independent Living newsletter - Thu, 09/02/2012
Some items here might be of interest
Winter Fuel Payment for disabled and chronically sick people
Will you sign this ePetition?
Very Low-Cost Ways to Spice up Your Love Life
Earth Balance Tai Chi, Qi Gong & Meditation Classes
See timetable for classes in Crawley, Horsham and Worthing and workshops in Brighton.
Gymnophobics – recommendation by a member
I have been going to the Gymnophobics gym in Hove beside the Co-op on Blatchington Road since last August.  It is women only and a circuit of 30 mins with 3 mins on each machine.  There is no treadmill or cross trainer or anything that pounds through the body.  You are assessed and all exercises are suited to whatever condition you have.  I can honestly say that it has been worth the time and effort as I can now manage better without a walking stick and feel more energetic than before.  It seems to work for me so if anyone else is interested in having a go ring them on 01273 733933 and book a trial.  It is friendly and even a cup of tea or coffee afterwards so that you can rest before setting off.  It is the only exercise that I have found that seems to work for me so worth every penny.
National Fibro Research Association –
National Fibromyalgia Association -
FM & Chronic Pain Association –
 American Chronic Pain Association/FM -
National Fibromyalgia Partnership -
CFS & FM Association  -
That is enough for anyone for one week’s study.  If you have a romantic relationship I hope St Valentine’s Day proves to be enjoyable for you in whatever way you may celebrate it!
Kindest regards to you all
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N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.
Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.
I also include various awareness and local issues as well as general health considerations.    Anyone wishing to reproduce any of the above items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr.
Past issues of FMSSAS eNews can be found at and on a blog at

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