Saturday, 4 February 2012

FMSSAS eNews 12.02.04

Greetings to you all
I hope you are not all frozen to death!  It has been sooooooooo cold this week, even though the sun has shown great bravery in shining.  Sharp short walks are probably what the doctor would order, but you will be forgiven if you huddle over your computer, snuggle up in a warm blanket and do your weekly reading re fibro.
56.  Hatred paralyzes life; love releases it.  Hatred confuses life; love harmonizes it.  Hatred darkens life; love illumines it.
Kelly’s Kontributions
From Listserv
Effect of pregabalin on sleep in patients with fibromyalgia and sleep maintenance disturbance: A randomized, placebo-controlled, 2-way crossover polysomnography study.
The Effects of Fibromyalgia Syndrome on Female Sexuality: A Controlled Study
Functional capacity, muscle strength and falls in women with fibromyalgia.
MALDI-TOF and SELDI-TOF analysis: "tandem" techniques to identify potential biomarker in fibromyalgia.
Vitamin D Deficiency in Women with Fibromyalgia in Saudi Arabia.
 “Governed by the pain”: Narratives of fibro myalgia
Webinar: "Fibromyalgia: Current Understanding & Integrative  Nutritional Approaches" by Alex Vasquez, D.C., N.D., D.O.
From CFIDS & Fibromyalgia Self Help
1) "Willpower in CFS & FM"
Recent research suggests willpower is like a muscle, strengthened by use.
Here are six ways to increase your sense of control.
2) "My Energy Bank Account"
How a simple pacing strategy allowed one person to reduce her symptoms and
gain control of her life.
FM Conference 2012, Chichester 6th-9th April
FAQ answered 4 U
FMSSAS Membership renewal
Those of you who have been on our membership list, who receive the Trustees’ Newsletters and are eligible to vote at AGMs have recently been circulated, by email, or by post if they have no email address.  The membership list is being renewed and members have been invited to respond by emailing  If you were one of them and you haven’t responded please do so if you wish to remain as a member.  If there is anyone who is not a member but would like to be, please also respond.  The renewal notice is here
Independent Living Association Workshops
The Independent Living Association is holding two workshops across West Sussex which will contribute towards developing a new disability strategy under this Government. This is a fantastic opportunity to share your views and tell us about what is important to you. The events take place in Crawley on Wednesday 15 February and Bognor Regis on Wednesday 22 February. For more information see details
and poster
MANAGING FIBROMYALGIA - the top seven most important supplements
Including Malic Acid and Energy
Diary of a Benefit Scrounger
A site to share information on Welfare cuts, illness, disability and general, current, political thought.
American Pain Foundation
Growing membership is vital to creating a powerful movement and improving the lives of people living with pain. We need your help! This month’s Action of the Month is to ask five people you know to join APF.
I’m inviting over 350!
This is the most popular, comprehensive and up-to-date source of drug information online. Providing free, peer-reviewed, accurate and independent data on more than 24,000 prescription drugs, over-the-counter medicines & natural products. Find helpful tools, wallet size personal medication records, mobile applications and more.
Chronic Pain Policy Coalition
A report of the Pain Summit 2011
Preventing Fibromyalgia Pain - By Karen Lee Richards
I don't want the title to mislead you.  There's no foolproof way to prevent all pain when you have fibromyalgia.  But understanding how the FM pain cycle works can enable you to lessen the pain much of the time and even prevent some pain altogether. 
Study Shows How Stress Triggers Immune System
Shedding some light on why stress might be bad for you, a new study finds that parts of your immune system ramp up when you get into personal conflicts with others.
Fibromyalgia and Alcohol Don't Mix
Alcohol intolerance is a feature of both fibromyalgia and chronic fatigue syndrome (ME/CFS) that we rarely see in symptoms lists. Yet most people who have FM or ME/CFS find that they can no longer drink much, if any, alcohol.
Relieving Persistent Pain, Improving Health Outcomes
Fibro in Tonbridge – Newsletter Jan-Feb
You can take a rest now!  There’s plenty to get your teeth into this week.  Remember ‘Knowledge is Power’ but you only get the knowledge by studying.
Have a great week
Keep warm, keep good, and keep smiling!
N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.
Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.
I also include various awareness and local issues as well as general health considerations.    Anyone wishing to reproduce any of the above items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr.
Past issues of FMSSAS eNews can be found at and on a blog at

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