Saturday, 7 January 2012

FMSSAS eNews 12.01.07

Hello everyone!
Well, the New Year has dawned.  WELCOME TO 2012.  I would like to remind you that this and all past issues of FMSSAS eNews are available here and from March 2011 onwards they are also on a blog at  The information that I have accumulated is there for reference in case you need it.  You can also become a ‘FOLLOWER’ of the blog and you can respond by posting a comment if you wish.  General participation will be welcome.  You may like to post information about treatments you have found useful, or ones you have not!  Make comments about any of the items that are in the relevant eNews.  Ask questions of other followers and get to feel you BELONG.  We also have a Message Board at where you can air your views, ask questions, answer others', offer/seek advice, make friends.  Do make use of these facilities.
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52.  We all have problems; the way we solve them is what makes us different.
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Kelly’s Kontributions
Cold Hands & Feet: Fibromyalgia, Chronic Fatigue Syndrome or Raynaud's?
Development and Testing of the Fibromyalgia Diagnostic Screen for Primary Care.
Responses to Exercise Differ For Chronic Fatigue Syndrome Patients with Fibromyalgia
From Defiance to Discipline: How I Found Freedom Through Acceptance and Adaptation
Obstacles to Pacing & How to Overcome Them
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Infrastructure Network for Disability Information (INDI)
INDI South East shares disability related information, skills, resources and knowledge amongst VCS organisations to help improve the opportunities they provide for disabled people.
Use the directory to help you find other organisations working in a similar location or field throughout the South East region.
Government's Crimestoppers campaign 'could fuel disability hate crime'
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Pilates and Yoga for Chronic Pain and Fibromyalgia
Exercise is a crucial component to optimally managing fibromyalgia symptoms. However, exercise as it is commonly prescribed, often results in a flare of pain, fatigue, poor sleep and low mood. Two recent studies report that the average 40 y/o with fibromyalgia has fitness findings expected for a healthy 80 y/o.  The good news is that the spiral of deconditioning can be reversed without inducing a symptom flare. The fibromyalgia research team at OHSU are pain researchers and clinicians who have developed and tested multiple exercise programs for people with chronic pain and fibromyalgia over the last 3 decades. We film real patients completing the exercise routines and offer them to you for home exercise on DVD. Our latest DVD is Pilates and yoga.
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Vitamin D is better than ANY vaccine and increases the immune system by 3-5 times
Get your quota from sustenance, sunshine or supplements!  Watch this video:-
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Alternative Fibromyalgia Syndrome Therapies: Tai Chi
Tai chi is a form of alternative treatment for fibromyalgia syndrome. Tai chi exercises are based on unique tai chi movements that are known to provide a variety of health benefits. As such, tai chi exercises can be beneficial in the treatment of fibromyalgia. But what exactly is tai chi and how can this alternative fibromyalgia therapy help to alleviate common symptoms of fibromyalgia?
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Work Capability Assessment independent review – year two
The Work Capability Assessment (WCA) was introduced in October 2008 to assess entitlement to Employment and Support Allowance (ESA). Section 10 of the Welfare Reform Act 2007 commits the Secretary of State to lay an independent report before Parliament each year for the first five years of operation.
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I hope this is enough to be going on with!  More next week, all being well.  Things are going well for me, I am managing to walk a little without sticks now!
Fondest wishes to you all
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N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.
Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.
I also include various awareness and local issues as well as general health considerations.    Anyone wishing to reproduce any of the above items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr.
Past issues of FMSSAS eNews can be found at and on a blog at

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