Saturday, 31 December 2011

FMSSAS eNews 11.12.31

Hi fibro friends
It seems that I am able to deliver, business as usual.  Hopefully I will be able to keep up the eNews for you, and find things that give you hope and help you manage your fibromyalgia.  Thanks to the many of you who have sent me good wishes both for a speedy recovery and with seasonal greetings.
51.  The greatest mistake you can make in life is to continually fear you will make one.
Fibromyalgia can no longer be called the 'invisible' syndrome (Not new but still relevant)
Published: Monday, November 3, 2008 - 09:21 in Health & Medicine
Using single photon emission computed tomography (SPECT), researchers in France were able to detect functional abnormalities in certain regions in the brains of patients diagnosed with fibromyalgia, reinforcing the idea that symptoms of the disorder are related to a dysfunction in those parts of the brain where pain is processed.
“Funnily Enough” By Sophie Neville
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From the glamorous world of television production, working on some of the BBC's hottest soap operas, dramas, and educational programmes - Sophie is torn between her love of Africa, and returning to England for the sake of her career. But when she falls ill on the set of a show she is directing, she is forced to take to her bed, and over the next ten months, to take stock of her life. It sounds like a novel. But it isn't. Diagnosed in 1991 with Chronic Fatigue Syndrome, Sophie's doctor at the BBC prescribes an extraordinary treatment: write a diary. So, armed with her watercolours, and with the support of her family, friends, dogs and otters in rural Gloucestershire, she sets out on a spiritual journey which is at times funny, poignant and uplifting.
Is Sensory Overload Part of Your Fibro?
You expect to have painful muscles everywhere with fibromyalgia. Even if your discomfort fluctuates from day to day, this symptom is always present. The pain of fibro is amplified as though the volume control knob is turned up as high as it could go. But there is much more to fibromyalgia than just the pain. Chances are, you have other sensory-related symptoms that are roaring off the charts and making your fibro all the more difficult to manage.
Slideshow: 10 Daily Habits to Reduce Chronic Pain
Worthing Support Group Newsletter
Apologies for lateness
Diagnosing Fibromyalgia: Common Misdiagnoses
The symptoms of fibromyalgia are similar to many other diseases.
Access to previous editions also available.
Fibromyalgia and Crohn’s Disease
Though not very common, some people with fibromyalgia symptoms also appear to have Crohn’s disease. They experience extreme gastrointestinal side effects, which may be the result of an immune system that has been compromised by fibromyalgia. The link between fibromyalgia and Crohn’s disease appears to be irritable bowel syndrome (IBS). IBS is a less serious form of IBD, and possibly a precursor to Crohn’s disease in some fibromyalgia patients.
As today is the last day of 2011, I wish you and yours all that is good for 2012.  Let us hope for a breakthrough in research and that something really effective is discovered in pain relief or cure for fibro.
My fondest wishes to you all
N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.
Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.
I also include various awareness and local issues as well as general health considerations.    Anyone wishing to reproduce any of the above items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr.
Past issues of FMSSAS eNews can be found at and on a blog at

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