Friday, 13 January 2012

FMSSAS eNews 12.01.14

Hello again
It’s been a bit colder today than of late.  The flora of the gardens and countryside thought it was spring already and burst into bloom.  Hope they don’t regret it!  I am posting this late on Friday night because tomorrow the trustees meet in Chichester.  I shall be out all day.  Hence my diligence in getting this eNews to you early!
53.  Every day may not be good, but there’s something good in every day.
Worthing Fibro Newsletter for January
Reminder paper
See all past issues
Fibromyalgia and the Power of D
Cheap & Easy Home Remedies for Fibromyalgia & Chronic Fatigue Syndrome
Fibromyalgia (FMS) and chronic fatigue syndrome (ME/CFS) come with dozens of symptoms that can range from annoying to debilitating. Treatment regimens are generally aimed at the worst of them, but so far we don't have any treatments that relieve all of our symptoms.
Where treatments leave off, self-management takes over. You have a lot of simple, low-cost options for managing these leftover symptoms.
The government's disability benefit reforms
No apologies for the number of items under this heading – it is important:-
Mayor Boris Johnson victim of DLA con trick
London Mayor Boris Johnson is just one of thousands of individuals and organisations whose overwhelming opposition to axing disability living allowance has been grossly misrepresented by the government in an effort to force through the highly controversial change.  Read more:
Government 'misleading' over disability benefit consultation
Research to be published on 9 January 2012 will show massive opposition to the government's disability benefit reforms, and expose the coalition's masking of the results of its own consultation on the Disability Living Allowance (DLA).
Responsible Reform, A Report on the proposed changes to Disability Living Allowance
Revealed: New Report shows overwhelming opposition to coalition’s disability benefit reforms kept hidden by the government
Disabled people listened to on welfare plans? It's a government sham
The UK’s Welfare Reform Bill has to be responsible says Margo Milne
Other links to articles about DLA reform
Welfare Reform
The Scottish Government set out its opposition to proposed changes to the welfare system.
Lords inflict triple welfare bill defeat on government
Campaigners win House of Lords votes on Employment and Support Allowance
Including:  Sign Pat’s petition if you haven’t already done so.
Benefits and Work Newsletter

Huge ESA victory – now you have till Tuesday to save DLA
What is FibroTV?
 FIbroTV is a weekly Podcast designed to bring the chronic Illness and chronic pain community together in a POSITIVE way. It is a place to educate family, friends, the public  about fibromyalgia.
Spend and Raise
Help raise money for our charity when you shop online
Latest offers
Give as You Live Newsletter
Another opportunity to raise money for FMSSAS when you shop online.
Easy Fundraising
Find & remind toolbar to boost funds raised by easyfundraising.  Easyfundraising is offering a 50p donation to the individual's charity simply for downloading and installing the toolbar.  Easy money!  If everyone who receives this does it we would raise over £225.  So will you?
10 Things to STOP Doing to Yourself With Fibromyalgia & Chronic Fatigue Syndrome
When you have a chronic illness like fibromyalgia and chronic fatigue syndrome, you've got enough working against you - you don't need to make things worse for yourself!
Bond Holidays 
You can check out our fantastic range of holidays for people with disabilities and special needs. Wherever you choose to stay, you are guaranteed great service, great value and a great time. We have always offered some of the best accessible holidays in the business, but we've expanded to offer a wider selection of disabled holiday options than ever before, but whatever you choose, you can be sure of a very warm welcome, and that our commitment to disabled guests with special needs will always be our top priority.  Bond Hotels in Blackpool and St Anne’s.  Coach travel available.
FMS Conference Easter Weekend 6th-9th April 2012
It’s not too late to book.  See the latest Conference Bulletin. 
Contact Simon or phone 0844 887 2508 or 07806 8088862 for more information.
I must away now.  Have a good week-end, and a good week.  I’ll be back next Saturday.
Fondest wishes
N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.
Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.
I also include various awareness and local issues as well as general health considerations.    Anyone wishing to reproduce any of the above items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr.
Past issues of FMSSAS eNews can be found at and on a blog at

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