Saturday, 18 June 2011

FMSSAS eNews 11.06.18

Hi there!
Wow!  This week’s offering is a bumper bundle.  Lots of interesting stuff for you. 
24.  The hardest part about moving forward is not looking back.
Worthing Area Newsletter
Here is the link to the June Newsletter
Fibromyalgia Research
Most of the research findings in fibromyalgia point to a malfunctioning of the central nervous system (CNS), which includes the brain and spinal cord. Yet, there appear to be a variety of abnormalities occurring in the peripheral soft tissues (muscles and connective tissue) and the peripheral nervous system that communicates with the CNS.
Forget Fibromyalgia
The law of attraction is working constantly whether you aware of it or not
East Sussex LINk Newsletter
In pain? Crossing your arms may help
Crossing your arms across the middle of your body confuses the brain and helps reduce the intensity of pain, according to a new study.
Online Program Reduces Impact of Chronic Pain and Improves Quality of Life
‘There is good news for the 76 million Americans who experience chronic pain including migraine, back pain, fibromyalgia and arthritis.  A new study reveals that an online, self-paced chronic pain management program reduces the physical and psychological burdens of this debilitating condition.’
It’s not just for Americans.  Anyone can sign up.
Alternative Health Practices Show Benefits For Treating Chronic Pain
A variety of complementary and alternative health practices - including meditation and relaxation techniques, manual therapies such as massage and spinal manipulation, meditative exercise forms such as yoga, Tai Chi, and ancient health practices such as acupuncture-show promise for contributing to the management of pain according to research presented on 19th May at the Annual Scientific Meeting of the American Pain Society.
Relieving Back Pain May Help the Brain
Chronic lower back pain doesn't just hurt. It also appears to cause thinning of certain regions of the brain, which may lead to cognitive impairments, a study shows.
Personal Independence Payment (PIP)
‘This factsheet is a basic overview of PIP. It is based on what we know so far and will be updated as we get more information.’
‘You can find out more detailed information about the current benefit system in our Disability Rights Handbook, available at
Fibromyalgia - Guidelines for the Disability Analyst.
Document released under the freedom of information act.

This is the training and development manual for the people carrying out the medical assessments for people claiming ESA. This is the specific chapter dealing with fibromyalgia. It has been produced by the Office of the Chief Medical Adviser.
Effective Treatment of Fibromyalgia Requires Multimodal Treatment Strategies
Comprehensive assessment of people with fibromyalgia involves more than a physical examination. Treatment of fibromyalgia requires a multidimensional approach that addresses symptoms, as well as psychosocial, behavioral, and physical factors.
Organizations Launch Coalition 4 Fibromyalgia, and a Call To Action for the DSM-5
NeuroEndocrineImmune Disease (NEIDs) organizations have formed the second phase of the Coalition network to serve their patient community and change public policy. The Coalition 4 Fibromyalgia mission is to present a unified voice with common goals and objectives that will improve the quality of life for fibromyalgia (FM) patients and their families. This professional collaboration will strengthen its member organizations, promote resource-sharing, encourage networking and provide leadership training.
EEG Biofeedback Treatment Improves Certain Attention and Somatic Symptoms in Fibromyalgia: A Pilot Study.
Fibromyalgia (FMS) is a chronic, painful disorder often associated with measurable deficiencies in attention. Since EEG biofeedback (EEG-BF) has been used successfully to treat attention problems, we reasoned that this modality might be helpful in the treatment of attention problems in FMS.
Interference with work in fibromyalgia - effect of treatment with pregabalin and relation to pain response.
Clinical trials in chronic pain often collect information about interference with work as answers to component questions of commonly used questionnaires but these data are not normally analysed separately.
Using Targets to Improve Health & Gain Control
“For my first few years with CFS, I tried to improve by making sweeping changes, an approach that always failed. Then I learned how to set small, realistic goals and that has made all the difference. By setting short-term targets, I have improved from 15% on the rating scale to 60%, with much greater stability and a lower level of symptoms.”
Living within My Envelope: A How-To Story
In a study of the "envelope theory" reported in The CFIDS Chronicle, Fall 1997, the researchers found that individualized treatment programs can help PWCs [People with CFIDS] achieve their optimal level of activity and manage their illness more effectively. "Living inside the envelope" sounds easy, but it hasn't been for me. Seven years I've had CFIDS and only now am I finally, mostly, living inside my envelope. It's been an arduous process of discovery and letting go.
We’ve almost reached the longest day of the year, at least the day with the longest daylight hours.  Let’s make the most of the long evenings while they last.  Evenings will be drawing in all too soon and the thoughts of winter will loom!  Get your daily dose of vitamin D while you still can!
Here ends this week’s epistle!  Have a great week and I hope you get some ‘feel good’ in your life.


N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.
Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.
I also include various awareness and local issues as well as general health considerations.

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