FMSSAS eNews 12.11.17

Hello again

More stuff on welfare benefits, a never ending saga.  Lots about FM.  Raise money for us when you shop online.  And gluten free article.  All food for thought!

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WORDz FOR THE WEEK

93.  Life is like photography;  we leave the  negatives to develop.

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Disability Roulette

Imagine you work for a big national company. They don’t pay very much and you struggle to make ends meet.

One day, the manager comes into the office and announces that the company needs to save money and with immediate effect, they will no longer be paying 20% of their staff.

Continue reading this analogy

http://diaryofabenefitscrounger.blogspot.co.uk/2012/11/disability-roulette.html

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Repeal the Welfare Reform Act 2012 – Sign this new Petition

http://epetitions.direct.gov.uk/petitions/41600

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Fibromyalgia & Chronic Pain LIFE Magazine

To purchase a Fibromyalgia & Chronic Pain LIFE print bi-monthly magazine subscription, please click here.

To receive Fibromyalgia & Chronic Pain LIFE digital bi-monthly magazine free, please register here. Digital version and print-on-demand available after registration.

http://fmcpaware.org/fibromyalgia-a-chronic-pain-life

Direct link http://www.joomag.com/magazine/fibromyalgia-chronic-pain-life-nov-dec-2012-i/0825237001352101160

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Fibro Out-of-Control?

… two experts offer treatment advice

Is your fibromyalgia becoming more unmanageable and is staying awake during the day a constant struggle? Both of these situations can make you wonder, “What can I do to get out of this rut?” Two experienced clinicians describe common reasons for why fibro symptoms can worsen and offer their treatment advice to help you get back on your feet.

http://www.fmnetnews.com/free-articles/article-samples/out-of-control

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Get Ahead of Winter Blues

Shorter days can alter your body’s metabolism, appetite, sleep schedule, and mood. All these changes can compound your fibro symptoms, but there are effective therapies to help.

http://www.fmnetnews.com/latest-news/get-ahead-of-the-wintertime-blues

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Is Sensory Overload Part of Your Fibromyalgia?

You expect to have painful muscles everywhere with fibromyalgia. Even if your discomfort fluctuates from day to day, this symptom is always present. The pain of fibro is amplified, as though the volume control knob is turned up as high as it could go. But there is much more to fibromyalgia than just the pain. Chances are, you have other sensory-related symptoms that are roaring off the charts and making your fibro all the more difficult to manage.

http://www2.fmnetnews.com/free-articles/article-samples/sensory-overload

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What Fibromyalgia Feels Like

Fibromyalgia means widespread pain in the muscles, but this syndrome causes many other symptoms.¹ Lab tests seldom validate your condition and the results often make you feel like a hypochondriac. Pressing on tender points can diagnose fibromyalgia, but the exam still does not explain all of your symptoms.²

http://www.fmnetnews.com/fibro-basics/symptoms

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Online Christmas shopping

I want to share how you can donate to charity this Christmas - but at no cost to you. All you have to do is shop online, just like you probably already do.
It's simple, thousands of stores have signed up to donate a percentage of every online purchase to charity - at no cost to you. And it's not small stores; it's John Lewis, Amazon, Tesco - places we're shopping online already.
All you have to do is download Give as you Live (it takes seconds and is totally secure) and then shop online just like you already do.
www.giveasyoulive.com
I'm already raising money for Fibromyalgia Support for Surrey and Sussex and I want to invite you to join me. After all, it doesn't cost you anything.

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Gluten: Bad for us All!

Here we present you with the evidence of the universal harm of gluten.

Can the concept of a totally gluten-free world be turned into a practical and sustainable idea?

http://www.greenmedinfo.com/blog/gluten-bad-us-all

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So, there you have it!  Hope you found this issue of FMS eNews enlightening.

Cheers

Stella

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N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.

Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.

I also include various awareness and local issues as well as general health considerations.    Anyone wishing to reproduce any of the above items in printed form should seek permission from the originators.

Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr.

Past issues of FMSSAS eNews can be found at www.fms-sas.co.uk/fmseNews.html and on a blog at http://fmssas-enews.blogspot.com/

FMSSAS eNews 12.11.10

Hi there

More goodies 4 U!  Reports about the outcome of the new benefits assessments are sad news.  Here’s hoping the government will take notice.

More help with fibro, a valued member RIP, fibro photographic competition, website updates, etc.  Read, mark and learn!

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WORDz FOR THE WEEK

92.  “What we think of in the daytime is what we dream about at night”.  Guard your thoughts well my friend!! 

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Urgent - 73 Deaths Per Week – CUTS KILL

We need help to stop the 73 deaths per week and attacks on disabled people by government.
Sign Pat’s petition - http://epetitions.direct.gov.uk/petitions/38182

http://www.causes.com/causes/793247-stop-the-abolition-of-disability-living-allowance/actions/1699961?causes_ref=email&reposter=567050&template=activity_mailer%2Fnew_repost&utm_campaign=new_repost&utm_medium=email&utm_source=causes

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Atos Bullies Killed My Dad, Says Boy 13

A GRIEVING boy of 13 has accused Atos of killing his disabled dad.

Article From The Scottish Daily Record By Janice Burns

Kieran McArdle told the Daily Record in a harrowing letter how his father Brian, 57, collapsed and died the day after his disability benefits were stopped. He had been assessed by Atos and deemed “fit for work”.

http://welfarenewsservice.co.uk/archives/656?utm_source=feedburner&utm_medium=feed&utm_campaign=Feed%3A+WelfareNewsService+%28Welfare+News+Service%29

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ESA Reaches a Tipping Point

Today, (6^th Nov) pretty much as I type, the Government will release the first significant figures for the transfer of claimants from incapacity benefit to the new Employment Support Allowance (or ESA, via the feared and despised Atos WCA)

Finally, we will get to see how many people previously claiming Incapacity Benefit are being awarded the new benefit, how many are being awarded it for one year only, how many are told they are immediately fit for work and how many can look forward to the mythical  “support” that doesn’t actually exist for those told they need it to find work.

But it will show lots of other things too. . . . . .  Read on:-

http://diaryofabenefitscrounger.blogspot.co.uk/2012/11/esa-reaches-tipping-point.html

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Government list of sites useful to Disabled people

https://www.gov.uk/browse/disabilities/disabled-people

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Why does walking barefoot on the earth make you feel better?

Do you notice you feel better when you walk barefoot on the Earth? Recent research has explained why this happens.

Your immune system functions optimally when your body has an adequate supply of electrons, which are easily and naturally obtained by barefoot contact with the Earth.  . . . . .

Earthing may be one of the most important overlooked factors in public health. When grounding is restored, many people report significant improvement in a wide range of ailments, including chronic fatigue.

These changes are rapid and often occur within 30 minutes.

http://articles.mercola.com/sites/articles/archive/2012/11/04/http://articles.mercola.com/sites/articles/archive/2012/11/04/why-does-walking-barefoot-on-the-earth-make-you-feel-better.aspx?e_cid=20121104_SNL_Art_1.aspx?e_cid=20121104_SNL_Art_1

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Chronicles of Fibromyalgia

Is This JUST Fibromyalgia, Or Am I Dying?

From my pain I have found my purpose and share my journey to inspire hope. I seek not to be defined by what I have endured, but by what I have overcome. 4 pancreas attacks, CFS/ME, Fibromyalgia and 2 strokes, all before age 34! -- Leah Tyler

http://chroniclesoffibro.blogspot.co.uk/

Chronicles of Fibromyalgia home page

http://www.fibromyalgiacrusade.com/Home_Page.html

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Fibromyalgia Slideshow: Fibro-Friendly Exercises

Start with stretching. It increases blood flow to the joints
and muscles, and can make it easier to move.

http://www.webmd.com/fibromyalgia/ss/slideshow-fibromyalgia-friendly-exercises?ecd=wnl_fib_110612&ctr=wnl-fib-110612_ld-stry&mb=

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Pain Relief from ME/CFS and Fibromyalgia

Webinar - Tuesday, 20th November, 2012, 7 PM - 8:30 PM GMT

This webinar covers strategies, tools and techniques that allowed Ali Christensen to overcome the problems associated with ME/CFS.
If you are a fellow sufferer of ME/CFS, then you'll know how bad it can be.
In this webinar, Ali and Mark will share with you Ali's story together with practical help to get you back on your feet again.

To book http://runningawaymembers.com/webinar/

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Secrets to Recovery - Your Roadmap to Optimum Health

It’s been five years in development, includes over 100 hours of content from some of the world’s leading practitioners, and is at the lowest ever price… Secrets to Recovery V3.5 has just launched!  There’s lots of free stuff on the site as well

http://www.secretstorecovery.com/

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Could your DNA provide a clue to the reason for fibromyalgia? 

Be part of the largest genetic study ever conducted into fibromyalgia…

Are you fed up with poor treatment of chronic pain? We will be able to devise better therapies only with improved understanding of the biology of pain. We are exploring the genetics of chronic pain by:-

·         collecting 2000 samples of DNA from people with fibromyalgia/chronic widespread pain

Volunteers urgently needed! We will ask you simply to

·         fill in a pain questionnaire about you and your symptoms

·         donate a blood sample at your surgery (we will send the blood taking kit)

http://www.fibromyalgia-associationuk.org/articles/41-medicalandtrials/765-could-your-dna-provide-a-clue-to-the-reason-for-fibromyalgia#.UJpNRvfpMR8.facebook

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Royal National Hospital for Rheumatic Diseases to join with Royal United Hospital

 It is our intention that in 2013 the RNHRD, known locally as the ‘Min’, will join with the RUH. Work has started on how best to bring the two organisations and services together, taking into account the view of patients, patient groups, staff and other NHS organisations. In the meantime we remain fully operational and patients will continue to receive the high quality care they require. Joining with the RUH is good news for all as it provides a strong basis for our specialist services to go forward.

www.fms-sas.co.uk/eNews/2012/RNHRD&RUH.pdf

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Stuart Harcus RIP

It came as a shock to me to find that Stuart (aka Matthew) Harcus has died.  It was announced on Facebook.  He was very diligent in running our message board and despite his disabilities always seemed to find positive things to do.  His funeral will take place at Worthing Crematorium (Findon) on Friday November 16^th at 2.20pm.  He has asked that any attending should wear red.

http://www.facebook.com/events/168276479977633/permalink/168279873310627/

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Photo Competition with FibroModem

It's 6 months until International Fibromyalgia Awareness Day; but we need to continue spreading awareness. Take a photo that represents how you feel about Fibro, or how Fibro makes you feel and upload it in digital form right here. The winner will be decided by a public vote.

http://www.photoscramble.com/contests/feeling-fibro-fotos/

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FMSSAS Website update

I have been updating the website! 

1.      The Home Page has some new kinks to draw your attention to some pages that might have been in hiding! www.fms-sas.co.uk

2.      Treatments and Therapies has had some additions. www.fms-sas.co.uk/fmst&t.html You might find both old and new entries useful.

3.      Members’ Fibro Stories www.fms-sas.co.uk/fmsstories.html gives 26 stories!  The latest one is from Amanda,  www.fms-sas.co.uk/fmsAmanda.html

4.      New Groups www.fms-sas.co.uk/fmsnewgroups.html is useful if you are considering forming one.  Updated with new liaison officer.

5.      FIBCON 2013 www.fms-sas.co.uk/fmsConf13.html (or through the large graphic).

6.      Our revised information leaflets are now available.  General leaflet www.fms-sas.co.uk/PDF/infoleaflet.pdf  For support groups with space to add local contact info www.fms-sas.co.uk/PDF/infoleaflet.groups.pdf

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Stella

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N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.

Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.

I also include various awareness and local issues as well as general health considerations.    Anyone wishing to reproduce any of the above items in printed form should seek permission from the originators.

Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr.

Past issues of FMSSAS eNews can be found at www.fms-sas.co.uk/fmseNews.html and on a blog at http://fmssas-enews.blogspot.com/

FMSSAS eNews 12.11.03

Hello everyone

Welcome to the newcomers this week, those who attended the FMSSAS AGM last Saturday and others who have contacted me recently.  And Hello to all my ‘old’ friends.  It’s good to be back with you again.  I returned from Spain on 25^th October.  The AGM was on 27^th.  My internet connection failed on 28^th and was not reconnected until 1^st November.  I have therefore not had a great deal of time to assemble this week’s items.  However, we have some breakthrough research, many tips for fighting fibro, and some items about the Benefits System.  Please note that each item can be seen in full by clicking on the link below it.

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WORDz FOR THE WEEK

91.  The most important trip you may take in life is meeting people halfway.

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Genetic Breakthrough Offers Promise for ME, Fibromyalgia

Here are some known things that may trigger Myalgic Encephalomyelitis and Fibromyalgia: bacterial infections, viral infections, fungal infections, parasitic infections, chemical exposure, surgery, and stressful events such as an automobile accident.
That is quite a few triggers, and as you can imagine, based on this almost everyone in the world should have one of these diseases. But they don't.
Why is it that some people get Fibromyalgia or ME when the vast majority of people do not? And why, after decades of research, haven’t medical researchers discovered what these diseases are, what causes them, and why they generally last for life?
I believe we are on the eve of learning that ME and Fibromyalgia are caused by damaged DNA, and more specifically, the DNA in our cells that controls the genes - the epigenetic regions of the chromosomes, which is the DNA directly above and below each of our 21,000 genes. Until only recently, science has lacked the tools to understand these 'epigenes', and how they - and not the genes - may be responsible for countless diseases including Fibromyalgia and ME.

http://www.prohealth.com/ME-CFS/library/showArticle.cfm?libid=17650&B1=EM102412C&utm_source=EM102412C&utm_medium=em&utm_campaign=MECFS&slvor=10962.1078499.0.1.0.390600&eid=tjswhite1954%40live.co.uk

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Treatment of Chronic Fatigue Syndrome and Fibromyalgia with D-Ribose– An Open-label, Multicenter Study           

Jacob Teitelbaum, Janelle Jandrain2and Ryan McGrew

Abstract: Objectives: Chronic Fatigue Syndrome and Fibromyalgia (CFS/FMS) are debilitating syndromes affecting ~2-4% of the population. Although they are heterogeneous conditions associated with many triggers, they appear to have the common pathology of being associated with impaired energy metabolism.  As D-ribose has been shown to increase cellular energy synthesis, and was shown to significantly improve clinical outcomes in CFS/FMS in an earlier study, we hypothesized that giving D-ribose would improve function in CFS/FMS patients.

http://benthamscience.com/open/topainj/articles/V005/32TOPAINJ.pdf

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Dr. Teitelbaum on The Ricki Lake Show

Tips for Treating Migraines, Fibromyalgia, and Arthritis

Watch the video of the show and see Dr T’s advice.

http://www.vitality101.com/health-a-z/CFS_fm-dr-t-on-ricki-lake-show

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Chronic Fatigue Syndrome And Fibromyalgia Tips...

Liam McCarthy gives you his tips for surviving CFS/FM.

http://www.fatigue-cfs.com/CFS-Tips.html

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Another 12 Tips for Coping With Fibromyalgia  (slideshow)

1.      De-Stress

Stress may trigger fibromyalgia symptoms. Minimizing stress can improve your quality of life. Some proven stress busters are yoga, exercise, sleep, and meditation. Breathing deeply and exhaling slowly can also help. Or keep in mind activities that you enjoy or that make you feel better. When stress strikes, do one or two of them.

http://www.webmd.com/fibromyalgia/ss/slideshow-fibro-coping-tips?ecd=wnl_fib_103012&ctr=wnl-fib-103012_ld-stry&mb=

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Fibromyalgia Foods to Avoid

The National Fibromyalgia Association (NFA), states that fibromyalgia syndrome (FMS) is a musculoskeletal disorder that could create widespread muscle and soft tissue pain, fatigue and sleepiness. Following a healthy diet can help increase energy and stamina, decrease pain and inflammation, and help create a feeling of overall wellness. Food choices can be confusing at times for a person with FMS.
http://www.livestrong.com/article/40938-fibromyalgia-foods-avoid/#ixzz2B0ZOwXWm

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DOCTOR 'SHOCKED' BY BENEFITS SYSTEM

The system for claiming sickness benefits is deliberately complicated to reduce the number of claims, a GP has suggested.

Dr Anne Dyson said the system is so complex it is likely to fail the people who are most in need of help.

http://www.express.co.uk/posts/view/355469

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Stop the Abolition of Disability Living Allowance for Personal Independence Payments

Responsible department: Department for Work and Pensions

The government intends to abolish Disability Living Allowance and replace it with Personal Independence Payments. We feel the government is doing this because it is clear by awarding the contract to assess Personal Independence Payments to ATOS, it is a means to make savage cuts welfare to the most vulnerable in society. We believe peoples lives will be lost as a result of the scrapping of DLA for Personal Independence Payments assessed by ATOS.

http://epetitions.direct.gov.uk/petitions/38182

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Investigate 'misleading' Atos bid for disability tests contract, urges Labour

Four organisations named in tendering document say they object to suggestion they planned to co-operate with firm Claims that the private IT firm Atos made misleading statements about proposed co-operation with disability groups to help secure a £400m contract to perform disability assessments must be immediately investigated, Labour and several disability charities have demanded.

http://m.guardian.co.uk/business/2012/nov/01/atos-disability-tests-contract-labour?cat=business&type=article

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And finally - Paralympics Sports Fest

Have you been inspired by the London 2012 Paralympic Games? Are you disabled, want to have fun & try something new? Then come along to ParalympicsGB Sports Fest, a free event for disabled people giving you the opportunity to try out loads of different sports, find out how to get involved, & meet some of our incredible Paralympic medal winners!

Surrey Sports Park, Guildford, 3rd-4^th December 2012

http://www.paralympics.org.uk/sportsfest

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I hope you have found items to interest you and help you.  If you have any queries, do contact me.  I hope I won’t have further computer problems but one can never be sure with this wonderful technology!

My very best wishes to you all.

Stella

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N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.

Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.

I also include various awareness and local issues as well as general health considerations.    Anyone wishing to reproduce any of the above items in printed form should seek permission from the originators.

Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr.

Past issues of FMSSAS eNews can be found at www.fms-sas.co.uk/fmseNews.html and on a blog at http://fmssas-enews.blogspot.com/