Saturday, 10 November 2012

FMSSAS eNews 12.11.10

Hi there
More goodies 4 U!  Reports about the outcome of the new benefits assessments are sad news.  Here’s hoping the government will take notice.
More help with fibro, a valued member RIP, fibro photographic competition, website updates, etc.  Read, mark and learn!
92.  “What we think of in the daytime is what we dream about at night”.  Guard your thoughts well my friend!! 
Urgent - 73 Deaths Per Week – CUTS KILL
We need help to stop the 73 deaths per week and attacks on disabled people by government.
Sign Pat’s petition -
Atos Bullies Killed My Dad, Says Boy 13
A GRIEVING boy of 13 has accused Atos of killing his disabled dad.
Kieran McArdle told the Daily Record in a harrowing letter how his father Brian, 57, collapsed and died the day after his disability benefits were stopped. He had been assessed by Atos and deemed “fit for work”.
ESA Reaches a Tipping Point
Today, (6th Nov) pretty much as I type, the Government will release the first significant figures for the transfer of claimants from incapacity benefit to the new Employment Support Allowance (or ESA, via the feared and despised Atos WCA)
Finally, we will get to see how many people previously claiming Incapacity Benefit are being awarded the new benefit, how many are being awarded it for one year only, how many are told they are immediately fit for work and how many can look forward to the mythical  “support” that doesn’t actually exist for those told they need it to find work.
But it will show lots of other things too. . . . . .  Read on:-
Government list of sites useful to Disabled people
Why does walking barefoot on the earth make you feel better?
Do you notice you feel better when you walk barefoot on the Earth? Recent research has explained why this happens.
Your immune system functions optimally when your body has an adequate supply of electrons, which are easily and naturally obtained by barefoot contact with the Earth.  . . . . .
Earthing may be one of the most important overlooked factors in public health. When grounding is restored, many people report significant improvement in a wide range of ailments, including chronic fatigue.
These changes are rapid and often occur within 30 minutes.
Chronicles of Fibromyalgia
From my pain I have found my purpose and share my journey to inspire hope. I seek not to be defined by what I have endured, but by what I have overcome. 4 pancreas attacks, CFS/ME, Fibromyalgia and 2 strokes, all before age 34! -- Leah Tyler
Chronicles of Fibromyalgia home page
Fibromyalgia Slideshow: Fibro-Friendly Exercises
Start with stretching. It increases blood flow to the joints
and muscles, and can make it easier to move.
Pain Relief from ME/CFS and Fibromyalgia
Webinar - Tuesday, 20th November, 2012, 7 PM - 8:30 PM GMT
This webinar covers strategies, tools and techniques that allowed Ali Christensen to overcome the problems associated with ME/CFS.
If you are a fellow sufferer of ME/CFS, then you'll know how bad it can be.
In this webinar, Ali and Mark will share with you Ali's story together with practical help to get you back on your feet again.
Secrets to Recovery - Your Roadmap to Optimum Health
It’s been five years in development, includes over 100 hours of content from some of the world’s leading practitioners, and is at the lowest ever price… Secrets to Recovery V3.5 has just launched!  There’s lots of free stuff on the site as well
Could your DNA provide a clue to the reason for fibromyalgia? 
Be part of the largest genetic study ever conducted into fibromyalgia…
Are you fed up with poor treatment of chronic pain? We will be able to devise better therapies only with improved understanding of the biology of pain. We are exploring the genetics of chronic pain by:-
·         collecting 2000 samples of DNA from people with fibromyalgia/chronic widespread pain
Volunteers urgently needed! We will ask you simply to
·         fill in a pain questionnaire about you and your symptoms
·         donate a blood sample at your surgery (we will send the blood taking kit)
Royal National Hospital for Rheumatic Diseases to join with Royal United Hospital
 It is our intention that in 2013 the RNHRD, known locally as the ‘Min’, will join with the RUH. Work has started on how best to bring the two organisations and services together, taking into account the view of patients, patient groups, staff and other NHS organisations. In the meantime we remain fully operational and patients will continue to receive the high quality care they require. Joining with the RUH is good news for all as it provides a strong basis for our specialist services to go forward.
Stuart Harcus RIP
It came as a shock to me to find that Stuart (aka Matthew) Harcus has died.  It was announced on Facebook.  He was very diligent in running our message board and despite his disabilities always seemed to find positive things to do.  His funeral will take place at Worthing Crematorium (Findon) on Friday November 16th at 2.20pm.  He has asked that any attending should wear red.
Photo Competition with FibroModem
It's 6 months until International Fibromyalgia Awareness Day; but we need to continue spreading awareness. Take a photo that represents how you feel about Fibro, or how Fibro makes you feel and upload it in digital form right here. The winner will be decided by a public vote.
FMSSAS Website update
I have been updating the website! 
1.      The Home Page has some new kinks to draw your attention to some pages that might have been in hiding!
2.      Treatments and Therapies has had some additions. You might find both old and new entries useful.
3.      Members’ Fibro Stories gives 26 stories!  The latest one is from Amanda,
4.      New Groups is useful if you are considering forming one.  Updated with new liaison officer.
5.      FIBCON 2013 (or through the large graphic).
6.      Our revised information leaflets are now available.  General leaflet  For support groups with space to add local contact info
May you always have love to share, health to spare, and friends that care.
Until next time
Bye for now
N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.
Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.
I also include various awareness and local issues as well as general health considerations.    Anyone wishing to reproduce any of the above items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr.
Past issues of FMSSAS eNews can be found at and on a blog at

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