Saturday, 1 December 2012

FMSSAS eNews 12.12.01



Hi Everyone
This will be the last eNews sent on behalf of Fibromyalgia Support for Surrey and Sussex.  But fear not!   I will continue to send you an eNews, but it will be from me personally.  I have resigned from being a trustee with FMSSAS so I am now writing freelance.  My geographical area will not be bound to Surrey and Sussex, so I am not so likely to include localised events.   I will continue to give you links to websites that appear to be of relevance to fibromites and any other information that looks interesting.  I have changed the NB at the end of this message to make it more appropriate.  The fmssas2 email address will no longer be functional.  Please send future emails related to eNews to  fmsstella@gmail.com
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WORDz FOR THE WEEK
95.  No matter what scales we use, we never know the weight of another person’s burden.
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Can PosturePlast improves quality of life for fibromites?
Message from Adam Dallison
“I'm an osteopath of 15 years, and recently launched a patented, innovative class 1 medical device called PosturePlast into the physiotherapy / rehab world, with great success.
I developed PosturePlast out of a clinical need, primarily to help treat, and prevent low back pain, but what has come to light, is that the non drug and non invasive mechanical and proprioceptive benefits that the product provides could be hugely beneficial for patients suffering from more complicated conditions such as Fibromyalgia.
A pilot study being undertaken at UCL and funded by Parkinson's UK, has recently started to establish the clinical benefits to limit stooping and pain, and we are also working with the UK Dystonia charity to see how PosturePlast improves quality of life with this condition, early indications are very promising.
My specific writing to you is to see if i could speak with one of your team about handing out some of our product to known sufferers within the Fibromyalgia community, with no cost , like we are doing with the Dystonia charity.”
If you are interested contact Adam Dallison Mob; 07775 595278
Email; adamdallison@postureplast.co.uk
www.postureplast.co.uk
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Don’t forget to vote for Horsham’s photo!
It is currently ranked 20th.  You can change this by voting every day.  Thank you.
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Fibromyalgia in Tonbridge
NEWSLETTER - December 2012
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Fibromyalgia and Hair Loss
Fibromyalgia and hair loss, clinically known as Alopecia, are frequently linked with hair loss being a common symptom associated with Fibromyalgia. Alopecia is a common skin disease that results in the loss of hair on the scalp (and possibly elsewhere on the body). It typically begins with a small, round, and smooth patch on the scalp and can progress to complete baldness or total loss of body hair. Alopecia affects roughly 2% of the general population and 4.7 million people in the United States. It is a very unpredictable disease, as the hair can grow back or fall out at any given time, and the disease course varies for each individual.
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What's really in vaccines? Proof of MSG, formaldehyde, aluminum and mercury
(NaturalNews) Have you ever wondered what's really in vaccines? According to the U.S. Centers for Disease Control's vaccine additives page, all the following ingredients are routinely used as vaccine additives:  Aluminum - • Antibiotics - • Formaldehyde - • Monosodium Glutamate (MSG) - • Thimerosal – Read what these can do to you
http://www.naturalnews.com/037653_vaccine_additives_thimerosal_formaldehyde.html
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 Hidden Insomnia Health Risks: How to Sleep Better, Starting Tonight!
Insomnia, the most common sleep complaint among Americans, means “no sleep” in Latin. And as the definition implies, people with insomnia may not only have trouble falling asleep or staying asleep, they may also not feel refreshed or restored upon waking.

It’s an extremely common problem, with up to 40 percent of Americans suffering symptoms of insomnia within a given year, and 10-15 percent dealing with chronic insomnia, according to the National Center for Sleep Disorders Research at the National Institutes of Health.
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Individually, we are one drop. Together, we are an ocean– Ryunosuke Satoro
Thank you everyone.
The e-petition closed on 1st November, with 62,581 signatures (some people may yet confirm their emails so that might still increase slightly).
Pat’s Petition has closed but the campaigning continues. We will build on the knowledge we have gained, the contacts we have made and the lessons learned. The words of the petition are as fresh and meaningful as they were 12 months ago and our commitment to them hasn’t changed.
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Posted on Facebook by Michael Moulding (cause leader)


From April 2013 the government besides abolishing Disability Living Allowance is also abolishing the Severe Disability Premium, which tops up benefit for those living with severe disability.
Those who live with severe disability the costs associated with just managing on a day to day basis are much higher. These premiums are being abolished. Please help us campaign against these savage cuts on the most vulnerable in society and sign both our petitions. Many thanks.
http://links.causes.com/s/clGv4p?r=Q6U2 - Stop the abolition of Disability Living Allowance
http://links.causes.com/s/clGv4C?r=Q6U2 - Repeal the Welfare Reform Act 2012
Please invite friends to join our cause. Many thanks.
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"Motability admits it might have to take back 100,000 vehicles”
The link to this item in last week’s eNews does not work. The article can be found here:
http://www.thefedonline.org.uk/disability-in-the-news/motability-admits-it-might-have-to-take-back-100-000-vehicles
If this doesn't work as a hyperlink copy and paste it into your browser.
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Two regulations ‘could hold the key to winning ESA appeals’
Two little-known government regulations could hold the key to helping thousands of sick and disabled people who have been unfairly found “fit for work”, according to a new campaign.
The grassroots, user-led group Black Triangle believes that persuading GPs to write letters to tribunals quoting one of two employment and support allowance (ESA) regulations could make it much easier for claimants to win appeals against the results of their work capability assessments (WCA).
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I will send my new eNews to you, not as an email but as a link to my new blog.  The URL of this will be  http://fmsenews.blogspot.co.uk/  but I will remind you with a specific link each time one is issued.  This may not be every week, but it will be as often as I can make it.  Should you wish not to be contacted then please reply with an email to this message and I will delete you from my mailing list.
With every good wish
Stella
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N.B.   I would like to point out to you all that the information in my eNewsletters passed on to you is mainly from other sources.   Links are given to the original articles.   I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership.  Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.  Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional.  
I also include various awareness items, benefits issues, as well as general health considerations.    Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This is the last of FMSSAS eNews.  Past issues can be found at www.fms-sas.co.uk/fmseNews.html and on a blog at http://fmssas-enews.blogspot.com 
My new eNews blog will be at http://fmsenews.blogspot.co.uk/ This new eNews will be my personal offering to fibromyalgia sufferers and their carers and is not related to any organisation or charity.







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