Saturday, 26 November 2011

FMSSAS eNews 11.11.26

Hi there!
Here I am again!  And still the advice and articles flow in.  I am amazed by the amount of info that is being published.  How can doctors STILL say that FMS does not exist?  I hope you pass on relevant items to your GPs.  The first one after WORDz is a good example.
47.  We have to let go of who we were to become who we are supposed to be.
NHS Evidence in Health and Social Care
Fibromyalgia is also included on the NHS evidence site, which is aimed at medical professionals and includes the EULAR guidelines.
Kelly’s Kontributions
1. Is psychological distress intrinsic to fibromyalgia syndrome? Cross-sectional analysis in two clinical presentations
2. The Mystery Behind CFS & Fibromyalgia
3. Articles in Spanish at CFIDS/FM Self-Help Website
4. Obstacles to Pacing & How to Overcome Them
6. Having Problems Sleeping? You Are at Greater Risk for Fibromyalgia, Study Says
7. Indicators Predict Response To Duloxetine in Patients With Fibromyalgia
Car Travel With Fibromyalgia & Chronic Fatigue Syndrome
Managing Symptoms on the Road.  Traveling in a car when you have fibromyalgia or chronic fatigue syndrome takes planning. That goes for a week-long vacation or a trip to the grocery store. . . . . .
Emotional Distress in Fibromyalgia: A Question of Subsets
For decades, the medical community has debated whether fibromyalgia always involves psychological disorders. Now, a new study suggests that 2 distinct subsets exist; type I does not involve psychological disorders, while type II does.
Is psychological distress intrinsic to fibromyalgia syndrome? Cross-sectional analysis in two clinical presentations.
The ‘new study’.
ME-CFS Knowledge Center
Our mission is to provide those afflicted with Severe Fatigue, Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS), Fibromyalgia (FM) and related illnesses with a variety of resources from around the world with which to deal with these complex, and all too often, misdiagnosed conditions.
Taking Medicines - Tell Us What Gets in Your Way
So what gets in the way of taking your medicines. Take the survey and find out. After you complete the survey, you will have instant access to tips to help you.
Add yourself to the Chronic Fatigue Syndrome & Fibromyalgia Global Map
This map is for sufferers to plot their location to help build up a picture of the global ME/CFS community and see whether there are any hotspots.
Living with Fibromyalgia
Fibromyalgia doesn't come with a one-size-fits-all approach to treatment and management. But with a little trial and error, you can find what works for you.
A series of articles from RealAge.
Latest News
Signs and Symptoms of Fibromyalgia
The pain of fibromyalgia is thought to be caused by a tightening and thickening of the thin film of tissue which holds muscles together.  We have put together a list of signs and symptoms of fibromyalgia.
Independent Living Newsletter, 21st November
IL Community News
Fibro Fog the real cause by Rebecca Richmond
“The brief loss of memory or confusion, often referred to as Fibro Fog, can be incredibly frustrating, and even distressing. I know I was very concerned that my usual alert mind appeared to be gone forever.
Memory is a precious thing and when you find you cannot even carry on a conversation because you find it hard to concentrate it is understandable that you may feel distressed about it. “
There should be one more eNews before I take a break for surgery and recuperation, unless I get called in early!!!  Until next time . . .
Kindest regards to everyone

N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.
Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.  I also include various awareness and local issues as well as general health considerations.  Anyone wishing to reproduce any of the above items in printed form should seek permission from the originators.
Wordz for the Week are from Wordz for the Day by Donnie Kuhn, Sr.
Past issues of FMSSAS eNews can be found at and on a blog at

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