Saturday, 19 November 2011

FMSSAS eNews 11.11.19

Good morning!
I hope you are all managing to manage your fibro symptoms.  If not yet, maybe there will be something to help you in this week’s collection of items.  Please do sign the ePetitions.
46.  . . . just 1 second, 1 word or 1 action has the ability to change someone’s life . . .
Kelly’s Kontribution
Sleep-Stage Dynamics in Patients with Chronic Fatigue Syndrome with or without Fibromyalgia
Fibromyalgia Introduction from NHS Choices
This can be used by people with fibromyalgia as proof that fibromyalgia does exist and is not something they are imagining. The important message from this is that the information is provided by the NHS - and one can ask the non believers - why would the NHS be promoting information about something which I and 2-4% of the population are imagining?  Print this article and show it to your doctor if he/she does not believe in FMS.
Hidden Insomnia Health Risks: How to Sleep Better, Starting Tonight!
A good night's sleep is necessary for physical and mental well-being. Don't get enough of it and you risk the immediately obvious impacts of being irritable and having trouble concentrating and making decisions. Don't get enough of it over time and you risk even more serious consequences
Aspartame has been Renamed and is Now Being Marketed as a Natural Sweetener - AminoSweet
Artificial sweeteners especially aspartame has gotten a bad rap over the years, most likely due to studies showing they cause cancer.  But not to worry Ajinomoto the company that makes Aspartame has changed the name to AminoSweet. It has the same toxic ingredients but a nice new sounding name!  Read more . . .
Have Fun And De-Stress - Five Fun Ways To De-Stress
A nationwide survey reports that 47 percent of Americans are concerned about the level of stress in their lives. The same study also found that people experiencing stress are more likely to report other health problems like hypertension, anxiety, depression and obesity.  Any good news? Yes! There are simple and fun stress-busting techniques that can calm you down.
Public Meeting re DLA 22nd November
On the 22nd November, the House of Commons, Work and Pensions Committee are holding an open inquiry at Neath RFC to discuss the proposed change of Disability Living Allowance to Personal Independence Payment. The Committee wants to hear directly from people who may be affected, as well as taking formal evidence from them. Please see links below for further info
While you are at it tell your MP just what you think. Do not delay - it is important to you.
Log on to  and fill in your postcode and then write to him on this site Click send a message to him and mark it URGENT DLA MEETING NOV 22nd.
Please have your say either at the meeting or by email. We all need to have our say and be heard.
Sign Government ePetitions
“Stop and review the cuts to benefits and services which are falling disproportionately on disabled people, their carers and families.”
There are currently 3 petitions regarding getting fibromyalgia recognised as a ‘real’ illness.  Do sign them.
The Pain Toolkit Website - For people who live with persistent pain
The Pain Toolkit is a website and simple information booklet that could provide you with some handy tips and skills to support you along the way to managing your pain. 12 ‘tools’ to help you cope.
Soundbath Events from Maryse in Bognor Regis
If you want to have time out doing something enjoyable but also balancing, learning about how to use the voice to reduce stress, to energise and to relax, then this might be something to come along to and experience. You do not have to be able to sing, this workshop is about sound, the sound of the voice. Explore your voice together with everyone else in a safe environment and enjoy the opportunity to create sound using various instruments such as drums. If you are interested and would like to book a place or would like more information do not hesitate to contact me. The evening is the best time to ring me at the moment.
Maryse Boullé, Équilibre
Realising Potential, Creating Balance, Supporting Personal Growth
Tel:  01243 864770  Mobile:  07891 090016  Email:
There will be no Soundbath in December with January 13th being the next Soundbath date,  the Regis School of Music, Sudley Road, Bognor Regis at 7.30pm. The doors open at 7.20pm.
Voice and Sound Workshop, Sat. 26th Nov, 10.30-3.30
£20, Refreshments included, bring your own lunch.  Friends Meeting House, 6 Victoria Drive, Bognor Regis PO21 2RJ.  Places limited – Booking available – Contact Maryse as above.
There’s plenty for you to do, to promote the cause and help yourself.  So good luck with it all.  You do need to be proactive if there are to be results.

N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.
Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.  I also include various awareness and local issues as well as general health considerations.  Anyone wishing to reproduce any of the above items in printed form should seek permission from the originators.
Wordz for the Week are from Wordz for the Day by Donnie Kuhn, Sr.
Past issues of FMSSAS eNews can be found at and on a blog at

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