Saturday, 18 August 2012

FMSSAS eNews 12.08.18

 Dear Reader
The Olympics are over with the Paralympics to follow.  All power to those who, despite their disabilities, will show the world what they are made of.  They will triumph over adversity.  But remember, (see article * below) they are not generally ‘chronically sick and disabled’ as are those with FM/ME/CFS.
83.  The most important thing in life is to stop saying ‘I wish’ and start saying ‘I will’.
Fundraising through on-line Shopping
Did you check out our fundraising webpage last week?  If so did you follow through to the other fundraising page?  It’s all about shopping on-line
There are many ways of raising funds for us, helping yourselves, without any cost to you.  Do please spare a little time and effort to benefit your charity, which in case you have forgotten is Fibromyalgia Support for Surrey and Sussex (FMSSAS).
*The Paralympics and the chronically sick and disabled, a press release.
“Chronically sick and disabled” is really not the same as “disabled”.
‘With the looming Paralympics, which will almost inevitably, given the government-sponsored hostile mood of much of the country, reflect badly on the chronically sick and disabled community, I thought it was timely to write this letter.
Not least because, when the Paralympics do arrive Grayling and Duncan Smith will use it as a stick to beat the chronically sick and disabled, ramping up disability hate – and hate crime – to insanely dangerous levels.’
Disability Rights UK work capability assessment (WCA) survey
‘The ‘Work Capability Assessment’ (WCA) is the testing system used to decide what support and out of work benefits disabled people can access. It is also used to move disabled people off incapacity benefits and onto either ‘Employment and Support Allowance’ (ESA, if found only partly fit for work or unable to work at all) or ‘Jobseeker’s Allowance’ (JSA, if found fully fit for work). ‘  If you have had a WCA please complete the survey to relate your experience.
The Crawley Light a Lantern celebration will take place from 5.45pm-7pm on Friday 24th August in Queen's Square, Crawley, to welcome the Paralympic Lantern. Details are here
Depke Wellness - Wellness for the World
Are you looking for optimal wellness? Depke Wellness is the right place to begin! Our clients frequently report that they reach their goals, and do it fast -- much faster than they were led to believe from other wellness centers. At Depke Wellness, we keep our focus simple. The body naturally wants to heal, so by focusing on a few key fundamentals of health, we allow the body to do just that!
Qigong Study Reports Decisive Pain & Sleep Improvements for Fibro
Fibromyalgia is difficult to treat and requires the use of multiple approaches. This study
is a randomized controlled trial of qigong compared with a waitlist control group in
Fibromyalgia Trial Shows Promise...For Chronic Fatigue Syndrome? Mast Cells and Ketiotifen in FM
An intriguing Fibromyalgia treatment appears, in its preliminary stages, to be working. A powdered form of Ketiotifen (which is not available yet in the US) may be turning down the activity of important immune cells called mast cells that recent research suggests could be contributing to the pain and fatigue in fibromyalgia (FM) and perhaps even chronic fatigue syndrome (ME/CFS).
Less Pain, More Energy
Fibromyalgia -- with its muscle pain, relentless fatigue, disturbed sleep, and feelings of depression -- is a common diagnosis. And if you have fibromyalgia, you want to feel better, today and everyday. By making simple exercise modifications, you can boost your energy, decrease pain and stiffness, and start to be more active again. Check with your doctor before starting an exercise program. 
Fibromyalgia Medications
There are many different medications used to treat fibromyalgia symptoms, including pain medicines, sleeping pills, and antidepressants.  Some fibromyalgia medicines help ease pain. Others boost mood and improve sleep. Working with your doctor will help you find the right fibromyalgia medication to add to your treatment regimen. That way, you can manage your symptoms effectively.
Alternative Treatments for Chronic Pain
From acupuncture to marijuana and more.
If you have chronic pain and are looking for alternatives to medication and surgery, you have a lot of options. Alternative pain treatments that doctors once scoffed at are now standard at many pain centers.
Dr. Rawlings' FREE Tele-seminar: How Chemically Overloaded Foods & Toxic Toiletries Can Lead to Fibromyalgia Symptoms
Are you suffering with symptoms of chronic toxicity but don't realize that you're toxic?
Learn about:  Hazardous Chemicals in foods, cosmetics, skin care products, and many every day products and how they contribute to fibromyalgia symptoms and what you can do to protect yourself from this chemical invasion!
Learn 5 Simple Steps you can take immediately to eliminate toxins, enhance detoxification of these, and reduce Fibromyalgia symptoms.
                        Date:                           Thursday, September 13, 2012.
                        Time:                          9PM Eastern Daylight Time / 6PM Pacific Daylight Time
                        Cost:                          FREE
                        How to Register:
New video from The Optimum Health Clinic
Fundamentals of psychology at OHC
I had a struggle to put this together this week as I have been pre-occupied with domestic issues.  However, I hope this will suffice.
All good wishes to you all.
N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.
Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.
I also include various awareness and local issues as well as general health considerations.    Anyone wishing to reproduce any of the above items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr.
Past issues of FMSSAS eNews can be found at and on a blog at
FMSSAS website is

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