Saturday, 16 June 2012

FMSSAS eNews 12.06.16

Hi there
Tomorrow I’m off and away for a week so no promises for an eNews next Saturday.  Do make the most of this one!  Now the drought is over and floods have had their way, I’m hoping for a bit of sunshine whilst I am in Somerset.  After all, the day with the longest daylight hours falls this week!
75.  You may not always end up where you’re heading but you’ll always end up where you are meant to be.
Teaching Doctors to Treat Fibromyalgia & Chronic Fatigue Syndrome
A lot of doctors don't know what to do for their patients with fibromyalgia (FMS) and chronic fatigue syndrome (ME/CFS or CFS/ME).  Sometimes, it's because they don't care. Other times, it's because they've had no training and haven't encountered it enough in their practice.
The ones who don't care aren't worth trying to educate. For the others, though, it often helps if we can point them in the right way.
A framework for fibromyalgia management for primary care providers.
Legal Settlement in Job Discrimination Case Involving Fibromyalgia
NEWSBRIEF: A woman who had a job offer withdrawn after her prospective employer discovered she had fibromyalgia has now received a $95-thousand dollar settlement.
Rough Guide to Accessible Britain
The brand new fourth edition of the Rough Guide to Accessible Britain is now available to view for free via the Zinio online reader New window icon. It’s packed with over 200 inspiring ideas for fantastic worry-free days out with reviews, hints and tips on some of the UK’s best attractions written by and for disabled people.
The book
Seated exercises for computer and drummers: easy desktop yoga! - Video
Lots of other exercises too!  Runs as a sequence.
Give as you Live – further information
You can find out more information about the £5 scheme here: and also on the terms and condition page.  In short, each new sign-up has to spend just £10 through Give as you Live to be eligible. Further, a charity has to reach a total of 25 shoppers by the end of June in order to qualify.
You can find the Digital Giving Review Survey at
Please take part and help us raise funds, not only from the £5 joining scheme, but from every time you shop online at participating stores.
Worthing Fibro News for June
Are your fibromyalgia symptoms out of control?  It may be time to re-evaluate your treatment plan.
What does the weather do to your symptoms?
New research shows that only a few weather variables had an impact. See whether their findings match your experience, in the top spot this week.
Also, the risk of taking antidepressants while you're pregnant, and new research on what could be causing our headaches - plus something that might help!
Fibro Doctors Chose Pfizer Over You
Do you like Lyrica, Cymbalta or Savella? Have any of these meds cured you? Or has cognitive behavioral therapy been the answer for your fibromyalgia symptoms? According to the FibroCollaborative, a program funded by Pfizer and made up of 25 physicians, these would be your only options.1 This is what they promote as the roadmap to success, but actually, it is the roadmap to doom for all fibromyalgia patients.
Food for thought!
Until next time
Hasta la vista
Au revoir
N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.
Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.
I also include various awareness and local issues as well as general health considerations.    Anyone wishing to reproduce any of the above items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr.
Past issues of FMSSAS eNews can be found at and on a blog at
FMSSAS website is

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