Saturday, 9 July 2011

FMSSAS eNews 11.07.09

I think I can safely say that I am back to normal – at least as normal as life was prior to my hip dislocation at the beginning of April.  It has been a long slow haul but with patience and love and help from family and friends, I think I have got there!  Thank you all for your (mostly from a distance) support, your messages of goodwill and for that unspoken and unwritten but which I sensed existed.  Now on to this week’s business!
27.  Dreaming of the person you want to be is a waste of the person you already are.
eNews Archives
My eNewsletters began in February 2008, not intending to be a regular feature.  But it soon became apparent that there was enough information available to pass on some of it on a weekly basis.  I have now gathered together all (I hope) of the messages I have sent out and archived them on the web for posterity!  Should you be curious or wish to find past issues you can do so here Since March this year they have also been hosted at where you can comment if you wish.
Worthing Newsletters
List of all Newsletters here
July Newsletter
Physician education, research and “cultural transformation” needed to combat social stigmas associated with pain
 Chronic pain affects an estimated one in four, or 116 million U.S. adults including approximately 10 million with fibromyalgia.  Medical treatment and lost productivity due to pain also costs the nation up to $635 billion each year.
Listserv Co-cure articles
1)      NSAID Dangers in Fibromyalgia & Chronic Fatigue Syndrome
1)      MCP-1 and IL-8 as Pain Biomarkers in Fibromyalgia: A Pilot Study.
CFIDS and Fibromyalgia
1) "How I Lessen Stress" Controlling stress was a central part of one person's improvement from 30% to 60%.
2) "Expanding My Envelope: How I Balanced Work and CFIDS"
How one person increased her activity level by changing careers.
Welcome to the replay of: Yoga Nidra with Dr. Deirdre.
The powerful positive Benefits of Yoga Nidra Meditation Practice are many:  Read on and listen to the meditation online.
Could a fibromite be Miss England?
Simran Gill has suffered from fibromyalgia all her life and had to leave her job as an investment banker due to the condition.  At the last moment she entered the Miss England competition and won her heat and from many thousands of girls is now into the final on the 18th of July at the Birmingham Hilton.
She is a passionate advocate for fibromyalgia.  She’s number 05Black Country  on the second row  So if you would care to vote for her it could help raise fibromyalgia awareness.
Buy-at to help FMSSAS funds
Find online bargains, gifts, cheaper gas and electricity services and even book a holiday through our Webshop and raise money for us as you shop online.
Give as you Live
A n online shopping App that directs a percentage of every purchase you make to Attend. You can use Google, Yahoo, Bing and Everyclick. You can shop directly on 100's of your favourite websites including John Lewis, and Toys R Us plus many more and raise funds every day for FMSSAS without spending a penny more.  Do please support us in this way.
East Sussex LINk Newsletter, July 2011-07-06
Consumers for Health Choice
To update you on the position of the EU Food Supplements Directive (vitamins & minerals) and to share with you the outcome of CHC's visit to the EU Parliament and the reactions of the MEPs.
Build Littlehampton Community Hospital Campaign
If you live in Littlehampton, or even if you don’t, you might like to support this campaign.
Genetics - Fibromyalgia Suspect #1
Dr. Pellegrino is a leading fibromyalgia specialist and author who has had FM himself since childhood. His observations of familial fibromyalgia patterns and permutations such as "the aging threshold" reflect more than 20 years' experience treating patients at the Ohio Pain & Rehab Specialists Center. Basic knowledge to help genomic researchers sort things out as we move closer to understanding and control.
What I'm doing to get my active life back
“Over the past 5 to 6 years I've definitely made some Major changes in my life and am now doing things I haven't been able to do for over 20 years. I must express that the MaxGXL has been an important instrument in my changes but not the only contributor. Along with the Max I have made a massive change in sleeping habits, regular non insane exercising schedule, better eating habits and a relentless decrease of reducing my stress load all equal a much better lifestyle for me.”
Managing Fibromyalgia in the Heat and Humidity
For many people with fibromyalgia, heat only worsens their symptoms. Fortunately, some simple strategies can keep you cool.
Another mixed bag indeed!  Read, listen, enjoy, learn, practice.  Knowledge is useless if not applied.
Best of wishes to everyone.

N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.
Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.  I also include various awareness and local issues as well as general health considerations.  Anyone wishing to reproduce any of the above items in printed form should seek permission from the originators.

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