Saturday, 19 March 2011

FMSSAS eNews 11.03.19

Hello Everyone
Welcome to our Blogspot, a new home for FMSSAS eNewsletters.  I already posted last week’s as a trial.  We’ll have to see how things go, but I hope you like it. 
Jo Fisher and I attended Sally Ann Blair’s funeral on Thursday and there was another fibromite there – from Wales.  Sal’s varied nursing career had been cut short by Fibromyalgia and she had spent her final years in retirement in Selsey. 
12. Every passing minute is another chance to turn it all around.
NFA President’s Newsletter, March 2011
Dramatic changes in the National Fibromyalgia Association’s organisation.
Fears and Fibromyalgia - The connection
Rebecca Richmond says – “If you want to use the techniques I used to improve my self-esteem and expand my comfort zone they are available in my "Forget Fibromyalgia Accelerated Recovery Programme."
Mounting Pathophysiologic Evidence to Link Fibromyalgia with Other Common Chronic Pain Disorders
‘A shared paradigm would be useful in promoting cross-fertilization between researchers. Scientists and clinicians could most effectively forward the understanding and treatment of fibromyalgia and other common chronic pain disorders through an appreciation of their shared pathophysiology.’
A long somewhat technical article but worthy of mention.
The March for the Alternative Cuts
The March for the Alternative is taking place in central London on Saturday 26 March. The march will form up from 11am on the Victoria Embankment between Waterloo and Blackfriars bridges and proceed through central London until reaching Hyde Park, where the rally will start from around 1.30pm.
Disability benefit cuts 'could breach human rights law'
New assessment tests are planned to help the government decide where to make cuts in disability benefits.  Ministers are also consulting on plans to replace the Disability Living Allowance with a new Personal Independence Payment.
Keep the UK Disability Living Allowance!
Now you can put your views to Parliament!   MPs want your views for when they discuss DLA changes.  You can email your submission to  now.
Your submission should be attached to your email in a Word document and include:
name, address, telephone number and email address, a short introduction about yourself
the date of submission , a summary of your main points, numbered paragraphs
Your submission should be no longer than 3000 words.
This allowance is essential if the disabled are to enjoy any quality of life.
Fundraising for FMSSAS
As you probably know, we don’t make any charges for membership of FMSSAS, nor for eNews.  However, even though the charity is run entirely by unpaid volunteers it does have some expenses and we are currently living off our reserves.  You could help us with very little effort.  There are lots of ways available on-line.  You can see here how money has been raised in the past, [If you would like to organise a fundraising event we would be pleased to hear about it.] and what could also be the way forward for the future www.fms-sas,co,uk/fmsfundraising.html and through online shopping
We now have a new one, see below:-
Sell Items on eBay to benefit our charity
You can do this through MissionFish
The Patient Experience from The Patients Voice
Welcome to our latest guest post on Fibromyalgia from Julie Wendell.  She tells her story of her developing symptoms and diagnosis with Fibromyalgia.  Please feel free to use the comments box to comment on Julie’s story or tell your own FMS/CFS story.
Crippen Cartoons  - Cartoons at the cutting edge of disability
Disabilities looked at with humour and a knock at officialdom!
So I will sign off for another week and wish you all well.  I wish I was!  I’ve gone down with a horrendous cold.  At least I hope it’s nothing worse.
Bye for now

N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.
Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.
I also include various awareness and local issues as well as general health considerations.

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