Hi fibro friends
If, like me, you
registered your interest with The Chrysalis Effect, you may have been offered
complimentary tickets to the Launch Lunch next Monday. If you did, I hope to see you there. It should be a good ‘do’, gastronomically,
educationally and entertainment-wise. So
I am looking forward to it.
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WORDz FOR THE WEEK
69.
Reputation is what men and women think of us; character is what God and angels know of us.
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Kelly’s Kontributions
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International Fibromyalgia Awareness Day
Poster
Please will you display this
poster to raise awareness of FM before May 12th?
You can also use these as
flyers (2 x A5 on an A4 sheet). Use as
hand-outs, on notice boards, in car windows, distribute at support group
meetings.
Get us noticed! Will you wear PURPLE on May 12th? Thank you.
See other available
posters here www.fms-sas.co.uk/fmsposters.html
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Some videos worth watching
This is the Face of
Fibromyalgia
Fibromyalgia
Fibromyalgia, The Life of
a sufferer
and there are more to just
click on and watch! Take your pick.
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Spreading Awareness Throughout the Year
The Fibromyalgia Network
invites you to join in on the awareness activities—on May 12 or any day you
feel up to it. While we’ve come a long way, we know more is needed. As one
Member puts it, “People look at fibromyalgia as a catch-all diagnosis, and for
the most part you look quite healthy and they can’t seem to get past that.”
This sentiment is often expressed by Members, which is why we offer specially designed
awareness items.
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The European Network of Fibromyalgia
Associations (ENFA)
For more European
Awareness of Fibromyalgia
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NEWS FLASH -
BRIGHTON GROUP RESTARTS.
Nichola Del Nevo Bond who runs the Worthing Fibro group has joined
forces with Caroline to inject a new lease of life into the Brighton group. They will be meeting every second Wednesday of the
month. First meeting Wednesday 9th May 2pm
to 4pm at St Luke's Prestonville Church, 64 Old Shoreham Road, Brighton, BN1
5DD . For more info contact
Organiser: Nichola 07796653477 Email: beauty_within_15@hotmail.co.uk or
Caroline on Helpline 0844 8872 376 Email: eddytheedd@btopenworld.com
Organiser: Nichola 07796653477 Email: beauty_within_15@hotmail.co.uk or
Caroline on Helpline 0844 8872 376 Email: eddytheedd@btopenworld.com
Facebook:
Fibromyalgia Brighton & Hove Support Group
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Buying books about FM?
Get them from our Amazon
Shops.
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Metaphysical Health - What are Medically
Unexplained or Functional Somatic Symptoms?
Any persistent
symptoms that cannot be explained by a medical doctor are referred to as
functional symptoms or functional somatic symptoms. This doesn’t mean
these symptoms don’t exist, that they’re not real, or that they are all in the
mind. It simply means that the medical profession does not have a mechanism for
identifying why these symptoms are present.
To achieve a cessation of
fibromyalgia symptoms the energetic blockages need to be addressed. Our
approach offers a fresh perspective on fibromyalgia: advocate going
beyond the medical and beyond the physical to provide all the knowledge, tools,
exercises and techniques needed for a successful recovery and return to symptom
free health.
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Does Fibromyalgia Differ Between Sexes?
The so-called “Battle of
the Sexes” stretched into fibromyalgia research earlier this month, and it’s no
surprise. Men, often under-represented in fibro research, are often thought to
not be as affected as the typical “over-emotional, over-exaggerated”
women. But as expected, the research shows this old sexist view is
incorrect.
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Pain Alliance Europe website launched
“Chronic Pain effects an
estimated 100 million people across Europe according to a Survey of chronic
pain in Europe: prevalence, impact on daily life, and treatment by Breivik H,
Collett B, Ventafridda V, Cohen R, Gallacher D and published in the European
Journal of Pain 2006;10(4):287-333 (11) Chronic pain has a devastating impact
on those who suffer with chronic pain. Not only experience they a medical chaos
but the social and economical impact on the sufferers as on the society is
enormous.”
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Some articles from Web MD
1.
Does Acupuncture Fight Fibromyalgia? –
View Slideshow
Acupuncture has been used
for centuries as a pain remedy. Learn
how it works.
2.
Common Misdiagnoses of Fibromyalgia
Fibromyalgia is a
condition marked by widespread chronic pain and fatigue
with no known cause. It's not fatal. Though the pain may not have been caused
by an injury, it is real.
When fibromyalgia is
diagnosed and treated properly, most people have a significant reduction in
symptoms and a much better quality of life.
But diagnosing
fibromyalgia is often difficult. Its symptoms can mimic those of other
conditions.
Here's a look at the
common ways that fibromyalgia can be misdiagnosed.
3.
Causes of Fatigue and Sleepiness and How
to Fight Them – Slideshow
It may seem obvious
but you could be getting too little sleep. That can negatively affect your
concentration and health. Adults should get seven to eight hours every
night.
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4. Low Dose Naltrexone (LDN) – Discussion on
Health & Social Care Reform Forum
LDN (Low Dose Naltrexone) has been used since the 1980s, to treat a wide range of autoimmune conditions including MS, Crohn’s disease, Cancer, Ulcerative Colitis, Fibromyalgia and Parkinson’s disease. Unfortunately, a large amount of LDN is prescribed privately rather than in the mainstream NHS. GPs and other clinical practitioners are often reluctant to prescribe LDN because of the relatively small number of trials made using the drug. This is because LDN is extremely cheap, so the cost of large-scale trials cannot be justified.
LDN (Low Dose Naltrexone) has been used since the 1980s, to treat a wide range of autoimmune conditions including MS, Crohn’s disease, Cancer, Ulcerative Colitis, Fibromyalgia and Parkinson’s disease. Unfortunately, a large amount of LDN is prescribed privately rather than in the mainstream NHS. GPs and other clinical practitioners are often reluctant to prescribe LDN because of the relatively small number of trials made using the drug. This is because LDN is extremely cheap, so the cost of large-scale trials cannot be justified.
5.
Fibromyalgia: Managing Fibro Fog
Fibromyalgia and the exhaustion that can come with it often lead
to confusion.
6.
Chronic
Fatigue Syndrome: Using Graded Exercise to Get More Energy
You may be thinking, "How can I exercise when
I'm so tired I can barely get through the day?" You can do it, as
long as you start out very slowly and are careful not to overexert yourself.
Most important, it will make you feel better.
7.
Pain management overview
Pain management is
important for ongoing pain control, especially if you suffer with long-term or
chronic pain. After getting a pain assessment, your doctor can prescribe pain
relieving medicine or other pain treatments to help you get pain relief.
Sometimes psychotherapy is also useful to learn how to cope with chronic pain.
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New! Free Digital Subscription for
WebMD, the Magazine for iPads
WebMD the Magazine for
iPad is a new interactive and FREE digital subscription. Now it’s easier than
ever to make better health and healthy lifestyle decisions for you and your
family anytime, anywhere. WebMD the Magazine is published by WebMD.com, the
most visited, trusted, and influential brand in health information. WebMD the
Magazine brings health news to life in a whole new way, from expert analysis of
medical breakthroughs to celebrity interviews, nutritious recipes, exercise and
fitness smarts, parenting and kids’ health tips, expert skin care solutions and
more -- all at your fingertips.
You can also read it on
your computer.
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Guess2Give
Here is a new fun way of
raising money for FMSSAS. Join in the
fun.
Guess2Give is an easy and fun way to raise money for
Fibromyalgia Support for Surrey and Sussex but here’s the twist, everyone who
makes a guess, could WIN a cash prize.
Create your sweepstake.
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Personal Independence Payment:
assessment thresholds and consultation response by the 25% ME Group and
Stonebird.
1. The government wants to find new and better ways to work out
who gets Personal Independence Payment. This will be done through an assessment.
We are concerned that the true
intention is primarily to cut costs rather than meet need. We are aware that
the stress surrounding the whole reassessment process will put peoples’ health
and lives at risk, especially those with Severe ME, who are extremely
vulnerable and likely to deteriorate, under these circumstances.
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May is National Mediterranean Diet
Month
Scientific studies
consistently report that the healthy Mediterranean
Diet and its lifestyle practices reduce the risk of chronic diseases such
as heart disease, cancer, and diabetes. What makes the Mediterranean Diet so
good? It focuses on fruits, vegetables, olive oil, legumes, nuts, seeds and
whole grains. Add to that some fish and seafood, and a little poultry, eggs and
cheese and you have a healthy diet filled with vitamins, minerals, fiber, and
healthful monounsaturated and omega-3 fats.
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So, here ends another
marathon of informational gems. Hope you
have found some useful ones. Enjoy – and
learn.
Every good wish
Stella
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N.B. I would like to point out to you all that the
information in my eNewsletters does not necessarily infer endorsement by the
charity Fibromyalgia Support for Surrey & Sussex. Any advice or
recommendation of a medical or legal nature must always be discussed with a
qualified professional. The charity cannot be held responsible for omissions
and/or errors.
Sites I refer you to are for information only.
They might conflict in their opinions, they might not even be medically sound,
but I merely offer them for you to peruse and make your own judgements, accept
or reject as you will. Only by reading widely can we get an overall picture
of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope
with them and still have a life.
I also include various awareness and local issues as
well as general health considerations.
Anyone wishing to reproduce any of the above items in printed form
should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by
Donnie Kuhn, Sr.
Past issues of FMSSAS eNews can be found at www.fms-sas.co.uk/fmseNews.html
and on a blog at http://fmssas-enews.blogspot.com/
FMSSAS website is www.fms-sas.co.uk
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