FMSSAS eNews 12.05.19

Hi fibro friends

I had good reports of the posters for May 12^th being distributed.  Who knows the outcome?  We hope they were seen by both fibromites and non-fmites.  Thanks to those who participated.  Awareness isn’t only for May 12^th, or the awareness week in September.  We should be striving to make people aware all the time.  Get the message out there!

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WORDz FOR THE WEEK

71.  Live like a candle which burns itself, but gives light to others.

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Kelly’s Kontributions

Patients With Fibromyalgia Display Less Functional Connectivity In The Brain's Pain Inhibitory Network.
https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1204e&L=co-cure&F=&S=&P=59
Natividad Medical Foundation Receives New Grants for Fibromyalgia
https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1205a&L=co-cure&F=&S=&P=31248
Association between Thyroid Autoimmunity and Fibromyalgia
https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1205a&L=co-cure&F=&S=&P=27766
Monoamine oxidase inhibitors (MAOIs) for fibromyalgia syndrome.
https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1204c&L=co-cure&F=&S=&P=15982
CFIDS/FM Self-Help Videos
http://www.cfidsselfhelp.org/videos
Sensory Overload: Sources and Strategies
http://www.cfidsselfhelp.org/library/sensory-overload-sources-and-strategies
Living with Fibromyalgia: What Helps Me
http://www.cfidsselfhelp.org/library/living-with-fibromyalgia-what-helps-me
How Your Doctor Can Help If You Have CFS/ME
http://www.cfidsselfhelp.org/library/finding-and-working-with-doctors
Should rheumatologists retain ownership of fibromyalgia? A survey of Ontario rheumatologists.
https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1205a&L=co-cure&F=&S=&P=29428
Predictors of clinical outcome in fibromyalgia after a brief interdisciplinary fibromyalgia treatment program: single center experience.
https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1205a&L=co-cure&F=&S=&P=30314

Is Sleep Associated With Fibromyalgia?
http://www.myfibro.com/news/research/is-sleep-associated-with-fibromyalgia?utm_source=twitterfeed&utm_medium=twitter&utm_campaign=Feed%3A+myfibro%2Fmain+%28My+Fibro%29

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Fibromyalgia Awareness Contest

Since 1992, support groups and individuals have celebrated Fibromyalgia Awareness Day on May 12th or throughout the month of May. The concept was started by patient advocate Tom Hennessy, Jr., President of RESCIND, Inc., as a yearly reminder to the public and to health officials that people like you really do exist. Since then we have come a long way, but we still have far to go with more work, research, and understanding.

http://www.fmnetnews.com/latest-news/fibromyalgia-awareness-contest

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Sainsbury's stores seek local charity nominations

Supermarket Sainsbury's is inviting customers and colleagues to nominate their favourite local charity at their local store. The selected charities will receive a year's worth of fundraising and awareness raising support from that store.  Why not nominate Fibromyalgia Support for Surrey and Sussex or your local support group?

http://www.fundraising.co.uk/news/2012/05/12/sainsbury039s-stores-seek-local-charity-nominations

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Spend and Raise

See the recent newsletter with offers, competition and updates.  When I looked £21.80 had been raised for FMSSAS.  Thank you to whoever made this possible.  Please look and see if your shopping through this site can raise even more money for us.  Thanks in anticipation.

http://spendandraise-news.com/N8T-T1I6-953A4AC1BE/cr.aspx

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Debbie Stevens Girls’ Nights In

Includes a two course meal and a treatment.

Next events – click on the links for more information

The Giraffe: Horsham: Wednesday 30th May * New Venue
La Fourchette Patisserie: Hove :Thursday 31st May Private Mumpreners only !!
The Black Horse: Wednesday 6th June
The Coney: West Wickham: Wednesday 13th June Only a few spaces left
Tosca: Shoreham: Wednesday 13th June *New Venue Omg 3 Course menu !
The Ship Hotel; Chichester: Friday 13th July First Girls Night on a FRIDAY Night!!
The Wooden Belly: Brighton: Private Parties only

Or go to Debbie’s website www.debbiestevenswellbeing.co.uk for more information

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Environmental Illness Resource

The Environmental Illness Resource is an information resource and interactive community site for people suffering from a range of chronic multi-system illnesses which are poorly understood and for which there is currently very limited healthcare available. This includes Fibromyalgia.

http://www.ei-resource.org/illness-information/environmental-illnesses/fibromyalgia-%28fms%29/

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The MicroDoctor® - Cutting edge technology to give you EFFECTIVE pain relief

If chronic pain is ruining your enjoyment of life, then the MicroDoctor® could be the answer. At the touch of a button you can tackle pain anywhere in your body within minutes. Try it now by following this link.
No unpleasant twinges or needles. No sticky pads. No tingling sensations. Only fast DRUG-FREE relief from swollen and stiff joints, strained tendons and ligaments, back and neck pain, in fact pain any - where in your body. Once again you could enjoy gardening, walking, driving and all those activities that make you truly happy.

http://www.themicrodoctor.co.uk/index.php?pac=TPL21A

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500,000 to lose disability benefit

Half a million people are set to lose disability benefits as the Government pushes ahead with plans to rid the system of abuse and fraud, Iain Duncan Smith says.

http://www.telegraph.co.uk/news/politics/9263453/500000-to-lose-disability-benefit.html#pd_a_6225639

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Mind Aerobics

Revolutionary audio technology scientifically proven to:

Supercharge mental abilities...

Shrug off stress...

 Improve focus and creativity...

Ramp up memory scores...

 Induce deep relaxation...

 Help you sleep like a baby...

 Make harmful levels of cortisol plummet as much as 80%...

http://www.fsponline-recommends.co.uk/page.aspx?u=aerhn&tc=E975N580&PromotionID=2147065053&u=343357&a=5&g=0&r=MC&s=4891&o=4243&l=32925&

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PainSolv

This biomedical breakthrough  -  developed entirely through evidence-based science and using state-of-the-art technology  -  involves NO drugs, NO surgery and NO expensive, complicated equipment…

 In fact, this one simple device could help your body mend itself so effectively, your joint or muscle pain could reduce dramatically in a fortnight!

http://www.fsponline-recommends.co.uk/page.aspx?u=PAINSOLV0409&tc=E975N524&PromotionID=2147066099&u=343357&a=5&g=0&r=MC&s=5315&o=4741&l=32712&

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A Teenager's Perspective on Chronic Fatigue Syndrome

Those of us with fibromyalgia and chronic fatigue syndrome can learn a lot from each other, and that's true regardless of age.

A recent Readers Respond from a teenager is a great example of that. She's having a rough time, but she's also finding ways to deal with it.

http://chronicfatigue.about.com/b/2012/05/07/a-teenagers-perspective-on-chronic-fatigue-syndrome.htm?nl=1

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Laughing About Fibromyalgia & Chronic Fatigue Syndrome

When you have fibromyalgia (FMS) or chronic fatigue syndrome (CFS or ME/CFS), it can be hard to keep a sense of humor. Now and then, we need to make sure we're still able to laugh, and that we don't take ourselves too seriously -- one of my favorite movie quotes is from Steel Magnolias: "Laughter through tears is my favorite emotion." http://chronicfatigue.about.com/b/2012/04/28/laughing-about-fibromyalgia-chronic-fatigue-syndrome.htm?nl=1

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Preparing for Flares - Don't Be Caught Without the Things You Need!

Flare-ups are an unavoidable part of life for a lot of people with fibromyalgia (FMS) and chronic fatigue syndrome (ME/CFS). Both illnesses can include flares (I use that term interchangeably with flare-ups), when symptoms get significantly worse; and remissions, when symptoms recede to lower levels.

http://chronicfatigue.about.com/od/copingwithfmscfs/a/Preparing-For-Flares.htm?nl=1

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Fatigue Not a Factor in Fibromyalgia Pain, Study Says

Lack of sleep did not predict intensity, duration of discomfort with the disorder

http://health.usnews.com/health-news/news/articles/2012/04/26/fatigue-not-a-factor-in-fibromyalgia-pain-study-says

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Role of Impaired Sleep in Fibromyalgia Pain Explored

Patients coping with the complex pain disorder fibromyalgia often have difficulty sleeping, and a new study published in The Journal of Pain reports that despite the negative quality of life implications, poor sleep is not a significant predictor of fibromyalgia pain intensity and duration.

http://www.sciencedaily.com/releases/2012/04/120423103724.htm

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The Assault on Chronic Pain in Fibromyalgia and ME/CFS - a Combined Approach

Dr. Sarah Myhill is a UK-based physician and clinical nutritionist with a special interest in the treatment of fatigue, chronic fatigue syndrome (ME/CFS), and fibromyalgia (DrMyhill.co.uk).

Normally, pain is accompanied by healing and repair, and this involves inflammation. But when things get complicated, as with autoimmune activity, fibromyalgia and ME/CFS, it is almost impossible to tease apart the threads of chronic pain, chronic fatigue and inflammation. And it is a combined approach that gets results.

http://www.prohealth.com/library/showarticle.cfm?libid=16939

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Leah Jarrett

has put together a very quick survey to find out more about activity levels of FM sufferers, please take a minute to fill it in. Thanks!

http://www.surveymonkey.com/s/CG6VYQC

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I did have more stuff for you but this is probably enough for now!  I hope you are learning ways to cope and even recover.

Bye for now

Stella

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N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.

Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.

I also include various awareness and local issues as well as general health considerations.    Anyone wishing to reproduce any of the above items in printed form should seek permission from the originators.

Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr.

Past issues of FMSSAS eNews can be found at www.fms-sas.co.uk/fmseNews.html and on a blog at http://fmssas-enews.blogspot.com/

FMSSAS website is www.fms-sas.co.uk