Hello everyone
Another week; another batch of fibro info. There is just so much available nowadays that
no one should be able to claim ignorance of the condition. So read, mark learn and inwardly digest!
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WORDz FOR THE WEEK
88. Too often we
underestimate the power of a touch, a smile, a kind word, a listening ear, an
honest compliment, or the smallest act of caring, all of which have the
potential and ability of turning life around.
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Blue Badge Parking Scheme Changes
The Department for
Transport website explains the new
scheme
Its FAQs section says
“If you provide your
mobile phone number or e-mail address, reminders can be sent to you at renewal
time thought (through?) these routes. Otherwise, you will be sent a letter.”
WSCC do not send a letter
at renewal time. It is up to the
individual to apply for a new badge. But
the WSCC website does not tell you this. Their information about blue badges is
here http://www.westsussex.gov.uk/leisure/getting_around_west_sussex/parking/disabled_parking/disabled_badge_car_scheme_blu.aspx
The Government site
DirectGov explains the scheme here http://www.direct.gov.uk/en/disabledpeople/motoringandtransport/dg_4001061
Surrey CC info is here http://www.surreycc.gov.uk/roads-and-transport/parking/blue-badge-scheme
As far as I can see none
of the county websites tell you whether or not renewal notices are being sent
out. If your blue badge expires soon,
apply to your local authority to avoid being fined for having an outdated
badge.
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Supplements Quiz for Fibromyalgia &
Chronic Fatigue Syndrome
How well do you know your
supplements? More and more, they're being viewed as important treatment options
for those of us with fibromyalgia
and chronic
fatigue syndrome.
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Treating One Area Can Reduce Overall
Fibromyalgia Pain
Can treating your most
troublesome shoulder muscle lead to a significant drop in your overall
fibromyalgia pain? Yes, according to a study published online this month in the
European Journal of Pain, and the same results were found for treatment
of just one painful joint.
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Fibromyalgia Causes
Investigators are
constantly looking at various explanations for the occurrence of fibromyalgia. Some,
for example, are exploring hormonal disturbances and chemical imbalances that
affect nerve signaling. Other experts believe fibromyalgia with its deep muscle
pain is linked to stress,
illness, or trauma. Still others think there is a hereditary cause or say there
is no explanation at all. But while there is no clear consensus about what
causes fibromyalgia, most researchers believe fibromyalgia results not from a
single event but from a combination of many physical and emotional stressors.
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Fibromyalgia – Highlights - Causes
Using brain scans on
patients with fibromyalgia, researchers have discovered an abnormal increase in
blood flow (called "brain perfusion") in an area of the brain that
discriminates the intensity of pain, and a decrease in blood flow in areas
thought to be involved in the emotional response to pain. These abnormalities
were unrelated to the patients' depression and anxiety levels, reinforcing the
idea that fibromyalgia is a real disorder, rather than a result of depression.
http://adam.about.net/reports/Fibromyalgia.htm
A long comprehensive article which is most informative.
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Is Fibromyalgia hereditary?
Fibromyalgia isn't passed
directly from parents to children the way diseases such as cystic fibrosis and
hemophilia are. But family studies have found that the odds of having
fibromyalgia are several times higher in the immediate families of people with
fibromyalgia than in families in which no one has fibromyalgia. These
observations suggest that heredity is a factor in causing fibromyalgia.
Based on research, the
current belief is that fibromyalgia is not hereditary in the classical sense,
where a mutation is responsible for a given trait (monogenic),
like with blue eye color; however, evidence does suggest that your genes can
predispose you to fibromyalgia, but in a complex way involving many genes (polygenic).
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Feeling Like You’ve Been Hit by a Mack
Truck: Mornings With Fibromyalgia
What does it feel like to
be run over by a Mack truck? Thankfully, actual occurrences are few. When I
first developed pain, and long before I heard of fibromyalgia,
I used Mack Truck metaphors for my own experience. Having grown up near the
company’s headquarters, I may have been quicker than average to make this this
association. Yet, when I was finally diagnosed and began reading about
people’s experiences with fibromyalgia and related pain syndromes, I found such
references were rampant.
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http://www.dailymail.co.uk/health/article-2203735/Fibromyalgia-Neurological-condition-causing-numbness-insomnia-pain-fatigue-1-8m-Britons.html
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Earth Clinic Newsletter, Sept 17th
If you care about what you
eat, this is one for you.
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Cold Survival With Fibromyalgia &
Chronic Fatigue Syndrome - Stop
Getting Chilled!
A common symptom of fibromyalgia (FMS) and chronic fatigue syndrome (ME/CFS) is cold sensitivity, which can make
the winter months a real battle for us. With a little planning, though, you may
be able to alleviate the worst of what cold weather means for your illness.
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Living with Pain: Build Positive Emotion
There is an
important link between negative emotion and chronic pain. Depression,
anger, anxiety, sadness, loneliness, and fear can make pain worse and harder to
manage. Simply inducing a bad mood in the
laboratory is linked to higher reports of pain and reduced pain
tolerance. But, how do positive
emotions impact pain?
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Snuggle Up
With the Perfect Pillow
Expert
advice on how to find the pillow that suits your sleep style.
Nothing starts your day
off better than getting a good night's sleep. And sleeping
with the right pillow can help.
"Pillows can not only
impact the quality of our sleep, but also how healthfully we rest and
recharge," says sleep expert Michael Breus, PhD, a clinical psychologist
and author of Beauty Sleep: Look Younger, Lose Weight, and Feel Great
Through Better Sleep.
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Things Not to Say to Someone With
Fibromyalgia or Chronic Fatigue Syndrome
...
And what we'd like to hear instead.
When someone we know is
sick, especially with a chronic illness, it can be hard to know what to say to
them. Often, people want to appear understanding, sympathetic or helpful—only
to come off hurting the feelings of the sick person.
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Is
There a Better Time to Nap?
Sleep can be unrefreshing
and the fatigue of fibromyalgia can make getting through the day difficult. One
way to help you along might be to take a nap, even if you can only manage it on
the weekends. But when you wake up from a daytime nap, you want to minimize the
sluggish, mentally slow feeling that may greet you (as though your brain has
not snapped out of sleep). So, the question is: should you take the nap in the
morning or the afternoon?
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Win £5,000 for FMSSAS
At Fibromyalgia Support for
Surrey and Sussex (FMSSAS) we want to keep our communication costs low and make
sure you always feel connected to the work your generous donations help us to
accomplish.
In just 5 minutes you can
help us understand how we can communicate with you better online and enter us
for the chance of winning £5,000.
The draw for £5,000 will
take place on the 31 December, and the winner will be notified via email.
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Essential
Research Project on Fibromyalgia
An
email received and passed on to you here:-
“I
am currently a BSC Psychology student at the University of Buckingham carrying
out a research on the effect of activity on fibromyalgia and possible ways of
improving symptoms of this condition. For this purpose I am looking for
patients with fibromyalgia who would be interested to take part in a 10-day
research study. The findings might help improve symptoms of fibromyalgia and
help patients develop coping strategies that will have an impact on their
overall wellbeing.
Every
participant will help to increase the knowledge of fibromyalgia and therefore
help to provide a better understanding of ways to treat fibromyalgia and its
symptoms.
Therefore
I would kindly ask you to consider this research for members of your support
group. For additional information please see the enclosed document with details
about the study.
I
would very much appreciate if you could get back to me as soon as possible.
Thank
you for your time!
Kind
regards,
ALENA
MEISTER 1101490@buckingham.ac.uk”
Volunteers
please contact Alena direct.
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I hope to send an eNews
next week (if I’m not too busy), then there will be a break because I shall be
away for most of October. I’ll be back
for the AGM, but only just. Looking
forward to seeing lots of you then.
Best regards to you all
Stella
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N.B. I would like
to point out to you all that the information in my eNewsletters does not
necessarily infer endorsement by the charity Fibromyalgia Support for Surrey
& Sussex. Any advice or recommendation of a medical or legal
nature must always be discussed with a qualified professional. The charity
cannot be held responsible for omissions and/or errors.
Sites I refer you
to are for information only. They might conflict in their opinions, they
might not even be medically sound, but I merely offer them for you to peruse
and make your own judgements, accept or reject as you will. Only by
reading widely can we get an overall picture of fibromyalgia syndrome and how
we can deal with its symptoms, learn to cope with them and still have a life.
I also include
various awareness and local issues as well as general health
considerations. Anyone wishing to
reproduce any of the above items in printed form should seek permission from
the originators.
Wordz for the Week
are from ‘Wordz for the Day’ by Donnie Kuhn, Sr.
Past issues of
FMSSAS eNews can be found at www.fms-sas.co.uk/fmseNews.html and on a
blog at http://fmssas-enews.blogspot.com/
FMSSAS website is www.fms-sas.co.uk
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