FMSSAS eNews 12.04.14

Hi everyone

Welcome to those new to eNews membership, mostly attendees at the Fibromyalgia Conference at Chichester last weekend.  There were around 100 people there and able to benefit from the knowledge of the numerous speakers.  If you didn’t go, you missed a great opportunity.  Next year’s conference is to be on the weekend of 26-29^th April so if you missed it this year, do book the date for next year.  I will be sending updates from time to time.  I hope you will all find something to help you in the links from this message.

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WORDz FOR THE WEEK

66.  Life is like a bar of soap; once you think you’ve got hold of it, it slips away.

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 Diagnosed with Fibromyalgia? Want to be heard?

By filling in a questionnaire about the effects of Fibromyalgia you will:

·         Be helping potentially build awareness of Fibromyalgia

·         Be helping a Postgraduate MSc Social Research Methods Student from City University, London

·         Have the opportunity to receive the conclusions of the research project

Email: afelce84@googlemail.com  or call 07595 383 433 for a questionnaire (choice to receive it by post or email) or for further information.

Questionnaires are completely anonymous. Thank you.

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Spouse's Reaction May Affect Pain Management - Husbands appear more sensitive than wives, study says

Chronic pain can hinder communication between spouses, which, in turn, can impair the affected partner's ability to cope with the pain, according to a new study.

Previous research has shown that validation of a spouse's emotions (showing respect and acceptance) promotes emotional control, trust and closeness, while invalidation of emotions (showing hostility or no interest) increases emotional distance and is associated with poor adjustment within the marriage and depression.

http://health.msn.com/health-topics/pain-management/fibromyalgia/spouses-reaction-may-affect-pain-management

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Radiofrequency Ablation for Chronic Pain - What is radiofrequency ablation?

Radiofrequency ablation of nerves is a procedure that may be used to reduce certain kinds of chronic pain by preventing transmission of pain signals. It is a safe procedure in which a portion of nerve tissue is heated to cause an interruption in pain signals and reduce pain in that area. This procedure is sometimes called radiofrequency lesioning.

http://health.msn.com/health-topics/pain-management/articlepage.aspx?cp-documentid=100215049

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32 die a week after failing test for new incapacity benefit

More than a thousand ­sickness benefit claimants died last year after being told to get a job, we can reveal.

We've highlighted worries about the controversial medical tests for people claiming Employment Support Allowance which are being used to slash the country's welfare bill.

The Government has boasted that more than half of new ­claimants are found "fit to work" - failing to mention that over 300,000 have appealed the decision and almost 40% have won.

http://blogs.mirror.co.uk/investigations/2012/04/32-die-a-week-after-failing-in.html

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Tell Fatigue to Take a Hike
Will walking, napping, or drinking coffee help you fight fatigue best? Take the quiz and see if you're helping or hurting your energy level.

http://women.webmd.com/rm-quiz-fatigue-myths?ecd=wnl_cbp_040512

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Fibromyalgia Slideshow: Fibro-Friendly Exercises

Being active with fibromyalgia can seem tough, but staying still will lead to more pain down the road. Gentle moves and stretches to ease pain.

http://www.webmd.com/fibromyalgia/ss/slideshow-fibromyalgia-friendly-exercises?ecd=wnl_fib_041012

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Nerve Pain Explained in a Slideshow

People with nerve pain feel it in different ways. For some, it's a stabbing pain in the middle of the night. For others, symptoms can include a chronic prickling, tingling, or burning they feel all day.  Uncontrolled nerve pain can be hard to bear. But with treatment, it can often be adequately controlled.

http://www.webmd.com/pain-management/treating-nerve-pain-10/slideshow-neuropathy?ecd=wnl_fib_041012

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Hypnosis, Meditation, and Relaxation for Pain Treatment

Stress and pain are intimately related. When being in pain causes stress or being stressed worsens pain, psychological therapies -- including hypnosis, meditation, and relaxation -- may help break the cycle.

http://www.webmd.com/pain-management/hypnosis-meditation-and-relaxation-for-pain-treatment?ecd=wnl_fib_041012

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The MicroDoctor® - Cutting edge technology to give you EFFECTIVE pain relief
If you suffer with aching joints, muscle pain, rheumatoid arthritis, back pain, tendonitis, ligament injuries, fatigue or any other chronic pain condition then look no further.
The MicroDoctor® is a hand-held device for home use. It will not only provide effective pain relief but it will also speed up the healing process.

http://www.themicrodoctor.co.uk/index.php?pac=TPP8B

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Types of Healing Therapies, from Acupuncture to Yoga

Exploring natural treatment options? Browse this informative section on complementary and alternative therapies, such as acupuncture, chiropractic, herbal medicine, aromatherapy, massage, ayurveda, yoga, and more.

http://altmedicine.about.com/od/treatmentsremedies/Types_of_Healing_Therapies_from_Acupuncture_to_Yoga.htm

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IBS: 'Don't suffer in silence' - IBS Awareness Month

It affects as many as one in five people in the UK with a catalogue of debilitating symptoms from abdominal pain to bloating, constipation, nausea, heartburn and fatigue.

In fact, Irritable Bowel Syndrome (IBS) is second only to the common cold as a major cause of absenteeism from work.

http://uk.health.lifestyle.yahoo.net/international-ibs-awareness-month.htm

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Employability’s Self-Employment Project

Employability is Surrey County Council’s supported employment service for disabled people. They are starting a pilot project to help disabled people set up in self-employment. If you or someone you know would be interested in finding out more about the scheme, contact Jenny Alvey on 01737 733840 or e-mail Jennifer.alvey@surreycc.gov.uk

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Muscle Relaxant May Ease Fibromyalgia Pain and aid Sleep

Low doses of the muscle relaxant cyclobenzaprine, taken at bedtime, help people with fibromyalgia sleep better and feel less pain, according to a small study.

"Bedtime treatment of fibromyalgia patients with low-dose cyclobenzaprine was safe and appears to be effective," says Seth Lederman, MD, president of TONIX Pharmaceuticals, which funded the study.

http://www.webmd.com/fibromyalgia/news/20110914/muscle-relaxant-may-help-fibromyalgia-patients?ecd=wnl_cbp_041212

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Please feel free to contact me at any time. fmssas2@gmail.com or webmistress@fms-sas.co.uk I am always pleased to receive contributions for eNews.

Stella

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N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex (FMSSAS).   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.

Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.

I also include various awareness and local issues as well as general health considerations.    Anyone wishing to reproduce any of the above items in printed form should seek permission from the originators.

Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr.

Past issues of FMSSAS eNews can be found at www.fms-sas.co.uk/fmseNews.html and on a blog at http://fmssas-enews.blogspot.com/  The FMSSAS website is www.fms-sas.co.uk

FMSSAS eNews 12.04.05

 Hi there

There’s plenty for you this week after all.  Hope you don’t miss seeing it as it’s a couple of days early.

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WORDz FOR THE WEEK

65.  Regret is either a hope that has died or one that was never given the chance to live.

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Worthing Fibro News for April

www.fms-sas.co.uk/PDF/WorthingFibroNews1204.pdf

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FIBROMYALGIA IN TONBRIDGE NEWSLETTER: Mar-Apr

www.fms-sas.co.uk/PDF/TonbridgeNews12.03-04.pdf

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Fibromyalgia and low blood pressure

Cardiovascular Effects of FMS

When you have fibromyalgia, your cardiovascular system can be significantly impacted. Everything from your breathing and blood pressure levels to blood flow and energy levels can get out of whack if your cardiovascular system isn’t working properly. While in some cases, your cardiovascular problems could be caused by your fibromyalgia, in other instances, you may suffer from a disorder known as orthostatic intolerance.

http://www.fibromyalgia-symptoms.org/fibromyalgia_cardio_effects.html

NFRA – Low bold pressure

Low blood pressure (neurally mediated hypotension) is common in many fibromyalgia patients. Dr. Peter Rowe at Johns Hopkins University School of Medicine first discovered the connection between low blood pressure and CFIDS. His paper titled, The Relationship Between Neurally Mediated Hypotension and the Chronic Fatigue Syndrome was published in the September 1995 issue of JAMA. Dr. Rowe has replicated his tilt table test in fibromyalgia patients with the same results. He is currently completing a three-year scientific study on the connection between NMH, CFIDS and FMS.

http://www.nfra.net/LowBlood.htm

Simple blood pressure test could diagnose fibromyalgia

Now, a large proportion of the population undoubtedly find the whole procedure a little uncomfortable.Having your arm squeezed until the blood stops isn't the most pleasant experience one can have, you may even feel a little woozy at the prospect. That said, most people are able to suffer the discomfort for a few moments and the test is taken with no problems. It turns out however, that when it comes to fibromyalgia patients, the majority of them experience not only discomfort, but genuine pain when they undergo the blood pressure test. Health care workers noticed that fibromyalgia patients complained of pain and discomfort a lot more often whilst undergoing the test than did the general population and patients with other conditions. This led a group of researchers to investigate whether the standard blood pressure test (Sphygmomanometry) might actually be used as a test to diagnose fibromyalgia.

http://www.ei-resource.org/news/fibromyalgia-news/simple-blood-pressure-test-could-diagnose-fibromyalgia/

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MANAGING FIBROMYALGIA - April 1,  #22 

 HI Everyone!

My current mission in this newsletter, is to list and describe what I consider the 7 most valuable supplements to help relieve Fibromyalgia symptoms. Let's assume that you eat wisely, that is, you eat foods that provide actual nutrition for your body, OR that you are at least taking a good multivitamin, or even Juice Plus+ for a solid whole food foundation that includes vitamins and minerals, trace minerals, B-vitamins, antioxidants, etc.  Then the top seven most valuable supplements are: Omega 3 EPA-DHA, Magnesium, Vitamin D, Malic Acid, Alpha Lipoic Acid, 5-HTP and Eleuthero. There are more helpful supplements to be sure, depending on your other issues, but I consider these to be the basics necessary for chronic pain management. These Magnificent 7 cover muscle pain, nerve pain, stress, anxiety, depression, energy, antioxidant needs and more.  Read more . . .

http://hosted.verticalresponse.com/790349/a3c2901635/1470670689/c4d29ef80f/

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4 Things It's Hard to Do With Fibromyalgia & Chronic Fatigue Syndrome

Fibromyalgia and chronic fatigue syndrome can affect every area of your life, right down to the most ordinary tasks of daily life. Sometimes, you might be surprised by how difficult "ordinary" things have become for you.

Through talking to a lot of people with these illnesses, I've identified 4 everyday things that frequently become difficult for us because of our many symptoms. A lot of people think they're the only ones that have these kinds of problems, but you are definitely not alone!

http://chronicfatigue.about.com/od/copingwithfmscfs/a/4-Things-Its-Hard-To-Do-With-Fibromyalgia-And-Chronic-Fatigue-Syndrome.htm?nl=1

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10 Things to Stop Doing to Yourself

Living Better with Fibromyalgia and Chronic Fatigue Syndrome

When you have a chronic illness like fibromyalgia or chronic fatigue syndrome, you've got enough working against you - you don't need to make things worse for yourself!

http://chronicfatigue.about.com/od/copingwithfmscfs/a/10-Things-To-Stop-Doing-To-Yourself.htm

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Morning Symptoms of Fibromyalgia

Facing the First Problems of the Day

o you frequently wake up exhausted, stiff and achy, with puffiness in your hands and feet or around your eyes? These are all part of morning symptoms when you have fibromyalgia.

Not everyone with fibromyalgia experiences morning symptoms, but they are quite common. This is one of those areas medical research hasn't yet explained, so we can't say why we get them. We also don't know a lot about alleviating them, other than what we learn from each other.

http://chronicfatigue.about.com/od/symptoms/a/Morning-Symptoms-Of-Fibromyalgia.htm?nl=1

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Fibromyalgia in Men - The Often-Overlooked 10%

Fibromyalgia is often thought of as a "women's condition," but men can have it as well.

Men with fibromyalgia are definitely outnumbered -– with women making up about 90% of cases –- but that doesn't mean the diagnosis shouldn't be considered in men. After all, according to National Fibromyalgia Association estimates, that 10% could mean one million men are living with illness.

http://chronicfatigue.about.com/od/whatisfibromyalgia/a/Fibromyalgia-In-Men.htm?nl=1

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Fibromyalgia Symptoms in Women - The Menstrual Cycle, Menopause & Pregnancy

As many as 10 million people around the world have fibromyalgia, according to the National Fibromyalgia Association. An estimated 75-90% of them are women.

That prevalence leads to the obvious question of whether sex hormones (estrogen, progesterone) are to blame. Several studies have failed to reveal any consistent abnormalities in these particular hormones in connection with fibromyalgia, but others have suggested that low estrogen levels may contribute to the development of the condition.

http://chronicfatigue.about.com/od/symptoms/a/Fibromyalgia-Symptoms-In-Women.htm?nl=1

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Tracking Your Symptoms - Keep Track for Better Treatment

It's difficult to diagnose, treat or live with fibromyalgia (FMS) or chronic fatigue syndrome (CFS or ME/CFS). The symptoms are many and they can fluctuate like crazy -- one day you feel pretty good, the next you can barely walk, the next you're OK physically but just can't concentrate or communicate effectively. How can you and your doctor figure out what is going on with you?

http://chronicfatigue.about.com/od/whyfmscfsarelinked/a/track_symptoms.htm?nl=1

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Fibromyalgia and complementary treatments

From acupuncture to chiropractic, from massage to meditation, complementary treatments are in great demand. This is especially true for people with pain-related illnesses such as fibromyalgia.

http://www.webmd.boots.com/pain-management/natural-therapies-and-alternative-treatments-for-fibromyalgia?cm_mmc_o=-uubkbzfwlCjCKww5kbELCjCvi%20i9%20niioCjCC

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High TMJ Rates in Fibromyalgia

The odds of temporomandibular joint disorder (TMJ) in fibromyalgia may be as high as 1 in 3, according to a recent study.  Researchers examined 60 people with fibromyalgia for signs of the painful jaw disorder.

http://chronicfatigue.about.com/b/2012/04/02/high-tmj-rates-in-fibromyalgia.htm?_inv_out=24&_inv_cp=8085489

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Hoping to see some of you at the conference.

Best of wishes to you all for improving health

Have a lovely Easter weekend

Stella

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N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.

Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.

I also include various awareness and local issues as well as general health considerations.    Anyone wishing to reproduce any of the above items in printed form should seek permission from the originators.

Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr.

Past issues of FMSSAS eNews can be found at www.fms-sas.co.uk/fmseNews.html and on a blog at http://fmssas-enews.blogspot.com/

FMSSAS eNews 12.03.31

 Greetings

I had more for you this week than appears below, but sadly my computer closed down before I had saved it, so some of it got lost.  There’s quite a bit left though so I’m glad all is not lost!  So make the most of what there is.

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WORDz FOR THE WEEK

64.   A mistake is only a mistake when you don’t learn from it.  Otherwise, it’s considered a lesson.

I learnt a lesson – save more often!!

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Brain scans detect fibromyalgia!

Yes!! Finally a physical finding to say that fibromyalgia is a disease that’s not psychosomatic.

The Dr. Oz show that was aired on 3/12/12 showed a picture of a brain scan of someone with fibromyalgia.  That scan showed an area down the center of the brain and across the top of the frontal cortex in a bright blue.  It was explained that this area of the brain had a very low blood supply.  It was also explained that this was the area of the brain that was directly connected to pain processing and emotional responses to pain.  No wonder the brain doesn’t know when to shut off its pain sensors, it’s not nourished. The scan that detects these changes in brain function is called a photon emission computed tomography (SPECT) scan. It’s nice to know that brain scans detect fibromyalgia.

http://www.mysquirrelbait.com/brain-scans-detect-fibromyalgia/

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New York Times – Fibromyalgia overview

Fibromyalgia is a common syndrome in which a person has long-term, body-wide pain and tenderness in the joints, muscles, tendons, and other soft tissues.

Fibromyalgia has also been linked to fatigue, sleep problems, headaches, depression, and anxiety.

http://health.nytimes.com/health/guides/disease/fibromyalgia/overview.html?scp=1-spot&sq=fibromyalgia&st=cse

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What You Need To Know About Sleeping Pills

When your having trouble sleeping it’s tempting to reach for a sleeping pill my doctor prescribed, but is it really a good idea? The biggest problem with sleeping aids, both over-the-counter and prescription medications, is they won’t uncover the cause of sleeplessness. In fact, research shows taking both OTC and prescribed sleeping aids may make the problem worse. Here’s why:

http://www.thirdage.com/sleep/what-you-need-to-know-about-sleeping-pills?utm_medium=email&utm_source=nl___63776_thirdage&utm_content=newsstand

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Sleep disorders overview

Sleep problems, including snoring, sleep apnoea, insomnia, sleep deprivation and restless legs syndrome, affect millions of people in the UK. It's important to understand why sleep is necessary for optimal health, how the natural hormone melatonin affects sleep and wakefulness, and how the different states and stages of sleep impact our sleep quality, quantity and dreams.

http://www.webmd.boots.com/sleep-disorders/default.htm?cm_mmc_o=-uubkbzfwlCjCKww5kbELCjCvi%20i9%20niioCjCC

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Living with Pain: Helpful versus Unhelpful Social Support

All of us need social support. Your chronic pain may make you feel more needy. You may believe that you need more than your share of support… or more than your family, friends, or co-workers have to offer. At the same time, you may feel that the support that you receive isn’t always what you need, or that it makes you feel worse.

http://goalistics.com/2012/03/living-pain-power-giving-social-support/?utm_source=Living+with+Pain%3A+Helpful+versus+Unhelpful+Social+Support&utm_campaign=pain+and+support&utm_medium=email

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Changing the Conversation About Pain Survey

APF is committed to you. Help us gather more information that will allow APF to better serve you and provide information that is targeted to meet your needs.

Would you be willing to participate in an interactive website that provides more information about access to pain care, finding support in your community, proposed or existing policies that affect pain care as well as stories about you and fellow APF members?

If you are living with pain, please complete this survey by April 6, 2012.

http://www.painfoundation.org/get-involved/survey/project-change.html

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10 Spring Stress Beaters

"This is the time when birds and butterflies are migrating northward, the days are growing longer and warmer, the trees are budding, the crocuses are in bloom, and our spirits somehow feel lighter. Here, to help you celebrate, we offer 10 timely tips for embracing a less stressful lifestyle.

http://www.thirdage.com/attitude/spring-stress-beaters?utm_medium=email&utm_source=nl___63817_thirdage&utm_content=newsstand

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Next weekend I will be at the FMS conference in Chichester so I will not promise an eNews for Easter.  If I have time I will send out something on Thursday, or Friday morning before I leave.   I will take this opportunity to wish you all a very happy Easter, just in case!.  If you have been knitting squares and if you are going to be at the conference, please bring them with you and give them to me there.  I look forward to meeting up with any of you who will be attending.

Best regards

Stella

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N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.

Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.

I also include various awareness and local issues as well as general health considerations.    Anyone wishing to reproduce any of the above items in printed form should seek permission from the originators.

Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr.

Past issues of FMSSAS eNews can be found at www.fms-sas.co.uk/fmseNews.html and on a blog at http://fmssas-enews.blogspot.com/