FMSSAS eNews 12.08.04

 Greetings everyone

The Olympic Games have got off to a good start.  Isn’t the enthusiasm, vigour, stamina, strength, determination and dedication of all the athletes amazing?  We fibromites are not likely to be running, jumping, swimming, cycling or even walking very far, but we can take note of the positive attitude of these heroes.  We can take control of our lives and not let fibromyalgia take control of us.

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WORDz FOR THE WEEK

81.  There is a choice you have to make, in everything  that you do.  You must always keep in mind, the choice that you make, makes you.

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When Your Clothes Hurt Because of Fibromyalgia

A lot of people live with pain, but few people without fibromyalgia find the simple act of wearing clothes painful.

For us, though, it's just a fact of life. We often need to re-think the way we dress and make significant changes to avoid the burning, searing pain associated with anything tight, binding, rough, or made from certain fabrics.

http://chronicfatigue.about.com/b/2012/07/23/when-your-clothes-hurt-because-of-fibromyalgia.htm?nl=1

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Norepinephrine Drug Shown Effective in Fibromyalgia

A drug that impacts the activity of the neurotransmitter norepinephrine has been found effective at treating symptoms of fibromyalgia, according to a new study.

Most drugs used for fibromyalgia, including two that are FDA approved for the condition, target either serotonin (another neurotransmitter) or both serotonin and norepinephrine. This study demonstrates that targeting only norepinephrine may be effective as well.

Researchers say the drug esreboxetine lowered pain levels by 30 percent or more, and also improved other symptoms such as physical function, difficulty working and depression.

http://chronicfatigue.about.com/b/2012/07/25/norepinephrine-drug-shown-effective-in-fibromyalgia.htm?nl=1

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Poll: Sleep Meds for Fibromyalgia & Chronic Fatigue Syndrome

Sleep problems are nearly universal in fibromyalgia and chronic fatigue syndrome. I've even read that some experts won't diagnose these conditions in people who sleep well.

A lot of us turn to sleep medications or supplements. However, a lot of us also have problems tolerating these things, even when they're natural.

http://chronicfatigue.about.com/b/2012/07/27/poll-sleep-meds-for-fibromyalgia-chronic-fatigue-syndrome.htm

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The GP who gave up fruit and veg to cure her aches and pains
A Good Health article in the Daily Mail – 27^th July

“A few years ago I started to feel unwell. My legs ached and tingled, I felt tired and my mood was flat. I slept badly — I suffered from restless legs and my muscles kept twitching — and couldn’t concentrate during the day.

My work as a GP involved having to learn how to use some different software and I just couldn’t get to grips with it at all — my mind was so befuddled. Although only in my early 40s, I stopped enjoying going out and couldn’t get enthused about seeing friends.”

A controversial treatment of fibromyalgia.

 http://www.dailymail.co.uk/health/article-2174474/The-GP-gave-fruit-veg-cure-aches-pains.html#ixzz21x2fOMhg

See also http://www.pernicious-anaemia-society.org/phpbb/viewtopic.php?p=57987

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Will changing your diet help you cope with fibromyalgia?

If you have fibromyalgia, you've probably wondered if there are ways you could modify your diet to improve symptoms such as fatigue and muscle pain.

Research hasn't shown that there are specific foods that all fibromyalgia patients should avoid or add to their diets. But it may still be worthwhile to take a closer look at how foods impact the way you feel. 

http://www.webmd.com/fibromyalgia/guide/fibromyalgia-the-diet-connection?ecd=wnl_fib_073112&ctr=wnl-fib-073112_ld-stry_1

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Herbs and Supplements for Fibromyalgia

Managing the symptoms of fibromyalgia or related ailments is not easy. So, many patients turn to alternative therapies for relief of pain and sleep problems. They may use Chinese herbs or over-the-counter supplements such as 5-HTP, melatonin, and SAM-e.. . . . . .

http://www.webmd.com/fibromyalgia/guide/fibromyalgia-herbs-and-supplements?ecd=wnl_fib_073112&ctr=wnl-fib-073112_ld-stry_2

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More than 80 reasons to use honey as a DIY home remedy for better health and good eats

Everyone knows honey tastes sweet and is delicious mixed with tea and lemon; but chances are you never realized how many health-related uses this versatile food possesses. It makes a wonderful DIY home remedy that helps to cure many conditions that ail you. The best honey is one that is totally raw, organic and contains the honeycomb in the jar. It should include royal jelly, propolis and bee pollen for maximum health benefits.

http://www.naturalnews.com/036649_honey_home_remedies_medicine.html

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View on iPlayer

In case you missed the two programmes on benefits on Monday you can see them here

Dispatches. 8pm, Channel 4 - http://www.channel4.com/programmes/dispatches/4od#3388055

Disabled or faking it? 8.30pm, BBC2 - http://www.bbc.co.uk/iplayer/episode/b01lldrc/Panorama_Disabled_or_Faking_It/

May not be available for many more days, so if you are interested in how the new benefits assessments work, then watch while you can.

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That’s all I have for you this week.  Continue to enjoy the Games.  Passive participation is positive!

Bye for now

See you next week

Stella

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N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.

Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.

I also include various awareness and local issues as well as general health considerations.    Anyone wishing to reproduce any of the above items in printed form should seek permission from the originators.

Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr.

Past issues of FMSSAS eNews can be found at www.fms-sas.co.uk/fmseNews.html and on a blog at http://fmssas-enews.blogspot.com/