Greetings fibromites and fibro friends
Who saw an Olympic torch?
Did one pass by near you? I met
someone yesterday who proudly showed me a photo she had taken on her mobile
phone of one of the runners in Crawley.
We see them all the time on TV, and there’s plenty on the web, but
somehow that mobile phone shot made it seem more real to me. How much more real will meeting Andrew Holman
seem than just reading his lectures and watching videos of him? But you can do all of those things! See the items about him in the news items
this week.
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WORDz FOR THE WEEK
79. To be old and wise,
you must first be young and stupid.
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Andrew Holman’S Lecture tomorrow
There was a hitch with the enquiry email address given for
this. If you wanted to book and couldn’t,
then please just turn up and pay at the door; £17.50 each or £50 for 5. Chichester Park Hotel, 2pm – doors open from
1.30pm. Do make an effort to attend. See you there?
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Some videos on YouTube by Andrew Holman
"Central Autonomic Nervous System
Regulation.." Andrew Holman, M.D.
"Central Autonomic Nervous System Regulation, Dopamine
Agonists and Fibromyalgia" was a presentation given by Andrew Holman,
M.D., during the 2004 Provider's Conference hosted by OFFER in 2004.
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"Fibromyalgia: A Unifying Theory" Dr.
Andrew J. Holman
This presentation was made during the 2007 OFFER Provider's
Conference by Andrew J. Holman, M.D.
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"Treatment Pearls: Fibromyalgia" Dr.
Andrew Holman
This presentation was made during the OFFER 2007 Provider's
Conference by Andrew Holman, M.D.
http://www.youtube.com/watch?v=_V2DVOqRUmE&feature=relmfu
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The 80+ Chemical Ingredients in Febreze – Beware!
Febreze Air Effects is
showcased as the ultimate odor eliminator, with untold godlike powers. In
fact, it's represented as the one product in all of existence that will get you
to breathe happily, as if it were happy pills in aerosol form ... as if it were health food in
a spray ... even an organic cleaning
product that works like a magic wand. Febreze was even said to be
phthalate-free. Well, the empirical fact is that Febreze is nothing more
than a cauldron of chemicals. It's injurious to humanity in a number of
quantitative ways.
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Special Igennus Vegepa Supplements
Promotion, July 19th – 31st
Every item sold earns a donation towards Fibromyalgia research, at
no extra cost to the buyer.
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Holland and Barratt Penny sale is back
With over 250 products
available in the Penny Sale; buy one, get one for a penny. Virtually half
price!
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Personal Independence Payment and eligibility for a Blue Badge
This is a consultation document about the Government’s changes to
welfare reform and the effect they will have on eligibility for a Disabled
Person’s Parking Permit, or Blue Badge. The consultation closes on Tuesday 2
October 2012.
Links to the Document are on this page
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Depression
Depression in fibromyalgia is a controversial topic. In
support of the contention that fibromyalgia is not a psychiatric illness, some
authors believe that no correlation exists between fibromyalgia symptoms and
psychological factors; others have determined that fibromyalgia is not a
psychiatric disorder. The depression associated with fibromyalgia is believed
to result from the pain, sleep deprivation, and dysfunction.
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Predictors of the pain perception and self-efficacy for pain
control in patients with fibromyalgia.
OBJECTIVE: This study analyzes the role of a number of
cognitive-affective dimensions in the experience and coping of pain in patients
with fibromyalgia (FM). Specifically, it was examined whether anxiety,
depression, pain catastrophizing and pain-related anxiety predict the pain
perception and the self-efficacy expectations in these patients.
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Fibromyalgia symptoms are puzzling, but treatment strategies can
help.
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Treating CFS/FM Self-Study
Develop an individualized treatment plan for your CFS or FM in
this free online self-study course developed jointly with CFS/FM authority Dr.
Charles Lapp, director of the Hunter-Hopkins Center in Charlotte.
Course includes modules on treating symptoms, pacing, stress, emotions, relationships and building a new life. Each module includes worksheets and steps for implementation.
Course includes modules on treating symptoms, pacing, stress, emotions, relationships and building a new life. Each module includes worksheets and steps for implementation.
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FibromyalgiaGlobal Impact
Survey - Advancing Understanding, Aiding Diagnosis
In January 2008, the
European Network of Fibromyalgia Associations (ENFA) and Pfizer Inc partnered
to develop the Fibromyalgia Global Impact Survey among fibromyalgia patients
and among physicians to advance understanding and aid diagnosis of
fibromyalgia. Read the report!
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The American College of Rheumatology Preliminary
Diagnostic Criteria for Fibromyalgia
and Measurement of Symptom Severity
To develop simple, practical criteria
for clinical diagnosis of fibromyalgia that are suitable for use in primary and
specialty care and that do not require a tender point examination, and to
provide a severity scale for characteristic fibromyalgia symptoms.
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VAT Exemption on Disability and Mobility Products
From time to time, we are asked for
clarification on the rules regarding VAT exemption, and it seems that there may
be many people missing out on buying products without VAT, because they don't
realise that they can. If
you are disabled or have a long-term illness, then you are eligible for buying
some products without VAT for your own personal, domestic use.
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I thought there wasn’t going to be much news this week, but I’m
wrong again! But it’s the sort of wrong
I prefer to be. When I have pessimistic
thoughts I LIKE to be proved wrong. In
other instances I prefer not to be, but Hey ho! no-one’s perfect.
That’s all for now folk.
Have a great weekend.
Best wishes to you all
Stella
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N.B.
I would like to point out to you all that the information in my eNewsletters
does not necessarily infer endorsement by the charity Fibromyalgia Support for
Surrey & Sussex. Any advice or recommendation of a medical or
legal nature must always be discussed with a qualified professional. The
charity cannot be held responsible for omissions and/or errors.
Sites
I refer you to are for information only. They might conflict in their
opinions, they might not even be medically sound, but I merely offer them for
you to peruse and make your own judgements, accept or reject as you will.
Only by reading widely can we get an overall picture of fibromyalgia syndrome
and how we can deal with its symptoms, learn to cope with them and still have a
life.
I
also include various awareness and local issues as well as general health
considerations. Anyone wishing to
reproduce any of the above items in printed form should seek permission from
the originators.
Wordz
for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr.
Past
issues of FMSSAS eNews can be found at www.fms-sas.co.uk/fmseNews.html
and on a blog at http://fmssas-enews.blogspot.com/
FMSSAS
website is www.fms-sas.co.uk
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