FMSSAS eNews 12.01.21

Hi there!

Information this week, like Topsy, just growed!  I hope it hasn’t grown beyond usefulness.  You won’t have a dull moment if you follow through with some of these!

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WORDz FOR THE WEEK

54.  My greatest fear in life is not having a big enough impact on someone’s life to always be remembered . . .

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Kelly’s Kontributions

The Most Expensive Disorder? Clauw on the FM/CFS-ness of Chronic Illness
https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1112e&L=co-cure&T=0&P=456
The Reason Fibromyalgia & Chronic Fatigue Syndrome "Bring Friends"
https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1201a&L=co-cure&T=0&P=495
Integrative medicine expert Dr. Alex Vasquez releases innovative new book on fibromyalgia.
https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1201a&L=co-cure&T=0&P=2287
Delineating psychological and biomedical profiles in a heterogeneous fibromyalgia population using cluster analysis.
https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1201a&L=co-cure&T=0&P=648
Health and distress predictors of heart rate variability in fibromyalgia and other forms of chronic pain.
https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1201a&L=co-cure&T=0&P=316
Brain dysfunction in fibromyalgia and somatization disorder using proton magnetic resonance spectroscopy: a controlled study.
https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1201b&L=co-cure&T=0&P=252

My Secret Weapon: Pre-Emptive Rest

http://www.cfidsselfhelp.org/library/my-secret-weapon-pre-emptive-rest

Illness and Housekeeping

http://www.cfidsselfhelp.org/library/illness-and-housekeeping

Finding Support Groups and Doctors

http://www.cfidsselfhelp.org/library/finding-support-groups-and-doctors

Lack of Support: "My Family Doesn't Understand"

http://www.cfidsselfhelp.org/library/relationships

Is Sleep Associated With Fibromyalgia?

http://www.myfibro.com/news/research/is-sleep-associated-with-fibromyalgia?utm_source=twitterfeed&utm_medium=twitter&utm_campaign=Feed%3A+myfibro%2Fmain+%28My+Fibro%29

Possibilities from May 2011

http://www.imj.ie/ViewArticleDetails.aspx?ArticleID=3654
http://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1105b&L=co-cure&T=0&F=&S=&P=3815
http://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1105b&L=co-cure&T=0&F=&S=&P=1075
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FMS Conference, Easter Weekend 6^th-9^th April

For the first time – day passes are available.  Limited number available.  If you aren’t attending the conference with full board you can attend as a day visitor.  Read the latest news here:  www.fms-sas.co.uk/Conf12/Conf_Bulletin_12-03.doc

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Akvamin – The natural way to improve bone, muscle and joint health

Akvamin is a product for both men and women in all ages. It has to date 5 internationally published studies (PubMed) and a total of 8 studies made which displays Akvamin’s good effects.

http://akvamin.com/?lang=en&gclid=CLfw0ILA0q0CFUhrfAodU0zAnA

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9 Natural Anti-Inflammatory Herbs You May Not Know

Fix your inflammatory conditions naturally with these healing anti-inflammatory herbs

http://theconsciouslife.com/9-natural-anti-inflammatory-herbs.htm?mid=57

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Dr Myhill on Fibromyalgia and Mitochondrial Dysfunction

Dr. Sarah Myhill is a UK-based physician with a special interest in fatigue and nutrition. Her pioneering research (“Chronic Fatigue Syndrome and Mitochondrial Dysfunction”) suggests the cells’ energy generating mitochondria are dysfunctional in ME/CFS – a situation that can produce various symptom clusters, including: a) blood flow/vascular abnormalities such as orthostatic intolerance, b) the widespread pain and sensitization most typical of fibromyalgia syndrome, and c) fatigue, exhaustion & brain fog.

http://www.prohealth.com/library/showarticle.cfm?libid=16720

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 Fibromyalgia – an article by Larry McMahon

Well first of all, it’s what I call a “mystery illness” – inasmuch as the medical profession generally have neither an explanation nor a cure for it. Sufferers experience extreme pain in the muscles and joints, along with extreme exhaustion and other symptoms. Sometimes the pain can move around to different parts of the body. But the baffling thing is, that when tests, scans or x-rays are taken, nothing shows up !

http://www.larrymcmahon.com/morearticles.html#Fibromyalgia

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Coping With Fibromyalgia at Home

Simple strategies can make fibromyalgia manageable at home

http://www.everydayhealth.com/fibromyalgia/coping-physically/fibromyalgia-at-home.aspx?mid=57

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Chronic Pain and Depression: Managing Pain When You’re Depressed

Living with chronic pain should be enough of a burden for anybody. But pile on depression -- one of the most common problems faced by people with chronic pain -- and that burden gets even heavier.

http://www.webmd.com/depression/managing-pain?ecd=wnl_fib_011712

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CHRONICLES OF FIBROMYALGIA

Chronicles Of The Ups & Downs & Sideways Progress Of A Female Living With Fibromyalgia ©

One of many Fibromyalgia blogs.

The Breakable Bonds Of Friendship

http://networkedblogs.com/sOwjT

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DWP to recognise fibromyalgia as a real disability - e-petition

Please sign this petition to get FM recognised as a disability by DWP

http://epetitions.direct.gov.uk/petitions/12627?mid=57

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Barriers to getting work - Survey

This survey is being undertaken by Voluntary and Community Action Chichester District and is part of a piece of work being undertaken by Chichester in Partnership (the local strategic partnership). The partnership is assessing the barriers to people accessing work and investigating what support would best help people.
If you are a resident of Chichester District (or an organisation supporting people in Chichester District) and you are currently out of work we would appreciate your support in answering this short survey. All individuals will remain anonymous.
Please complete this survey by Friday 3rd February.

http://www.surveymonkey.com/s/FSYSDJ3

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Bond Holidays Newsletter

The 65 bedroom fully accessible hotel is the largest family run fully accessible hotel in the North West, possibly even the UK and with it we are proud to provide an amazing party atmosphere that you will struggle to find elsewhere.  Whether you are choosing to visit us for a holiday or a respite break using our Holidays With Care team we aim to provide you with memories you will cherish forever.  From the sounds of Abba or Elvis to the Stars Of Coronation Street there is always plenty going on at the hotel.  Our Bank Holiday Specials even provide FREE tickets to some of Blackpool’s best attractions! 

http://login.bananamail.co.uk/new/viewnewsletter2.aspx?SiteID=9375&SID=6&NewsletterID=335016

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New pension and benefit rates for 2012–2013

Details of next (this) year's pensions and benefits rates have been announced. The new rates will be paid from April 2012.

www.direct.gov.uk/en/Nl1/Newsroom/DG_200634?mid=57

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That’s it then!  Hope you have a happy pain-free week.  If you have any tips and suggestions or useful websites to aid fibro survival, do let me know.

Best regards

Stella

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N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.

Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.

I also include various awareness and local issues as well as general health considerations.    Anyone wishing to reproduce any of the above items in printed form should seek permission from the originators.

Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr.

Past issues of FMSSAS eNews can be found at www.fms-sas.co.uk/fmseNews.html and on a blog at http://fmssas-enews.blogspot.com/