FMSSAS eNewsletters

FMSSAS eNews 12.02.25

2012-02-25T02:26:00.000-08:00

Hello to you all

I hope the milder weather is making you all feel better. I was amazed that the temperature in our conservatory hit 30 degrees this week! Summer weather in February! Whatever next? Life is full of surprises. Now for this week’s gems:--

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WORDz FOR THE WEEK

59. Keep smiling because it may be the only sunshine someone else will see today.

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Kelly’s Kontributions

Decreased intrinsic brain connectivity is associated with reduced clinical pain in fibromyalgia.
https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1202a&L=co-cure&T=0&P=6345
The Role of Antipsychotics in the Management of Fibromyalgia
https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1202a&L=co-cure&T=0&P=1998
Descending pain modulation and its interaction with peripheral sensitization following sustained isometric muscle contraction in fibromyalgia
https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1202b&L=co-cure&T=0&P=7692
Frequency of fibromyalgia syndrome in breast cancer patients.
https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1202b&L=co-cure&T=0&P=7555
Serum vitamin D level and bone mineral density in premenopausal Egyptian women with fibromyalgia
https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1202b&L=co-cure&T=0&P=7383
Working Memory Problems in Fibromyalgia& Chronic Fatigue Syndrome
https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1202c&L=co-cure&T=0&P=5374
Adverse Events Attributable to Nocebo in Randomized Controlled Drug Trials in Fibromyalgia Syndrome and Painful Diabetic Peripheral Neuropathy: Systematic Review.
https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1202c&L=co-cure&T=0&P=4443
Mitochondrial myopathy presenting as fibromyalgia: a case report
https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1202c&L=co-cure&T=0&P=5521
The Concept of Incomplete Fibromyalgia Syndrome: Comparison of Incomplete Fibromyalgia Syndrome With Fibromyalgia Syndrome by 1990 ACR Classification Criteria and Its Implications for Newer Criteria and Clinical Practice.
https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1202c&L=co-cure&T=0&P=4146
"Lifting the Fog: Treating Cognitive Problems"
Strategies for controlling brain fog.
http://www.cfidsselfhelp.org/library/lifting-fog-treating-cognitive-problems
"Counting Your Blessings: How Gratitude Improves Your Health"
People who keep a gratitude journal report fewer symptoms and feel better
about their lives.
http://www.cfidsselfhelp.org/library/counting-your-blessings-how-gratitude-improves-your-health
"Living with Fibromyalgia: What Helps Me"
FM patient Kathy Gamble describes the many strategies she uses to create a
good life with fibromyalgia.
http://www.cfidsselfhelp.org/library/living-with-fibromyalgia-what-helps-me
"How Your Doctor Can Help If You Have CFS/ME"
CFS/FM specialist Dr. Charles Lapp explains.
http://www.cfidsselfhelp.org/library/how-your-doctor-can-help-if-you-have-cfsme
"Adapting to Fibromyalgia"
By focusing on the many practical things she could do to feel better, this
person made a successful adaptation to long-term illness.
http://www.cfidsselfhelp.org/library/adapting-fibromyalgia

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Yoga Nidra

A while ago I gave a link to this

http://www.relaxationyoganidra.com/

A testimonial from one of our members who tried it and found it very beneficial:-

I received your yoga nidra CD Stress & pain relief, slumber time etc. It is absolutely excellent. Especially the one hour track on pain relief, it goes by in a flash, and the pain whilst practicing this is definitely relieved somewhat.
-- Joan Chappell, UK

See Joan’s and other testimonials here

http://www.relaxationyoganidra.com/testimonials.html

How to Practice Yoga Nidra

Yoga Nidra is most beneficial as a regular practice done every day or second day. Any time of the day is a good time to do Yoga Nidra except right after a meal. Wait one and a half hours or so to respect the digestive process. A practice time of 15-45 minutes is all that is required. Practice in a quiet place where there will be no interruptions - unplug the phone and turn off cellular phones. A sign on the door "In Practice" or "In Silence" - works well to remind others of our sacred times.

http://www.relaxationyoganidra.com/practice.html

Here is the link for the recordings of the recent teleseminar.

http://instantteleseminar.com/?eventID=21411651

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Earth Clinic's treasure chest of home remedies!

Our readers have been testing and developing these folk remedies, with contributors from every part of the world, since 1999. We've been sent some of the most exciting remedies to date – dozens of restorative remedies, plus natural cures for cancer, fibromyalgia, back pain and better than 350 other diseases and conditions!

http://www.earthclinic.com/

FMSSAS eNews 12.02.18

2012-02-18T01:42:00.001-08:00

Hello again

The FMS Conference is getting nearer. Don’t forget to book asap to avoid disappointment. You can attend the whole weekend all inclusive for £179 or attend as a day visitor on the Saturday and Sunday for £79. More details are here. www.fms-sas.co.uk/fmsConf12a.html. It's Easter weekend, 6th-9th April!

I hope to see you there!

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WORDz FOR THE WEEK

58. I think what messes us up most of the time, is that we have these perfect pictures of how things are supposed to be.

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Worthing Area Fibro Group February Newsletter.

www.fms-sas.co.uk/PDF/WorthingFibroNews1202.pdf

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American Pain Foundation Newsletter

http://action.painfoundation.org/site/MessageViewer?em_id=14301.0&printer_friendly=1

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VICTIMS OF ATOS CORRUPTION

Recording your Atos WCA assessments – email from Paul Smith (Atos Victims Group)

www.fms-sas.co.uk/eNews/2012/WCA.doc

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Pain Body Chart

Chart provided by WS PCT for locating painful areas of the body. Next time you go to your doctors, you could take one and show them where you are hurting. Useful for keeping a record – new chart each week?

www.fms-sas.co.uk/eNews/2012/body_chart.doc

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Recorded Yoga Nidra Practices led by Deirdre Rawlings, PhD, ND.

Reduce Chronic Pain, Fatigue, & Insomnia through a Deep Mindful Relaxation Journey that Heals, Renews, and Transforms. Feb 21^st - Register NOW.

http://www.relaxationyoganidra.com/

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Does your teen complain of pain, tenderness, stiffness, and fatigue?

If so, he or she may have a condition called fibromyalgia. Juvenile fibromyalgia is a chronic condition among teenagers that is characterized by significant widespread pain and fatigue and other symptoms that can make performing their daily activities a real struggle.

http://campaign.r20.constantcontact.com/render?llr=d7zjvlfab&v=001s0rRepf3dPZN9tEQxjAWdcZ-8rQiejip8ykyKR9QLbGKjKvOOHZFhw_pAUEVb74kznGFMdT9shzWehxepwgav4VNNaLA23MlCo-QdNQjPmpbjNjryNbI9Wjy3sA4LHZd0d1bztyCGoGUzFm28nFxTA%3D%3D

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Believe in Yourself—Steering Clear of Self-Doubt and Destructive Thoughts

How do you believe in yourself when others trivialize your symptoms? Or how do you continue to like yourself when fibromyalgia keeps stealing your energy and ability to function as you once did? These situations fuel ongoing battles and undermine your self-esteem. But no matter what others say or do, it is essential that you believe in yourself.

http://www.fmnetnews.com/coping-resources/coping-advice/believe-in-yourself

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Muscle Relaxants: Do they work for fibromyalgia?

Are your muscles always tight and achy? Perhaps you have ropy bands with knots in the mid-section, and just pressing on these areas can send your pain through the roof. But the knots do more than hurt, they make the muscles tight and stiff. It’s logical to wonder if muscle relaxants might ease the tension in your muscles and help loosen your painful knots.

http://www.fmnetnews.com/free-articles/article-samples/muscle-relaxants

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Fibro-Friendly Hobbies and Pastimes

One of the challenges of adjusting to fibromyalgia is finding hobbies and pastimes that don’t aggravate your symptoms. Better yet, you want to seek out activities that provide you with gratification and distraction from the pain. The Fibomyalgia Network surveyed its Members and here are a few of the most endorsed fibro-friendly pastimes:

http://www.fmnetnews.com/coping-resources/daily-living/new-hobbies

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Hair Problems in Fibromyalgia

Fibromyalgia affects everything, from your hair to your toenails. And if you're thinking, "Hey, I wonder if my hair problems are related to fibromyalgia," there's a good chance they are.

http://chronicfatigue.about.com/b/2012/02/09/hair-problems-in-fibromyalgia.htm?nl=1

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Pain & Cognitive Function in Fibromyalgia

A few days ago, a German researcher told the 6th World Congress of the World Institute of Pain that, according to his latest study, the cognitive dysfunction (fibro fog) of fibromyalgia is primarily related to one single factor.

That factor is not depression. It is not anxiety. It is not even unrefreshing sleep.

That factor is: Pain.

http://chronicfatigue.about.com/b/2012/02/08/pain-cognitive-function-in-fibromyalgia.htm?nl=1

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Develop Coping Skills for Living With Fibromyalgia

When you're diagnosed with fibromyalgia (FM), among the initial things you learn is that there's no cure and that it can be hard to find effective treatments. It's normal to feel sad, angry, helpless and confused. Once you're beyond the initial shock, however, the way you deal with your condition can make a big difference in how you feel.

http://chronicfatigue.about.com/od/copingwithfmscfs/a/copingskills.htm

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Fibromyalgia, Chronic Fatigue Syndrome & Interstitial Cystitis

Fibromyalgia, chronic fatigue syndrome and interstitial cystitis (IC) -- a painful bladder condition -- frequently occur together. Women may be up to 10 times more likely than men to develop it.

http://chronicfatigue.about.com/od/whyfmscfsarelinked/a/ICbladderpain.htm

FMSSAS eNews 12.02.11

2012-02-11T02:31:00.000-08:00

Good morning to you

A cold but sunny one. Oh my, how cold it has been - again! I hope you have managed to wrap up warmly and avoid frostbite. Information about fibro continues to flood in and there is a plethora of articles FYI this week. Enjoy!!

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WORDz FOR THE WEEK

57. Realise what’s important in your life. What you can live with, but more importantly what you can’t live without.

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Disability Rights UK Factsheet

The Personal Independence Payment (PIP) replaces working age disability living allowance (DLA) from April 2013.

PIP will have many similarities with DLA. In particular it will have two components: a daily living component (which has similarities to the current care component) and a mobility component.

http://www.disabilityalliance.org/f60.htm

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ME/CFS Community

Abstracts of a variety of articles.

http://cfsknowledgecenter.ning.com/page/inthenews-5

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What Doctors Don’t Tell You

Health eBooks now available at £3.95 each + VAT. Of possible interest to FM patients - CHRONIC PAIN, HEALING FOODS, THE NEW HEALING, SUPPLEMENTS UNDER THE MICROSCOPE.

http://www.wddty.com/health-books.html

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Dr Sarah Myhill in radio interview

Dr Myhill, the ME/Fibro doctor in Wales, is talking about diet, allergies, etc. in the link below. Be patient when the link first begins, she comes on the programme in the end. She is quite an amazing woman and worth a listen to. Webpage here

http://www.oneradionetwork.com/health/dr-sarah-myhill-empowering-you-to-recover-your-health-january-23-2012/

mp3 download here

http://www.oneradionetwork2.com/mp3/health/challenges/01.23.12_myhill_sarah_stoneage_diet.mp3

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Pain Negatively Affects Cognition in Fibromyalgia

Pain is the primary factor contributing to cognitive impairment in patients with fibromyalgia syndrome, over and above depression, anxiety, fatigue, sleep complaints, and medication use, reported Stefan Duschek, PhD, from the University of Munich, in Germany, here at the 6th World Congress of the World Institute of Pain.

http://www.medscape.com/viewarticle/758102

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Do Women Feel Greater Pain Than Men?

A preponderance of research evidence suggests that there are profound differences between men and women in the prevalence, perception, reporting, and treatment of pain. A newly published study adds to that, finding at the least that women seem less shy than men about reporting their level of pain on standard assessment measures. Whether or not women actually feel greater pain and over a broad range of medical conditions, as suggested by this research, may be uncertain.

http://updates.pain-topics.org/2012/01/do-women-feel-greater-pain-than-men.html

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Chronic Pain Control Basics for ME/CFS and Fibromyalgia

Of the difficult but treatable symptoms of chronic fatigue syndrome (CFS) and fibromyalgia (FM), chronic pain is rarely treated adequately. Headaches, lymph node tenderness, muscle pain and joint pain cause considerable long term discomfort – sometimes mild, sometimes severe. There may be fluctuations in the severity of pain.

http://www.prohealth.com/library/showarticle.cfm?libid=16770

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Is magnesium citrate treatment effective on pain, clinical parameters and functional status in patients with fibromyalgia?

The aims of this study were to investigate the relationship between magnesium levels and fibromyalgia symptoms and to determine the effect of magnesium citrate treatment on these symptoms.

http://www.springerlink.com/content/n316872q402572m6/

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Intrinsic brain connectivity in fibromyalgia is associated with chronic pain intensity

Fibromyalgia (FM) is considered to be the prototypical central chronic pain syndrome and is associated with widespread pain that fluctuates spontaneously. Multiple studies have demonstrated altered brain activity in these patients. The objective of this study was to investigate the degree of connectivity between multiple brain networks in patients with FM, as well as how activity in these networks correlates with the level of spontaneous pain.

http://onlinelibrary.wiley.com/doi/10.1002/art.27497/full

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Sleep oh sleep, where art thou? Could your fibromyalgia medications be causing insomnia?

Yes, fibromyalgia medication could be causing your insomnia.

Cymbalta® (Duloxetine) and Savella® (milnacipran) which have been approved for treating fibromyalgia are in a class of drugs called selective serotonin and norepinephrine reuptake inhibitors (SNRIs) and insomnia is a side effect for both medications.

http://www.sharecare.com/user/celeste-cooper/blogs/show/sleep-oh-sleep-where-art-thou-could-your-fibromyalgia-medications

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Fibromyalgia: A Plausible Model for Cause and Cure

Fibromyalgia is a disease of widespread soft-tissue pain and stiffness. It often coincides with symptoms of persistent fatigue, exercise intolerance, disrupted and non-restorative sleep, tension headaches, migraines, blurred vision, abnormalities of the skin or fingernails, painful menstrual periods, numbness or tingling, heart palpitations, sleep apnea, temperature sensitivity, restless legs, impaired cognition, irritable bladder, and intestinal symptoms of irritable bowel, bloating, gas, belching, pain and distention.

http://www.healingwell.com/library/fibro/article.asp?author=cartmell&id=2

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Sleep Disorders Health Check

Help Yourself Sleep Well Again . Fibro pain and tenderness don't have to keep you from getting the rest you need. Get tips for dealing with sleep problems.

http://www.webmd.com/sleep-disorders/sleep-disorders-health-check/default.htm

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Magnesium the Heart Mineral

Magnesium is the most versatile mineral in your body and is known to be required for several hundred different functions. One of the principle functions of magnesium in the body is that it enables muscles to relax. Without sufficient magnesium in the body, the muscles cramp and we can feel tense, nervous and jittery. In fact, anything that is tight, irritable, crampy and stiff – whether it is a body part or even a mood – is a sign of magnesium deficiency.

http://www.foodsforfibromyalgia.com/information-center/health-library/item/305-magnesium-the-heart-mineral.html

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Independent Living newsletter - Thu, 09/02/2012

Some items here might be of interest

http://www.independentliving.co.uk/news/?q=node/352

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Winter Fuel Payment for disabled and chronically sick people

Will you sign this ePetition?

https://submissions.epetitions.direct.gov.uk/petitions/28892

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Valentines Day: Romance Even When Affected by the Recession?

Very Low-Cost Ways to Spice up Your Love Life

http://articles.healthrealizations.com/FoodsForFibromyalgia/2012/02/06/Valentines-Day-Romance-Even-When-Affected-by.aspx

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Earth Balance Tai Chi, Qi Gong & Meditation Classes

See timetable for classes in Crawley, Horsham and Worthing and workshops in Brighton.

http://us2.campaign-archive1.com/?u=75076062ba40962e2e364d5f4&id=88d326114a&e=751f85837c

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Gymnophobics – recommendation by a member

I have been going to the Gymnophobics gym in Hove beside the Co-op on Blatchington Road since last August. It is women only and a circuit of 30 mins with 3 mins on each machine. There is no treadmill or cross trainer or anything that pounds through the body. You are assessed and all exercises are suited to whatever condition you have. I can honestly say that it has been worth the time and effort as I can now manage better without a walking stick and feel more energetic than before. It seems to work for me so if anyone else is interested in having a go ring them on 01273 733933 and book a trial. It is friendly and even a cup of tea or coffee afterwards so that you can rest before setting off. It is the only exercise that I have found that seems to work for me so worth every penny.

http://www.gymophobics.co.uk/brighton/index.php

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LOOKING FOR MORE RESOURCES ON FIBRO? – some American sites

National Fibro Research Association – http://www.nfra.net/

National FM Institute - http://www.nationalfibromyalgiainstitute.org/

National Sleep Foundation - http://www.sleepfoundation.org/search/node/fibromyalgia

Clinical trials on Fibromyalgia - http://www.clinicaltrials.gov/ct2/results?term=fibromyalgia

National Fibromyalgia Association - http://www.fmaware.org/

Leaders Against Pain - http://www.fmaware.org/PageServer3b81.html?pagename=community_leadersAgainstPain

FM & Chronic Pain Association – www.fmcpaware.org

American Chronic Pain Association/FM - http://www.theacpa.org/conditionDetail.aspx?id=1

National Fibromyalgia Partnership - www.fmpartnership.org

CFS & FM Association - http://www.ncfsfa.org/

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That is enough for anyone for one week’s study. If you have a romantic relationship I hope St Valentine’s Day proves to be enjoyable for you in whatever way you may celebrate it!

Kindest regards to you all

Stella

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Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr.

Past issues of FMSSAS eNews can be found at www.fms-sas.co.uk/fmseNews.html and on a blog at http://fmssas-enews.blogspot.com/

FMSSAS eNews 12.02.04

2012-02-04T02:36:00.001-08:00

Greetings to you all

I hope you are not all frozen to death! It has been sooooooooo cold this week, even though the sun has shown great bravery in shining. Sharp short walks are probably what the doctor would order, but you will be forgiven if you huddle over your computer, snuggle up in a warm blanket and do your weekly reading re fibro.

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WORDz FOR THE WEEK

56. Hatred paralyzes life; love releases it. Hatred confuses life; love harmonizes it. Hatred darkens life; love illumines it.

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Kelly’s Kontributions

From Listserv

Effect of pregabalin on sleep in patients with fibromyalgia and sleep maintenance disturbance: A randomized, placebo-controlled, 2-way crossover polysomnography study.

https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1201c&L=co-cure&T=0&P=1262

The Effects of Fibromyalgia Syndrome on Female Sexuality: A Controlled Study

https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1201c&L=co-cure&T=0&P=1619

Functional capacity, muscle strength and falls in women with fibromyalgia.

https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1201d&L=co-cure&T=0&P=1033

MALDI-TOF and SELDI-TOF analysis: "tandem" techniques to identify potential biomarker in fibromyalgia.

https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1201d&L=co-cure&T=0&P=61

Vitamin D Deficiency in Women with Fibromyalgia in Saudi Arabia.

https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1201d&L=co-cure&T=0&P=869

“Governed by the pain”: Narratives of fibro myalgia

https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1201d&L=co-cure&T=0&P=2558

Webinar: "Fibromyalgia: Current Understanding & Integrative Nutritional Approaches" by Alex Vasquez, D.C., N.D., D.O.

https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1201d&L=co-cure&T=0&P=3796

From CFIDS & Fibromyalgia Self Help

1) "Willpower in CFS & FM"

Recent research suggests willpower is like a muscle, strengthened by use.

Here are six ways to increase your sense of control.

http://www.cfidsselfhelp.org/library/willpower

2) "My Energy Bank Account"

How a simple pacing strategy allowed one person to reduce her symptoms and

gain control of her life.

http://www.cfidsselfhelp.org/library/my-energy-bank-account

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FM Conference 2012, Chichester 6^th-9^th April

FAQ answered 4 U

www.fms-sas.co.uk/fmsConf12a.html

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FMSSAS Membership renewal

Those of you who have been on our membership list, who receive the Trustees’ Newsletters and are eligible to vote at AGMs have recently been circulated, by email, or by post if they have no email address. The membership list is being renewed and members have been invited to respond by emailing membership@fms-sas.co.uk If you were one of them and you haven’t responded please do so if you wish to remain as a member. If there is anyone who is not a member but would like to be, please also respond. The renewal notice is here

www.fms-sas.co.uk/Trustees'_Newsletters/TN_11-Membership_Renewal.pdf

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Independent Living Association Workshops

The Independent Living Association is holding two workshops across West Sussex which will contribute towards developing a new disability strategy under this Government. This is a fantastic opportunity to share your views and tell us about what is important to you. The events take place in Crawley on Wednesday 15 February and Bognor Regis on Wednesday 22 February. For more information see details

http://www.hacvs.org/Embedded%20files/E-bulletins%202012/03-HW-2012/Event_details_and_workshop_description.pdf

and poster

http://www.hacvs.org/Embedded%20files/E-bulletins%202012/03-HW-2012/Poster.pdf

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MANAGING FIBROMYALGIA - the top seven most important supplements

Including Malic Acid and Energy

http://hosted.verticalresponse.com/790349/5a2280d8bb/1470670689/c4d29ef80f/

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Diary of a Benefit Scrounger

A site to share information on Welfare cuts, illness, disability and general, current, political thought.

http://diaryofabenefitscrounger.blogspot.com/

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American Pain Foundation

Growing membership is vital to creating a powerful movement and improving the lives of people living with pain. We need your help! This month’s Action of the Month is to ask five people you know to join APF.

http://action.painfoundation.org/site/TellAFriend?msgId=14262.0&devId=15481

I’m inviting over 350!

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Drugs.com

This is the most popular, comprehensive and up-to-date source of drug information online. Providing free, peer-reviewed, accurate and independent data on more than 24,000 prescription drugs, over-the-counter medicines & natural products. Find helpful tools, wallet size personal medication records, mobile applications and more.

www.drugs.com

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Chronic Pain Policy Coalition

A report of the Pain Summit 2011

www.fms-sas.co.uk/PDF/Pain_Summit_Report_2011.pdf

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Preventing Fibromyalgia Pain - By Karen Lee Richards
I don't want the title to mislead you. There's no foolproof way to prevent all pain when you have fibromyalgia. But understanding how the FM pain cycle works can enable you to lessen the pain much of the time and even prevent some pain altogether.

http://www.healthcentral.com/chronic-pain/fibromyalgia-289515-5_pf.html

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Study Shows How Stress Triggers Immune System

Shedding some light on why stress might be bad for you, a new study finds that parts of your immune system ramp up when you get into personal conflicts with others.

http://news.yahoo.com/study-shows-stress-triggers-immune-system-210413471.html

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Fibromyalgia and Alcohol Don't Mix

Alcohol intolerance is a feature of both fibromyalgia and chronic fatigue syndrome (ME/CFS) that we rarely see in symptoms lists. Yet most people who have FM or ME/CFS find that they can no longer drink much, if any, alcohol.

http://www.healthcentral.com/chronic-pain/c/5949/148802/fibromyalgia

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Relieving Persistent Pain, Improving Health Outcomes

http://www.ucl.ac.uk/pharmacy/documents/news_docs/Relieving_Persistent_Pain

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Fibro in Tonbridge – Newsletter Jan-Feb

www.fms-sas.co.uk/PDF/TonbridgeNews12.01-02.pdf

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You can take a rest now! There’s plenty to get your teeth into this week. Remember ‘Knowledge is Power’ but you only get the knowledge by studying.

Have a great week

Keep warm, keep good, and keep smiling!

Stella

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Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr.

Past issues of FMSSAS eNews can be found at www.fms-sas.co.uk/fmseNews.html and on a blog at http://fmssas-enews.blogspot.com/

2012-01-28T02:54:00.000-08:00

Hi there,

I hope you have had a good week. I went for my post operative appointment at the Horder Centre this week. All appears to be well. I won’t have to go there again until another joint needs servicing!

Just to remind you that on this blog you can interact by making comments, become a follower and check out any of the previous blogs back to March last year.

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WORDz FOR THE WEEK

55. A moment, a single moment of true joy is more powerful than a lifetime of sorrow.

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ME/CFS Community

Links to a variety of articles and videos about ME/CFS/FM.

· Multivitamins: So Many Types, So Many Labels

· New Efficiencies in Health Care? Not Likely

· How Old Viruses May Haunt Us

· The Time to Innovate is Now

· Europe's Failing Health

· The Puzzle of Chronic Fatigue

http://cfsknowledgecenter.ning.com/

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Community Care

Vitalise: providing respite care solutions for people with disabilities and carers

http://epidm.edgesuite.net/RBI/socialcare/SCEUP/HTML/2012/SCEUP_20120120.html

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Give as you live – Great offers

This is the web version of the email I received. It includes how to download the app that makes it work on your computer.

http://email.everyclick.com/interface/external_view_email.php?W917140929773116212421736401613

It tells me that I have raised £34.30 for FMSSAS. You could do the same – or more. I think most of that was through the Everyclick search engine. Are you using that yet? Please do. Other search engines don’t pay us anything. Everyclick does. You can save the everyclick search page as a favourite/bookmark/homepage or you can access it from any page on our website. Click on the Search button at the top of any page. Which takes you here http://www.everyclick.com/fibromyalgia-support-group-for-surrey-and-sussex/388122/0/search

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Here’s another moneyraiser – Shop2Fundraise

We are now using shop2fundraise.co.uk to raise extra funds, which means that if you shop online you could help us raise funds and it won't cost you a penny more, in fact it can help you save money. You won't even need to register and with over 1000 online shops to deal with there is plenty of choice (including major brands like Amazon, M&S, Sainsbury's and Boots) for more information and to help with fundraising simply click here http://www.shop2fundraise.co.uk/charity/Fibromyalgia+Support++for+Surrey+and+Sussex-407099

Here are other links to get you started. Please do it. It won’t take long to set up and you can start raising funds as soon as you start shopping on-line. Everything is explained on the site.

Our marketplace:
http://www.shop2fundraise.co.uk/?orgID=407099

Our toolbar:
http://www.shop2fundraise.co.uk/toolbar/?orgID=407099

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American Pain Foundation - PAIN MONITOR - January 2012

http://email.everyclick.com/interface/external_view_email.php?W917140929773116212421736401613

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Patients Like Me Community

Set up your medical profile and find kindred spirits.

www.patientslikeme.com

The Fork Theory

http://www.patientslikeme.com/forum/ms/topics/103543

But you need to know the Spoon Theory too!

http://www.butyoudontlooksick.com/navigation/BYDLS-TheSpoonTheory.pdf

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Tired all the Time? Eight Medical Issues to be Aware Of

Do you feel tired to the point that it interferes with your daily life? This type of overwhelming and chronic fatigue interferes with your ability to enjoy life and feel productive, but why does it happen?

http://articles.healthrealizations.com/FoodsForFibromyalgia/2012/01/23/Tired-all-the-Time-Eight-Medical-Issues.aspx?

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Smile! The Remarkable Personal Benefits of Smiling

Learn why research says smiling is "like eating 2000 chocolate bars," how smiling is clinically proven to help you fight illness, and why another study found that the intensity of a woman's smile can predict her marital success! Get a few smiles from the three (clean!) jokes while you're at it.

http://articles.healthrealizations.com/FoodsForFibromyalgia/2012/01/23/Smile-The-Remarkable-Personal-Benefits-of-Smiling.aspx?

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WebMD Expert Insider

Are You Getting the Care You Deserve?
What "chronic" really means is "forever." The first step to coming to grips with this realization is that life will go on in tandem with your disease.
The second is to dig in your feet, speak up, and take a stand to get what you need from your family, friends, and especially your medical support team.
Read more, and tell others about your challenges and successes.
More Blogs You Don't Want to Miss
• Why You Need a Team to Call Your Own
• Overcome Your Fear, Conquer Your Pain
• Caregiving: What Does It Really Mean?
• Finding the 'Good' in Cancer
• Are You Sure You Want to Read Your Doctor's Notes?
• It's Never Too Late to Take Charge of Your Diet
• The Fine Art of Giving (and Receiving) Feedback

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Personalized Fibromyalgia Care

You may have pain all over, but not every person with fibromyalgia has the same set of symptoms. Effect treatment of your condition requires your healthcare team to individualize your care. Your specific symptoms must be addressed rather than viewing you as just another person with fibro.

http://www.fmnetnews.com/latest-news/personalized-fibromyalgia-care

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Physical Therapy Combo for Fibromyalgia - Weekly Ultrasound Plus TENS Cuts Pain in Half

A research team shows that combining two common nondrug therapies for sore muscles can reduce fibromyalgia pain by 50 percent and aid sleep by 35 percent. Although the study required patients to attend 12 weekly sessions to document treatment effectiveness, the primary device used costs between $50 and $100 (£32 - £64 ). You can purchase this device with the help of a physical therapist, and use it as needed to contain your pain and improve sleep.

http://www.fmnetnews.com/latest-news/physical-therapy-combo-for-fibro

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TENS Machines

For various reasons, pain-killing medication is not always acceptable. Another option for pain relief is a Transcutaneous Electrical Nerve Stimulator (TENS machine). TENS machines deliver small electrical pulses to the body via electrodes placed on the skin. This is thought to help ease pain. The research evidence to support the use of TENS machines is not strong, but they seem to be popular with people who have pain. (advertised from £19)

http://www.patient.co.uk/health/TENS-Machines.htm

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This has ended up being another long missive. Hopefully something will be useful to you. Please use one or both of the online shopping devices to help raise funds for FMSSAS. That is if you do shop online! My guess is that a lot of you do as it saves the physical effort of visiting shops, supermarkets and shopping malls.

I wish you all well

Stella

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Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr.

Past issues of FMSSAS eNews can be found at www.fms-sas.co.uk/fmseNews.html and on a blog at http://fmssas-enews.blogspot.com/

FMSSAS eNews 12.01.21

2012-01-21T03:33:00.001-08:00

Hi there!

Information this week, like Topsy, just growed! I hope it hasn’t grown beyond usefulness. You won’t have a dull moment if you follow through with some of these!

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WORDz FOR THE WEEK

54. My greatest fear in life is not having a big enough impact on someone’s life to always be remembered . . .

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Kelly’s Kontributions

The Most Expensive Disorder? Clauw on the FM/CFS-ness of Chronic Illness
https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1112e&L=co-cure&T=0&P=456
The Reason Fibromyalgia & Chronic Fatigue Syndrome "Bring Friends"
https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1201a&L=co-cure&T=0&P=495
Integrative medicine expert Dr. Alex Vasquez releases innovative new book on fibromyalgia.
https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1201a&L=co-cure&T=0&P=2287
Delineating psychological and biomedical profiles in a heterogeneous fibromyalgia population using cluster analysis.
https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1201a&L=co-cure&T=0&P=648
Health and distress predictors of heart rate variability in fibromyalgia and other forms of chronic pain.
https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1201a&L=co-cure&T=0&P=316
Brain dysfunction in fibromyalgia and somatization disorder using proton magnetic resonance spectroscopy: a controlled study.
https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1201b&L=co-cure&T=0&P=252

My Secret Weapon: Pre-Emptive Rest

http://www.cfidsselfhelp.org/library/my-secret-weapon-pre-emptive-rest

Illness and Housekeeping

http://www.cfidsselfhelp.org/library/illness-and-housekeeping

Finding Support Groups and Doctors

http://www.cfidsselfhelp.org/library/finding-support-groups-and-doctors

Lack of Support: "My Family Doesn't Understand"

http://www.cfidsselfhelp.org/library/relationships

Is Sleep Associated With Fibromyalgia?

http://www.myfibro.com/news/research/is-sleep-associated-with-fibromyalgia?utm_source=twitterfeed&utm_medium=twitter&utm_campaign=Feed%3A+myfibro%2Fmain+%28My+Fibro%29

Possibilities from May 2011

http://www.imj.ie/ViewArticleDetails.aspx?ArticleID=3654
http://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1105b&L=co-cure&T=0&F=&S=&P=3815
http://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1105b&L=co-cure&T=0&F=&S=&P=1075
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FMS Conference, Easter Weekend 6^th-9^th April

For the first time – day passes are available. Limited number available. If you aren’t attending the conference with full board you can attend as a day visitor. Read the latest news here: www.fms-sas.co.uk/Conf12/Conf_Bulletin_12-03.doc

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Akvamin – The natural way to improve bone, muscle and joint health

Akvamin is a product for both men and women in all ages. It has to date 5 internationally published studies (PubMed) and a total of 8 studies made which displays Akvamin’s good effects.

http://akvamin.com/?lang=en&gclid=CLfw0ILA0q0CFUhrfAodU0zAnA

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9 Natural Anti-Inflammatory Herbs You May Not Know

Fix your inflammatory conditions naturally with these healing anti-inflammatory herbs

http://theconsciouslife.com/9-natural-anti-inflammatory-herbs.htm?mid=57

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Dr Myhill on Fibromyalgia and Mitochondrial Dysfunction

Dr. Sarah Myhill is a UK-based physician with a special interest in fatigue and nutrition. Her pioneering research (“Chronic Fatigue Syndrome and Mitochondrial Dysfunction”) suggests the cells’ energy generating mitochondria are dysfunctional in ME/CFS – a situation that can produce various symptom clusters, including: a) blood flow/vascular abnormalities such as orthostatic intolerance, b) the widespread pain and sensitization most typical of fibromyalgia syndrome, and c) fatigue, exhaustion & brain fog.

http://www.prohealth.com/library/showarticle.cfm?libid=16720

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Fibromyalgia – an article by Larry McMahon

Well first of all, it’s what I call a “mystery illness” – inasmuch as the medical profession generally have neither an explanation nor a cure for it. Sufferers experience extreme pain in the muscles and joints, along with extreme exhaustion and other symptoms. Sometimes the pain can move around to different parts of the body. But the baffling thing is, that when tests, scans or x-rays are taken, nothing shows up !

http://www.larrymcmahon.com/morearticles.html#Fibromyalgia

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Coping With Fibromyalgia at Home

Simple strategies can make fibromyalgia manageable at home

http://www.everydayhealth.com/fibromyalgia/coping-physically/fibromyalgia-at-home.aspx?mid=57

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Chronic Pain and Depression: Managing Pain When You’re Depressed

Living with chronic pain should be enough of a burden for anybody. But pile on depression -- one of the most common problems faced by people with chronic pain -- and that burden gets even heavier.

http://www.webmd.com/depression/managing-pain?ecd=wnl_fib_011712

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CHRONICLES OF FIBROMYALGIA

Chronicles Of The Ups & Downs & Sideways Progress Of A Female Living With Fibromyalgia ©

One of many Fibromyalgia blogs.

The Breakable Bonds Of Friendship

http://networkedblogs.com/sOwjT

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DWP to recognise fibromyalgia as a real disability - e-petition

Please sign this petition to get FM recognised as a disability by DWP

http://epetitions.direct.gov.uk/petitions/12627?mid=57

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Barriers to getting work - Survey

This survey is being undertaken by Voluntary and Community Action Chichester District and is part of a piece of work being undertaken by Chichester in Partnership (the local strategic partnership). The partnership is assessing the barriers to people accessing work and investigating what support would best help people.
If you are a resident of Chichester District (or an organisation supporting people in Chichester District) and you are currently out of work we would appreciate your support in answering this short survey. All individuals will remain anonymous.
Please complete this survey by Friday 3rd February.

http://www.surveymonkey.com/s/FSYSDJ3

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Bond Holidays Newsletter

The 65 bedroom fully accessible hotel is the largest family run fully accessible hotel in the North West, possibly even the UK and with it we are proud to provide an amazing party atmosphere that you will struggle to find elsewhere. Whether you are choosing to visit us for a holiday or a respite break using our Holidays With Care team we aim to provide you with memories you will cherish forever. From the sounds of Abba or Elvis to the Stars Of Coronation Street there is always plenty going on at the hotel. Our Bank Holiday Specials even provide FREE tickets to some of Blackpool’s best attractions!

http://login.bananamail.co.uk/new/viewnewsletter2.aspx?SiteID=9375&SID=6&NewsletterID=335016

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New pension and benefit rates for 2012–2013

Details of next (this) year's pensions and benefits rates have been announced. The new rates will be paid from April 2012.

www.direct.gov.uk/en/Nl1/Newsroom/DG_200634?mid=57

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That’s it then! Hope you have a happy pain-free week. If you have any tips and suggestions or useful websites to aid fibro survival, do let me know.

Best regards

Stella

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Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr.

Past issues of FMSSAS eNews can be found at www.fms-sas.co.uk/fmseNews.html and on a blog at http://fmssas-enews.blogspot.com/

FMSSAS eNews 12.01.14

2012-01-13T15:17:00.001-08:00

Hello again

It’s been a bit colder today than of late. The flora of the gardens and countryside thought it was spring already and burst into bloom. Hope they don’t regret it! I am posting this late on Friday night because tomorrow the trustees meet in Chichester. I shall be out all day. Hence my diligence in getting this eNews to you early!

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WORDz FOR THE WEEK

53. Every day may not be good, but there’s something good in every day.

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Worthing Fibro Newsletter for January

www.fms-sas.co.uk/PDF/WorthingFibroNews1201.pdf

Reminder paper

www.fms-sas.co.uk/PDF/WorthingFibroNews1201a.pdf

See all past issues

www.fms-sas.co.uk/WorthingNewsletters.html

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MANAGING FIBROMYALGIA

Fibromyalgia and the Power of D

http://hosted.verticalresponse.com/790349/de2004b7b2/1470670689/c4d29ef80f/

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Cheap & Easy Home Remedies for Fibromyalgia & Chronic Fatigue Syndrome

Fibromyalgia (FMS) and chronic fatigue syndrome (ME/CFS) come with dozens of symptoms that can range from annoying to debilitating. Treatment regimens are generally aimed at the worst of them, but so far we don't have any treatments that relieve all of our symptoms.

Where treatments leave off, self-management takes over. You have a lot of simple, low-cost options for managing these leftover symptoms.

http://chronicfatigue.about.com/od/treatingfmscfs/ss/Cheap-And-Easy-Home-Remedies-For-Fibromyalgia-And-Chronic-Fatigue-Syndrome.htm

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The government's disability benefit reforms

No apologies for the number of items under this heading – it is important:-

Mayor Boris Johnson victim of DLA con trick

London Mayor Boris Johnson is just one of thousands of individuals and organisations whose overwhelming opposition to axing disability living allowance has been grossly misrepresented by the government in an effort to force through the highly controversial change. Read more:

http://www.benefitsandwork.co.uk/news/latest-news/1507-mayor-boris-johnson-victim-of-dla-con-trick?utm_source=iContact&utm_medium=email&utm_campaign=Benefits%20and%20Work&utm_content=boris

Government 'misleading' over disability benefit consultation

Research to be published on 9 January 2012 will show massive opposition to the government's disability benefit reforms, and expose the coalition's masking of the results of its own consultation on the Disability Living Allowance (DLA).

http://www.ekklesia.co.uk/node/16005?mid=573

Responsible Reform, A Report on the proposed changes to Disability Living Allowance

http://www.benefitsandwork.co.uk/benefitsinfo/responsible_reform.pdf?utm_source=iContact&utm_medium=email&utm_campaign=Benefits%20and%20Work&utm_content=boris

Revealed: New Report shows overwhelming opposition to coalition’s disability benefit reforms kept hidden by the government

http://tinyurl.com/86h82gb

Disabled people listened to on welfare plans? It's a government sham

http://www.guardian.co.uk/commentisfree/2012/jan/08/disabled-people-welfare-reform-sham?INTCMP=SRCH

The UK’s Welfare Reform Bill has to be responsible says Margo Milne

http://www.patient-experience.com/index.php/the-uks-welfare-reform-bill-reform-has-to-be-responsible-spartacusreport-says-margo-milne/?mid=574

Other links to articles about DLA reform

http://www.ekklesia.co.uk/disabilitylivingallowance

Welfare Reform

The Scottish Government set out its opposition to proposed changes to the welfare system.

http://www.scotland.gov.uk/News/Releases/2011/12/21150319

Lords inflict triple welfare bill defeat on government

Campaigners win House of Lords votes on Employment and Support Allowance

http://www.guardian.co.uk/society/2012/jan/11/lords-welfare-bill-defeat-for-government

Save Disability Benefits and Services

Including: Sign Pat’s petition if you haven’t already done so.

http://carerwatch.com/reform/

Benefits and Work Newsletter

Huge ESA victory – now you have till Tuesday to save DLA

http://www.benefitsandwork.co.uk/news/latest-news/1510-12-january-newsletter

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What is FibroTV?

FIbroTV is a weekly Podcast designed to bring the chronic Illness and chronic pain community together in a POSITIVE way. It is a place to educate family, friends, the public about fibromyalgia.

http://fibrotv.com/about-fibrotv/

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Spend and Raise

Help raise money for our charity when you shop online

http://www.spendandraise.com/fmssas/

Latest offers

http://buy-news.at/N8T-NLU0-953A4AC1BE/cr.aspx

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Give as You Live Newsletter

Another opportunity to raise money for FMSSAS when you shop online.

http://email.everyclick.com/interface/external_view_email.php?W917140929773115032421736401513

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Easy Fundraising

Find & remind toolbar to boost funds raised by easyfundraising. Easyfundraising is offering a 50p donation to the individual's charity simply for downloading and installing the toolbar. Easy money! If everyone who receives this does it we would raise over £225. So will you?

http://www.easyfundraising.org.uk/find-and-remind/

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10 Things to STOP Doing to Yourself With Fibromyalgia & Chronic Fatigue Syndrome

When you have a chronic illness like fibromyalgia and chronic fatigue syndrome, you've got enough working against you - you don't need to make things worse for yourself!

http://chronicfatigue.about.com/b/2012/01/10/10-things-to-stop-doing-to-yourself-with-fibromyalgia-chronic-fatigue-syndrome.htm

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Bond Holidays

You can check out our fantastic range of holidays for people with disabilities and special needs. Wherever you choose to stay, you are guaranteed great service, great value and a great time. We have always offered some of the best accessible holidays in the business, but we've expanded to offer a wider selection of disabled holiday options than ever before, but whatever you choose, you can be sure of a very warm welcome, and that our commitment to disabled guests with special needs will always be our top priority. Bond Hotels in Blackpool and St Anne’s. Coach travel available.

http://www.bondhotel.co.uk/

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FMS Conference Easter Weekend 6^th-9^th April 2012

It’s not too late to book. See the latest Conference Bulletin. www.fms-sas.co.uk/Conf12/Conf_Bulletin12-02.doc

Contact Simon fibcon2012bookings@gmail.com or phone 0844 887 2508 or 07806 8088862 for more information.

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I must away now. Have a good week-end, and a good week. I’ll be back next Saturday.

Fondest wishes

Stella

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Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr.

Past issues of FMSSAS eNews can be found at www.fms-sas.co.uk/fmseNews.html and on a blog at http://fmssas-enews.blogspot.com/

FMSSAS eNews 12.01.07

2012-01-07T03:24:00.000-08:00

Hello everyone!

Well, the New Year has dawned. WELCOME TO 2012. I would like to remind you that this and all past issues of FMSSAS eNews are available here www.fms-sas.co.uk/fmseNews.html and from March 2011 onwards they are also on a blog at http://fmssas-enews.blogspot.com/ The information that I have accumulated is there for reference in case you need it. You can also become a ‘FOLLOWER’ of the blog and you can respond by posting a comment if you wish. General participation will be welcome. You may like to post information about treatments you have found useful, or ones you have not! Make comments about any of the items that are in the relevant eNews. Ask questions of other followers and get to feel you BELONG. We also have a Message Board at http://fms-sas.proboards.com/ where you can air your views, ask questions, answer others', offer/seek advice, make friends. Do make use of these facilities.

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WORDz FOR THE WEEK

52. We all have problems; the way we solve them is what makes us different.

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Kelly’s Kontributions

Cold Hands & Feet: Fibromyalgia, Chronic Fatigue Syndrome or Raynaud's?

https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1112c&L=co-cure&T=0&P=896

Development and Testing of the Fibromyalgia Diagnostic Screen for Primary Care.

https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1112c&L=co-cure&T=0&P=1939

Responses to Exercise Differ For Chronic Fatigue Syndrome Patients with Fibromyalgia

https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1112c&L=co-cure&T=0&P=196

From Defiance to Discipline: How I Found Freedom Through Acceptance and Adaptation

http://www.cfidsselfhelp.org/library/from-defiance-discipline-how-i-found-freedom-through-acceptance-and-adaptation

Obstacles to Pacing & How to Overcome Them

http://www.cfidsselfhelp.org/library/achieving-consistency

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Infrastructure Network for Disability Information (INDI)

INDI South East shares disability related information, skills, resources and knowledge amongst VCS organisations to help improve the opportunities they provide for disabled people.

Use the directory to help you find other organisations working in a similar location or field throughout the South East region.

http://www.indi.org.uk/directory.php

Government's Crimestoppers campaign 'could fuel disability hate crime'

http://www.indi.org.uk/docs/Government%20crimestoppers.pdf

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Pilates and Yoga for Chronic Pain and Fibromyalgia

Exercise is a crucial component to optimally managing fibromyalgia symptoms. However, exercise as it is commonly prescribed, often results in a flare of pain, fatigue, poor sleep and low mood. Two recent studies report that the average 40 y/o with fibromyalgia has fitness findings expected for a healthy 80 y/o. The good news is that the spiral of deconditioning can be reversed without inducing a symptom flare. The fibromyalgia research team at OHSU are pain researchers and clinicians who have developed and tested multiple exercise programs for people with chronic pain and fibromyalgia over the last 3 decades. We film real patients completing the exercise routines and offer them to you for home exercise on DVD. Our latest DVD is Pilates and yoga.

http://www.myalgia.com/VIDEOS/Pilates_Yoga_B_info.htm

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Vitamin D is better than ANY vaccine and increases the immune system by 3-5 times

Get your quota from sustenance, sunshine or supplements! Watch this video:-

http://www.youtube.com/watch?v=xdLNMEXWTL8&sns=fb

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Alternative Fibromyalgia Syndrome Therapies: Tai Chi

Tai chi is a form of alternative treatment for fibromyalgia syndrome. Tai chi exercises are based on unique tai chi movements that are known to provide a variety of health benefits. As such, tai chi exercises can be beneficial in the treatment of fibromyalgia. But what exactly is tai chi and how can this alternative fibromyalgia therapy help to alleviate common symptoms of fibromyalgia?

http://www.fibromyalgia-symptoms.org/fibromyalgia_tai_chi.html

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Work Capability Assessment independent review – year two

The Work Capability Assessment (WCA) was introduced in October 2008 to assess entitlement to Employment and Support Allowance (ESA). Section 10 of the Welfare Reform Act 2007 commits the Secretary of State to lay an independent report before Parliament each year for the first five years of operation.

http://www.dwp.gov.uk/policy/welfare-reform/employment-and-support/wca-independent-review/

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I hope this is enough to be going on with! More next week, all being well. Things are going well for me, I am managing to walk a little without sticks now!

Fondest wishes to you all

Stella

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Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr.

Past issues of FMSSAS eNews can be found at www.fms-sas.co.uk/fmseNews.html and on a blog at http://fmssas-enews.blogspot.com/

FMSSAS eNews 11.12.31

2011-12-31T03:22:00.001-08:00

Hi fibro friends

It seems that I am able to deliver, business as usual. Hopefully I will be able to keep up the eNews for you, and find things that give you hope and help you manage your fibromyalgia. Thanks to the many of you who have sent me good wishes both for a speedy recovery and with seasonal greetings.

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WORDz FOR THE WEEK

51. The greatest mistake you can make in life is to continually fear you will make one.

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Fibromyalgia can no longer be called the 'invisible' syndrome (Not new but still relevant)

Published: Monday, November 3, 2008 - 09:21 in Health & Medicine

Using single photon emission computed tomography (SPECT), researchers in France were able to detect functional abnormalities in certain regions in the brains of patients diagnosed with fibromyalgia, reinforcing the idea that symptoms of the disorder are related to a dysfunction in those parts of the brain where pain is processed.

http://esciencenews.com/articles/2008/11/03/fibromyalgia.can.no.longer.be.called.invisible.syndrome

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“Funnily Enough” By Sophie Neville

View this Author's Spotlight Ships in 5–7 business days

Hardcover, 387 pages Preview Price:

£12.60

From the glamorous world of television production, working on some of the BBC's hottest soap operas, dramas, and educational programmes - Sophie is torn between her love of Africa, and returning to England for the sake of her career. But when she falls ill on the set of a show she is directing, she is forced to take to her bed, and over the next ten months, to take stock of her life. It sounds like a novel. But it isn't. Diagnosed in 1991 with Chronic Fatigue Syndrome, Sophie's doctor at the BBC prescribes an extraordinary treatment: write a diary. So, armed with her watercolours, and with the support of her family, friends, dogs and otters in rural Gloucestershire, she sets out on a spiritual journey which is at times funny, poignant and uplifting.

http://www.lulu.com/spotlight/sophieneville

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Is Sensory Overload Part of Your Fibro?

You expect to have painful muscles everywhere with fibromyalgia. Even if your discomfort fluctuates from day to day, this symptom is always present. The pain of fibro is amplified as though the volume control knob is turned up as high as it could go. But there is much more to fibromyalgia than just the pain. Chances are, you have other sensory-related symptoms that are roaring off the charts and making your fibro all the more difficult to manage.

http://www.fmnetnews.com/free-articles/article-samples/sensory-overload

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Living With Chronic Pain

Slideshow: 10 Daily Habits to Reduce Chronic Pain

http://www.webmd.com/pain-management/chronic-pain-11/slideshow-pain-tips?ecd=wnl_cbp_122211

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Worthing Support Group Newsletter

Apologies for lateness

www.fms-sas.co.uk/PDF/WorthingFibroNews1112.pdf

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Diagnosing Fibromyalgia: Common Misdiagnoses

The symptoms of fibromyalgia are similar to many other diseases.

http://www.webmd.com/fibromyalgia/fibromyalgia-what-you-need-to-know-10/fibromyalgia-common-misdiagnoses?ecd=wnl_fib_121311

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Fibromyalgia & Chronic Pain LIFE 2012 January-February Issue

Access to previous editions also available.

http://fmcpaware.org/fibromyalgia-a-chronic-pain-life-januaryfebruary-2012

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Fibromyalgia and Crohn’s Disease
Though not very common, some people with fibromyalgia symptoms also appear to have Crohn’s disease. They experience extreme gastrointestinal side effects, which may be the result of an immune system that has been compromised by fibromyalgia. The link between fibromyalgia and Crohn’s disease appears to be irritable bowel syndrome (IBS). IBS is a less serious form of IBD, and possibly a precursor to Crohn’s disease in some fibromyalgia patients.

http://www.fibromyalgia-symptoms.org/fibromyalgia_crohns.html?mid=564

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As today is the last day of 2011, I wish you and yours all that is good for 2012. Let us hope for a breakthrough in research and that something really effective is discovered in pain relief or cure for fibro.

My fondest wishes to you all

Stella

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Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr.

Past issues of FMSSAS eNews can be found at www.fms-sas.co.uk/fmseNews.html and on a blog at http://fmssas-enews.blogspot.com/

FMSSAS eNews 11.12.17

2011-12-17T03:47:00.000-08:00

Hello to everyone!

Here I am again, post-operative and increasingly operational. Am walking with two walking sticks, leg still painful but dosed up on painkillers - am coping. This is the first time I have switched on the computer since arriving home on Monday. I have hardly attempted to catch up on emails – over 300 of them piled up, so they will have to wait. If you have sent one of them, I thank you, and apologise for not acknowledging it – yet.

I was treated extremely well at the Horder Centre. I would thoroughly recommend it to anyone needing orthopaedic surgery. http://www.hordercentre.co.uk/ Although a private, charity based hospital they do take NHS patients if referred by the patient’s GP and you can select it through the Choose and Book system.

I did check the emails for anything from Kelly. Fortunately she has a great list for you this week. She offers apologies if any are duplicates of previous issues. I haven’t checked them.

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WORDz FOR THE WEEK

50. We do not know the value of our moments until they have become a memory.

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Kelly’s Kontributions

Relationship between body mass index, fat mass and lean mass with SF-36 quality of life scores in a group of fibromyalgia patients.
https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1111c&L=co-cure&T=0&P=5176 The interest of gait markers in the identification of subgroups among fibromyalgia patients.
https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1111c&L=co-cure&T=0&P=6139 .
Women with FMS have lower levels of calcium, magnesium, iron and manganese ...
https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1111c&L=co-cure&T=0&P=7698 .
ME/CFS and Fibromyalgia Information Exchange Forum
https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1111d&L=co-cure&T=0&P=8440 .
Cardiac autonomic impairment and chronotropic incompetence in fibromyalgia
https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1111d&L=co-cure&T=0&P=6097 .
Early Life Adversity as a Risk Factor for Fibromyalgia in Later Life.
https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1111d&L=co-cure&T=0&P=7675 .
Fibromyalgia And Chronic Fatigue Syndrome In Children
https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1111d&L=co-cure&T=0&P=7820 .
Genetics and Gene Expression Involving Stress and Distress Pathways in Fibromyalgia with and without Comorbid Chronic Fatigue Syndrome
https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1111d&L=co-cure&T=0&P=5187 .
Sex With Fibromyalgia& Chronic Fatigue Syndrome
https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1111e&L=co-cure&T=0&P=939 .
Sleep Apnea: Adjusting to CPAP With Fibromyalgia
https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1112a&L=co-cure&T=0&P=1645 .
Evidence of central inflammation in fibromyalgia - Increased cerebrospinal fluid interleukin-8 levels
https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1112a&L=co-cure&T=0&P=2737 .
Neurobiology underlying fibromyalgia symptoms
https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1112a&L=co-cure&T=0&P=2329 .
Sleep as a window into the world of fibromyalgia syndrome
https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1112a&L=co-cure&T=0&P=2605 .
The clinical concept of fibromyalgia as a changing paradigm in the past 20 years
https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1112a&L=co-cure&T=0&P=2450 .
Effect of Low-Dose Amitriptyline on Autonomic Functions and Peripheral Blood Flow in Fibromyalgia: A Pilot Study
https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1112b&L=co-cure&T=0&P=2588 .

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I hope to get back to my own research before long. Please bear with me until I am coping with life better. Meanwhile, have a great Christmas.

Luv to you all

Stella

http://ak.imgag.com/imgag/product/preview/flash/bws8Shell_fps24.swf?ihost=http://ak.imgag.com/imgag&brandldrPath=/product/full/el/&cardNum=/product/full/ap/3166187/graphic1

If link does not work copy and paste into your web browser.

Wordz for the Week are from Wordz for the Day by Donnie Kuhn, Sr.

Past issues of FMSSAS eNews can be found at www.fms-sas.co.uk/fmseNews.html and on a blog at http://fmssas-enews.blogspot.com/