Saturday 24 November 2012

FMSSAS eNews 12.11.24



Hello once again
How the weeks roll by!  This is the last Saturday in November.  Only 25 shopping days, or 30 if you count Sundays, till Christmas. - give or take!  Pace yourself over this time, plan out your preparations and avoid stress at all costs.
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WORDz FOR THE WEEK
94.  Childhood: That happy period when nightmares occur only during sleep.
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Will you vote for our photo?
The Fun with Fibro photo that the Horsham Group entered in the FMSSAS Competition has been entered in the Feeling Fibro Comp run by FibroModem.   
Click on View Entries, Click on our entry ‘Fun Despite Fibro’, you can read DETAILS if you wish, then VOTE - once per day!  Thank you.
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Universal Credit: Government must ensure plans protect most vulnerable, say MPs
In a report published today, 22 November 2012, "Universal Credit implementation: meeting the needs of vulnerable claimants", the Work and Pensions Committee concludes that the Government has designed a welfare system which should help ease the transition from benefits to work, but warns that significant concerns remain about the potential impact of the changes on some of the most vulnerable benefit claimants. It urges the Government to reflect on its ambitious implementation timetable.
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Motability admits it might have to take back 100,000 vehicles
Motability has admitted that up to 100,000 disabled people could have to hand back the vehicles they lease under its car scheme, because of the government’s cuts and reforms to disability living allowance (DLA).
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Create a Social Life
Supportive social contact is a huge buffer against a chronic illness like fibromyalgia, says Connie O’Reilly, Ph.D., of Beaverton, OR. But couples may have to rethink and recreate a social life based on new realities. On an individual basis, patients may need to consider new pastimes that are fun but don’t drain their energy bank or overwork sore muscles (see the article on New Hobbies).
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 Weekly Ultrasound Plus TENS Cuts Pain in Half
The two most common treatments for musculoskeletal pain used by physical therapists are ultrasound and transcutaneous electrical nerve stimulation (TENS). Ultrasound works by emitting sound waves from a hand-held wand that penetrates between 1 and 2 inches deep into soft tissue, such as your muscles. These sound waves can increase heat and improve circulation in the region, relax muscles, and heal tissues. TENS units work by applying two pads placed on the skin across a painful area. The small unit emits an electric signal believed to ease discomfort by activating the natural opioid pain-relieving system in the spinal cord.
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Test results and what they mean
Dr Sarah Myhill explains various medical tests and how test results are often not properly interpreted. The reasons why this happens are to be found in this link:
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What Doctors Don’t Tell Tou about Fibromyalgia
A plethora of articles about fibromyalgia.
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Need Help Repairing Leaky Gut Syndrome, Improving Immune Support, & Reducing Inflammation?
Poor immune function, inflammation, and intestinal permeability (AKA – leaky gut) are common problems for those with gluten sensitivity.  How does gluten break down immune function?  Let’s look at this in closer detail. 
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The Term Gluten is Evolving as More & More Research is Done
I (Dr Peter Osborne) was recently invited to speak about gluten and food allergies on Fox News.  In the interview, I discuss some of the newer research pertaining to gluten sensitivity.  Additionally, I discuss how many legumes (soy, peanuts, etc) can create the same type of damage as gluten.  I also referred to a new research study has identified 2  forms of corn gluten that trigger an immune response in patients with gluten sensitivity.  You can watch the video here:
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 Protect Yourself Against the Cold and Flu…
Boost Your Immunity Naturally Without a Flu Shot
Vitamin D Therapy Protocol
I Recommend this protocol as a safe alternative to the flu vaccination.  It also works very well for those with active viral and bacterial infections.  You can use this protocol at the first sign of the flu or as a prophylactic natural flu shot.  If using in this way, I recommend taking your first regimen the first week of school followed by a second regimen in mid December.  You should consider seeing your doctor to have your 25 OH D levels (a simple blood test)  measured as well.
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Are You Unknowingly a Victim of Unnecessary "Adrenal Fatigue"?
Do you feel constantly tired, moody and depressed? Do you wake up feeling tired even after a full night’s rest? Do you crave sugary and salty foods, and depend on your morning coffee just to keep your eyes open?
These are all common symptoms of adrenal fatigue -- a condition caused, in short, by too much stress and work. It’s estimated that up to 80 percent of adults suffer from adrenal fatigue, yet it continues to be a largely ignored and overlooked health problem, according to
Dr. James Wilson, author of "Adrenal Fatigue: The 21st Century Stress".
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The Four Types of Foods That ZAP Your Brain Power the Most
Do you ever feel foggy after lunch? Can't think straight after certain meals? It's not all in your head. The food you eat has a very real, and very significant, impact on your mind -- including your ability to think clearly.
"There are certain nutrients that are important for a healthy brain and there are certain foods that you need to avoid, such as alcohol, because they destroy brain cells," says Dr. John Westerdahl, director of Wellness and Lifestyle Medicine for Castle Medical Center in MidWeek.
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Have a great weekend, despite the rain that seems to be falling everywhere.  Hope you don’t get flooded.
My fondest wishes to you all
Stella
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N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.
Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.
I also include various awareness and local issues as well as general health considerations.    Anyone wishing to reproduce any of the above items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr.
Past issues of FMSSAS eNews can be found at www.fms-sas.co.uk/fmseNews.html and on a blog at http://fmssas-enews.blogspot.com/




Saturday 17 November 2012

FMSSAS eNews 12.11.17



Hello again
More stuff on welfare benefits, a never ending saga.  Lots about FM.  Raise money for us when you shop online.  And gluten free article.  All food for thought!
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WORDz FOR THE WEEK
93.  Life is like photography;  we leave the  negatives to develop.
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Disability Roulette
Imagine you work for a big national company. They don’t pay very much and you struggle to make ends meet.
One day, the manager comes into the office and announces that the company needs to save money and with immediate effect, they will no longer be paying 20% of their staff.
Continue reading this analogy
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Repeal the Welfare Reform Act 2012 – Sign this new Petition
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Fibromyalgia & Chronic Pain LIFE Magazine
To purchase a Fibromyalgia & Chronic Pain LIFE print bi-monthly magazine subscription, please click here.
To receive Fibromyalgia & Chronic Pain LIFE digital bi-monthly magazine free, please register here. Digital version and print-on-demand available after registration.
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Fibro Out-of-Control?
… two experts offer treatment advice
Is your fibromyalgia becoming more unmanageable and is staying awake during the day a constant struggle? Both of these situations can make you wonder, “What can I do to get out of this rut?” Two experienced clinicians describe common reasons for why fibro symptoms can worsen and offer their treatment advice to help you get back on your feet.
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Get Ahead of Winter Blues
Shorter days can alter your body’s metabolism, appetite, sleep schedule, and mood. All these changes can compound your fibro symptoms, but there are effective therapies to help.
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Is Sensory Overload Part of Your Fibromyalgia?
You expect to have painful muscles everywhere with fibromyalgia. Even if your discomfort fluctuates from day to day, this symptom is always present. The pain of fibro is amplified, as though the volume control knob is turned up as high as it could go. But there is much more to fibromyalgia than just the pain. Chances are, you have other sensory-related symptoms that are roaring off the charts and making your fibro all the more difficult to manage.
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What Fibromyalgia Feels Like
Fibromyalgia means widespread pain in the muscles, but this syndrome causes many other symptoms.1 Lab tests seldom validate your condition and the results often make you feel like a hypochondriac. Pressing on tender points can diagnose fibromyalgia, but the exam still does not explain all of your symptoms.2
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Online Christmas shopping
I want to share how you can donate to charity this Christmas - but at no cost to you. All you have to do is shop online, just like you probably already do.
It's simple, thousands of stores have signed up to donate a percentage of every online purchase to charity - at no cost to you. And it's not small stores; it's John Lewis, Amazon, Tesco - places we're shopping online already.
All you have to do is download Give as you Live (it takes seconds and is totally secure) and then shop online just like you already do.
www.giveasyoulive.com
I'm already raising money for Fibromyalgia Support for Surrey and Sussex and I want to invite you to join me. After all, it doesn't cost you anything.
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Gluten: Bad for us All!
Here we present you with the evidence of the universal harm of gluten.
Can the concept of a totally gluten-free world be turned into a practical and sustainable idea?
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So, there you have it!  Hope you found this issue of FMS eNews enlightening.
Cheers
Stella
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N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.
Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.
I also include various awareness and local issues as well as general health considerations.    Anyone wishing to reproduce any of the above items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr.
Past issues of FMSSAS eNews can be found at www.fms-sas.co.uk/fmseNews.html and on a blog at http://fmssas-enews.blogspot.com/




Saturday 10 November 2012

FMSSAS eNews 12.11.10



Hi there
More goodies 4 U!  Reports about the outcome of the new benefits assessments are sad news.  Here’s hoping the government will take notice.
More help with fibro, a valued member RIP, fibro photographic competition, website updates, etc.  Read, mark and learn!
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WORDz FOR THE WEEK
92.  “What we think of in the daytime is what we dream about at night”.  Guard your thoughts well my friend!! 
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Urgent - 73 Deaths Per Week – CUTS KILL
We need help to stop the 73 deaths per week and attacks on disabled people by government.
Sign Pat’s petition - http://epetitions.direct.gov.uk/petitions/38182
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Atos Bullies Killed My Dad, Says Boy 13
A GRIEVING boy of 13 has accused Atos of killing his disabled dad.
Kieran McArdle told the Daily Record in a harrowing letter how his father Brian, 57, collapsed and died the day after his disability benefits were stopped. He had been assessed by Atos and deemed “fit for work”.
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ESA Reaches a Tipping Point
Today, (6th Nov) pretty much as I type, the Government will release the first significant figures for the transfer of claimants from incapacity benefit to the new Employment Support Allowance (or ESA, via the feared and despised Atos WCA)
Finally, we will get to see how many people previously claiming Incapacity Benefit are being awarded the new benefit, how many are being awarded it for one year only, how many are told they are immediately fit for work and how many can look forward to the mythical  “support” that doesn’t actually exist for those told they need it to find work.
But it will show lots of other things too. . . . . .  Read on:-
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Government list of sites useful to Disabled people
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Why does walking barefoot on the earth make you feel better?
Do you notice you feel better when you walk barefoot on the Earth? Recent research has explained why this happens.
Your immune system functions optimally when your body has an adequate supply of electrons, which are easily and naturally obtained by barefoot contact with the Earth.  . . . . .
Earthing may be one of the most important overlooked factors in public health. When grounding is restored, many people report significant improvement in a wide range of ailments, including chronic fatigue.
These changes are rapid and often occur within 30 minutes.
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Chronicles of Fibromyalgia
From my pain I have found my purpose and share my journey to inspire hope. I seek not to be defined by what I have endured, but by what I have overcome. 4 pancreas attacks, CFS/ME, Fibromyalgia and 2 strokes, all before age 34! -- Leah Tyler
Chronicles of Fibromyalgia home page
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Fibromyalgia Slideshow: Fibro-Friendly Exercises
Start with stretching. It increases blood flow to the joints
and muscles, and can make it easier to move.
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Pain Relief from ME/CFS and Fibromyalgia
Webinar - Tuesday, 20th November, 2012, 7 PM - 8:30 PM GMT
This webinar covers strategies, tools and techniques that allowed Ali Christensen to overcome the problems associated with ME/CFS.
If you are a fellow sufferer of ME/CFS, then you'll know how bad it can be.
In this webinar, Ali and Mark will share with you Ali's story together with practical help to get you back on your feet again.
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Secrets to Recovery - Your Roadmap to Optimum Health
It’s been five years in development, includes over 100 hours of content from some of the world’s leading practitioners, and is at the lowest ever price… Secrets to Recovery V3.5 has just launched!  There’s lots of free stuff on the site as well
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Could your DNA provide a clue to the reason for fibromyalgia? 
Be part of the largest genetic study ever conducted into fibromyalgia…
Are you fed up with poor treatment of chronic pain? We will be able to devise better therapies only with improved understanding of the biology of pain. We are exploring the genetics of chronic pain by:-
·         collecting 2000 samples of DNA from people with fibromyalgia/chronic widespread pain
Volunteers urgently needed! We will ask you simply to
·         fill in a pain questionnaire about you and your symptoms
·         donate a blood sample at your surgery (we will send the blood taking kit)
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Royal National Hospital for Rheumatic Diseases to join with Royal United Hospital
 It is our intention that in 2013 the RNHRD, known locally as the ‘Min’, will join with the RUH. Work has started on how best to bring the two organisations and services together, taking into account the view of patients, patient groups, staff and other NHS organisations. In the meantime we remain fully operational and patients will continue to receive the high quality care they require. Joining with the RUH is good news for all as it provides a strong basis for our specialist services to go forward.
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Stuart Harcus RIP
It came as a shock to me to find that Stuart (aka Matthew) Harcus has died.  It was announced on Facebook.  He was very diligent in running our message board and despite his disabilities always seemed to find positive things to do.  His funeral will take place at Worthing Crematorium (Findon) on Friday November 16th at 2.20pm.  He has asked that any attending should wear red.
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Photo Competition with FibroModem
It's 6 months until International Fibromyalgia Awareness Day; but we need to continue spreading awareness. Take a photo that represents how you feel about Fibro, or how Fibro makes you feel and upload it in digital form right here. The winner will be decided by a public vote.
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FMSSAS Website update
I have been updating the website! 
1.      The Home Page has some new kinks to draw your attention to some pages that might have been in hiding! www.fms-sas.co.uk
2.      Treatments and Therapies has had some additions. www.fms-sas.co.uk/fmst&t.html You might find both old and new entries useful.
3.      Members’ Fibro Stories www.fms-sas.co.uk/fmsstories.html gives 26 stories!  The latest one is from Amanda,  www.fms-sas.co.uk/fmsAmanda.html
4.      New Groups www.fms-sas.co.uk/fmsnewgroups.html is useful if you are considering forming one.  Updated with new liaison officer.
5.      FIBCON 2013 www.fms-sas.co.uk/fmsConf13.html (or through the large graphic).
6.      Our revised information leaflets are now available.  General leaflet www.fms-sas.co.uk/PDF/infoleaflet.pdf  For support groups with space to add local contact info www.fms-sas.co.uk/PDF/infoleaflet.groups.pdf
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May you always have love to share, health to spare, and friends that care.
Until next time
Bye for now
Stella
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N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.
Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.
I also include various awareness and local issues as well as general health considerations.    Anyone wishing to reproduce any of the above items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr.
Past issues of FMSSAS eNews can be found at www.fms-sas.co.uk/fmseNews.html and on a blog at http://fmssas-enews.blogspot.com/