Saturday 31 March 2012

FMSSAS eNews 12.03.31


 Greetings
I had more for you this week than appears below, but sadly my computer closed down before I had saved it, so some of it got lost.  There’s quite a bit left though so I’m glad all is not lost!  So make the most of what there is.
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WORDz FOR THE WEEK
64.   A mistake is only a mistake when you don’t learn from it.  Otherwise, it’s considered a lesson.
I learnt a lesson – save more often!!
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Brain scans detect fibromyalgia!
Yes!! Finally a physical finding to say that fibromyalgia is a disease that’s not psychosomatic.
The Dr. Oz show that was aired on 3/12/12 showed a picture of a brain scan of someone with fibromyalgia.  That scan showed an area down the center of the brain and across the top of the frontal cortex in a bright blue.  It was explained that this area of the brain had a very low blood supply.  It was also explained that this was the area of the brain that was directly connected to pain processing and emotional responses to pain.  No wonder the brain doesn’t know when to shut off its pain sensors, it’s not nourished. The scan that detects these changes in brain function is called a photon emission computed tomography (SPECT) scan. It’s nice to know that brain scans detect fibromyalgia.
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New York Times – Fibromyalgia overview
Fibromyalgia is a common syndrome in which a person has long-term, body-wide pain and tenderness in the joints, muscles, tendons, and other soft tissues.
Fibromyalgia has also been linked to fatigue, sleep problems, headaches, depression, and anxiety.
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What You Need To Know About Sleeping Pills
When your having trouble sleeping it’s tempting to reach for a sleeping pill my doctor prescribed, but is it really a good idea? The biggest problem with sleeping aids, both over-the-counter and prescription medications, is they won’t uncover the cause of sleeplessness. In fact, research shows taking both OTC and prescribed sleeping aids may make the problem worse. Here’s why:
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Sleep disorders overview
Sleep problems, including snoring, sleep apnoea, insomnia, sleep deprivation and restless legs syndrome, affect millions of people in the UK. It's important to understand why sleep is necessary for optimal health, how the natural hormone melatonin affects sleep and wakefulness, and how the different states and stages of sleep impact our sleep quality, quantity and dreams.
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Living with Pain: Helpful versus Unhelpful Social Support
All of us need social support. Your chronic pain may make you feel more needy. You may believe that you need more than your share of support… or more than your family, friends, or co-workers have to offer. At the same time, you may feel that the support that you receive isn’t always what you need, or that it makes you feel worse.
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Changing the Conversation About Pain Survey
APF is committed to you. Help us gather more information that will allow APF to better serve you and provide information that is targeted to meet your needs.
Would you be willing to participate in an interactive website that provides more information about access to pain care, finding support in your community, proposed or existing policies that affect pain care as well as stories about you and fellow APF members?
If you are living with pain, please complete this survey by April 6, 2012.
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10 Spring Stress Beaters
"This is the time when birds and butterflies are migrating northward, the days are growing longer and warmer, the trees are budding, the crocuses are in bloom, and our spirits somehow feel lighter. Here, to help you celebrate, we offer 10 timely tips for embracing a less stressful lifestyle.
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Next weekend I will be at the FMS conference in Chichester so I will not promise an eNews for Easter.  If I have time I will send out something on Thursday, or Friday morning before I leave.   I will take this opportunity to wish you all a very happy Easter, just in case!.  If you have been knitting squares and if you are going to be at the conference, please bring them with you and give them to me there.  I look forward to meeting up with any of you who will be attending.
Best regards
Stella
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N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.
Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.
I also include various awareness and local issues as well as general health considerations.    Anyone wishing to reproduce any of the above items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr.
Past issues of FMSSAS eNews can be found at www.fms-sas.co.uk/fmseNews.html and on a blog at http://fmssas-enews.blogspot.com/



Saturday 24 March 2012

FMSSAS eNews 12.03.24


Hello to you all
I know we desperately need rain, but I must say I have been enjoying the sunshine of late.  Quite a heat wave for March!  Approaching Crawley from Horsham the roadsides are banked with daffodils and they are a truly wonderful sight.  Today I noticed trees and hedges were showing embryonic leaves.  It makes one feel ALIVE!
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WORDz FOR THE WEEK
63.    Life is about change; sometimes it’s painful, sometimes it’s beautiful, most of the time . . . . it’s both.
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Kelly’s Kontributions
CFS, FM, ME 'Seasons of Hope' Awareness Postcards
"Fighting Fatigue"
Fatigue can have multiple causes. Learn how to fight back using a combination of strategies.
"Using CBT: A Success Story"
How one person used Cognitive Behavioral Therapy to treat Chronic Fatigue Syndrome.
Clinical dimensions of fibromyalgia symptoms and development of a combined index of severity: The CODI index.
Predictors of Clinical Pain in Fibromyalgia: Examining the Role of Sleep
Prevalence of Fibromyalgia Syndrome in Patients Referred to a Tertiary Pain Clinic
Restrictions in participation in women with fibromyalgia syndrome : An explorative pilot study
A mind-body technique for symptoms related to fibromyalgia and chronic fatigue
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The New Normal: Moving Beyond Illness
Find out how one woman found peace after a debilitating diagnosis – fibromyalgia.
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Skin Creams, Soaps and Lotions Marketed as Skin Lighteners and Anti-aging Treatments: May Contain the Toxic Metal, Mercury
Just in case!
A warning has been issued not to use skin creams, beauty and antiseptic soaps, or lotions that might contain mercury. The products are marketed as skin lighteners and anti-aging treatments that remove age spots, freckles, blemishes and wrinkles. Adolescents also may use these products as acne treatments. Products with this toxic metal have been found in at least seven states.
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Fibro Treatment
The most effective treatment approaches for fibromyalgia symptoms use a combination of medications, non-drug therapies, and self-help strategies when you hurt all over. Three medications are FDA-approved for relieving fibromyalgia pain (Lyrica, Cymbalta and Savella). Others may be prescribed in place of or together with one of these drugs to ease your many symptoms. Non-drug treatment approaches usually reduce achy muscles with trigger point therapies and enhance your ability to function. Some are viewed as mainstream, while others may be considered alternative therapies. Due to the significant impact fibromyalgia may have on your daily activities, simple lifestyle changes or self-help strategies can build upon your treatment success.
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A Pain Management Tool for People With Fibromyalgia
An interactive tool to help you create a detailed picture of your pain providing a lot of important information fast, so you and your health care provider can move on to addressing your issues more quickly.
This Tool Recommended for:
Patients diagnosed with Fibromyalgia
Printing a detailed snapshot of Fibromyalgia pain
Move on to the Fibro Log.  Keep a record of how you feel each day
Your pain and other fibromyalgia symptoms can fluctuate day to day, so it is important to communicate regularly with your health care provider and make the most of each appointment.
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Mayo trial finds strength & aerobic exercise help fibromyalgia pain equally
Strength training and aerobic exercise have beneficial effects on pain in adults with fibromyalgia. However, the equivalence of strengthening and aerobic exercise has not been reported.
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Pain Monitor - March 2012
‘Welcome to a new version of Pain Monitor – here you’ll find articles on living with chronic pain, the latest pain news, events, and much more. We hope you or a loved one finds this information helpful in living a better life with pain. Please help us improve this publication by completing the survey highlighted in every issue.’
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Offer for Pet Owners over 65
Thanks to a grant made by The Body Shop Foundation, Wadars have launched a new free scheme to help keep pets safe. The scheme offers a completely free pet micro chipping service for anyone over the age of 65 who live in the Littlehampton, Arundel, Pulborough, Worthing, Lancing and Shoreham areas.
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10 Ways to Tell if You Have Fibromyalgia or Chronic Fatigue Syndrome?
A lighthearted look at the symptoms!
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Invisible Illnesses
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Personality & Physiology in Fibromyalgia: A New Discovery
Fibromyalgia has long been tied to certain personality traits, both by the medical community and by some in the patient community. However, this observation has always been controversial, with many objecting that such stereotyping was erroneous and blamed non-physiological traits for a physiological illness.
Now, new research may resolve the controversy by tying both fibromyalgia AND a personality trait to a physiological root.
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PatientsLikeMe Newsletter Issue 15 - March 2012 - MONTHLY MUSINGS
Flare.  Exacerbation.  Attack.  Acute episode.  These are a few of the different terms used to describe a multiple sclerosis (MS) relapse—which can last anywhere from 24 hours to several weeks to even months. 
MS isn’t the only condition that has exacerbations, however.  This pattern is also common with fibromyalgia (FM), rheumatoid arthritis (RA), psoriasis, IBS, depression and more.  Just check out all the threads tagged with either “flares” or “relapses” across the forum. 
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Some courses that might be helpful
Sussex -  Time to Talk service for Cognitive Behavioural Therapy ( Positive thinking)  http://www.sussexcommunity.nhs.uk/index.cfm?request=b1003022&action=showServiceDetail&service=331&skin=
If you are on the Time to Talk program you will also be eligible for courses for adults dealing with mental health issues, with West Sussex adult education
Expert Patient Program, various venues
St Thomas Hospital, London INPUT Program for people dealing with long term chronic pain
Get self help, useful fact sheets
Centre for clinical Interventions (CBT)
Living Life to the Full, an online course in cognitive behavioural therapy
 MOODJUICE, self help guides for coping strategies
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Alternative Approaches to Chronic Pain Management and Freedom from Suffering
Dr. Stephen Grinstead discusses the importance of using alternative nonpharmacological (non-medication) based ways to manage chronic pain; especially for pain flare ups.  He also talks about the importance of setting realistic goals for pain management.  Some of the alternatives mentioned are humour, music, art and gratitude to name a few.
See also
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When It Comes To M.E., Fibromyalgia & CFS, if You Think You've Tried Everything... Then think again!
New Fusion Counseling Takes the Mystery Out of ME/CFS/Fibromyalgia Recovery
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How are you?
Stay positive!
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Wow!  Another bumper bundle.  Still the info keeps coming in.  Can ANYONE say that fibro doesn’t exist?
Stella
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N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.
Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.
I also include various awareness and local issues as well as general health considerations.    Anyone wishing to reproduce any of the above items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr.
Past issues of FMSSAS eNews can be found at www.fms-sas.co.uk/fmseNews.html and on a blog at http://fmssas-enews.blogspot.com/




Saturday 17 March 2012

FMSSAS eNews 12.03.17


Hi everyone
I would like to wish all Mothers a happy Mothering Sunday.  Wherever you spend it I hope you have a happy time, in fact an enjoyable weekend.
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WORDz FOR THE WEEK
62.  Everything I’m not, made me everything that I am.
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Last Chance to book for the FMS Easter Weekend Conference
‘This is your last chance to book for the memorable 3rd annual Fibromyalgia Conference & Pamper Weekend, unless you arrive on our doorstep and we find you somewhere to hang out...’
Message from Jeanne the organiser
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Managing Fibromyalgia #21 
“As you may know by now, my "Thing" is natural help for symptoms of Fibromyalgia and chronic pain conditions. I believe that the more natural treatments and help that you apply and use, the fewer and less amount of Rx one will need. In other words, when you have a good natural foundation - proper nutrition, natural help for specific issues, stretching and movement to get the blood and oxygen flowing, pacing, stress-relieving routines and so on, you'll find that any Rx, or supplements, you may take will not only work better, but you may even need less of them. After all, these are the foundation for everything else you do to help your symptoms.”
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How Back Pain Affects Fibromyalgia
‘Although people might have trouble understanding your all-over fibromyalgia symptoms, they may be able to relate to chronic low back pain. Most everyone at some time or another has experienced back pain, even if not on a chronic basis.’
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"The 7 Reasons Why Chronic Pain Suffering Makes You Feel Like A Prisoner In Your Own Body"
And How it's Costing You in Happiness, Financially and in Your Relationships!
FREE REPORT – Grab Your Copy Today
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TOP NINE REASONS FOR A FIBRO FLARE
“I just read a chat room thread yesterday that surprised me. I know it shouldn’t, but it did.
The person writing the question said that she’d tripped over a rug in her son’s room and fell. Later she was achy and sore and then a few days later, went into a full-blown fibro flare. She wondered if the flare was related to the fall.”  Read more .  . . .
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Pain Index Plus Symptoms, Not Tender Points, Equals Fibromyalgia, New Study Says
“A new way of diagnosing fibromyalgia, by using a pain index and a measure of key symptoms and severity, may lead to more diagnoses and treatment, a new study says. The findings appear in the May issue of Arthritis Care & Research.”  Not so new now but if you didn’t know this it’s worth reading.
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Even small overdoses of paracetamol quickly add up to serious harm
“Repeatedly taking slightly too much paracetamol can lead to liver damage and possible death, say researchers. These overdoses, which are difficult to detect, may even be more dangerous than when someone takes a single very large dose.”  Be aware and take care not to exceed the recommended dose.
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‘The Fibromyalgia syndrome (FMS) is one of the diseases that were reputed to be all in your head.  Not any more, at least not in the “imaginary” sense. This was particularly, aggravating because it could be so painful. It is called a syndrome because it manifests itself in a similar way to patients, but could have multiple causes. Actually, even though the pain is primarily at the sensitive points of the figure below (uploaded from Wikipedia Commons), it does have something to do with your brain.’
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Are Fruit Juices Good for You or Not?  The Opposing Views
Most experts agree that whole fruit is better for you than fruit juice.
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Wait six months before treating fatigue, GPs told
By Rhiannon Smith | 08 Mar 2012
GPs should advise patients with chronic fatigue to wait and see if their tiredness resolves itself within six months, recommend UK researchers who looked at the time course of symptoms.
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Aquatic Exercises May Ease Fibromyalgia



‘Regular exercise in a heated swimming pool can benefit people with the common, painful condition fibromyalgia, a new study suggests.’   The study may be 4 years old but still relevant.
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What is the Cause of Fibromyalgia?
‘The more I try to learn about the cause of fibromyalgia, the more I just get confused. Some sources say it's caused by autoimmune diseases, some say it's hereditary, some say it's because of a virus or a neck injury or diet or chronic stress, and recently someone told me it's caused by depression. What really is the cause of fibromyalgia?’
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Milnacipran Beneficial for Fibromyalgia in Patients With Inadequate Response to Duloxetine
Patients with fibromyalgia who have an inadequate response to duloxetine may gain additional benefit in global status and pain improvement when switched to milnacipran, according to research presented at the 2012 American Academy of Pain Medicine Annual Meeting.
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Here ends today’s epistle.  I hope there have been some useful lessons for you. 
Stella
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N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.
Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.
I also include various awareness and local issues as well as general health considerations.    Anyone wishing to reproduce any of the above items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr.
Past issues of FMSSAS eNews can be found at www.fms-sas.co.uk/fmseNews.html and on a blog at http://fmssas-enews.blogspot.com/