Saturday 27 August 2011

FMSSAS eNews 11.08.27


Hello everyone
Thank you so much to the many of you who sent me best wishes for my recovery in response to the message sent by my daughter to tell you of my further hip dislocation.  I returned home yesterday after 10 days in Worthing and Southlands hospitals.  I have not had time to compile much of a newsletter for you but I hope to do better next week!  I just thought I would give you a personal update.  My movements will be greatly restricted and I am back to sleeping downstairs!  It is all so frustrating, especially since I had been doing so well!  However, despite all I will do my best to keep you up-to-date with fibro and related matters.
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WORDz FOR 2 WEEKz
33.  Moving on isn’t hard, it s what you leave behind that makes it so difficult.
34.  Enjoy the little things in life; one day you may look back and realise that they were actually the big things.
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Invitation to Health and Healing Seminar
at the Radisson in London on 3rd September at 2pm. Contact Suzy direct on suzy@suzydior.com or reserve via the website as soon as you can. She has only got 35 places available as it is a private event. There are a few complimentary tickets for booking early. Take a look!
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Yoga Nidra
Listen to the FREE DEMO of the ancient meditation technique from tantra, Yoga Nidra
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The Crippling Toxin You Knowingly Consume Every Day...
The fact that fluoride can damage your bones, often quite seriously, is no longer in dispute. Just ask the millions of people throughout the world who currently suffer from skeletal fluorosis—a crippling bone disease caused by too much fluoride and marked by irregular bone growth and calcification of the joints.
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Brighton Disabled People Against Cuts Newsletter
Although the mentioned meeting has already taken place, the rest of the newsletter might be of interest to members.
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And finally; an insprirational story . . .
. . . an email received today:-

Recently I overheard a Father and daughter in their last moments together at the airport. They had announced the departure.

Standing near the security gate, they hugged and the Father said, 'I love you, and I wish you enough.'

The daughter replied, 'Dad, our life together has been more than enough. Your love is all I ever needed. I wish you enough, too, Dad.'

They kissed and the daughter left. The Father walked over to the window where I was seated. Standing there I could see he wanted and needed to cry. I tried not to intrude on his privacy, but he welcomed me in by asking, 'Did you ever say good-bye to someone knowing it would be forever?'

'Yes, I have,' I replied.. 'Forgive me for asking, but why is this a forever good-bye?'

'I am old, and she lives so far away. I have challenges ahead and the reality is - the next trip back will be for my funeral,' he said.

'When you were saying good-bye, I heard you say, 'I wish you enough.' May I ask what that means?'

He began to smile. 'That's a wish that has been handed down from other generations. My parents used to say it to everyone...' He paused a moment and looked up as if trying to remember it in detail, and he
smiled even more. 'When we said, 'I wish you enough,' we were wanting the other person to have a life filled with just enough good things to sustain them.' Then turning toward me, he shared the following as if he were reciting it from memory.

I wish you enough sun to keep your attitude bright no matter how grey the day may appear.

I wish you enough rain to appreciate the sun even more.

I wish you enough happiness to keep your spirit alive and everlasting.

I wish you enough pain so that even the smallest of joys in life may appear bigger.

I wish you enough gain to satisfy your wanting.

I wish you enough loss to appreciate all that you possess.

I wish you enough hellos to get you through the final good-bye.

He then began to cry and walked away.

They say it takes a minute to find a special person, an hour to appreciate them, a day to love them; but then an entire life to forget them.

* Only if you wish, send this to the people you will never forget and remember to send it back to the person who sent it to you. If you don't send it to anyone it may mean that you are in such a hurry that you have forgotten your friends.

TAKE TIME TO LIVE....

To all my friends and loved ones, I WISH YOU ENOUGH.
So here’s hoping for enough items for eNews next week. 

Stella

N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.
Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.  I also include various awareness and local issues as well as general health considerations.  Anyone wishing to reproduce any of the above items in printed form should seek permission from the originators.


FMSSAS eNews 11.08.19

Stella regrets she has been unable to compile a newsletter this week.
She is in Worthing Hospital again following yet another dislocation.
Normal service will be resumed as soon as possible!
 
With kind regards
Christine  (Stella's Daughter)

Saturday 13 August 2011


Greetings to you all
This week I have amazed myself by being able to walk much greater distances than I have for many many months.  Not without some resulting pain, BUT it has given me a sense of achievement.  I have fought to regain mobility since my hip dislocation in April and have exceeded my own expectations.  This may not all be due to determination!  It might be accounted for by the Juice Plus capsules I have been taking for the last two weeks.
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WORDz FOR THE WEEK
32.  Some people wait for a miracle to start living their lives happily.  Others use that time and create the miracle themselves.
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HELP NEEDED by ATOS Victims’ Group
(I hope these embedded links will work for you)
“If you would like to send us your personal experience of your Atos assessment then please do so, you don't have to be worried about using your real identity, an alias will suffice, we all know what Atos and the DWP are like.
Your account could be added to the growing list of other peoples personal tales of horror and suffering which Atos & DWP are causing, once we have enough stories we shall be producing a document to go online for all to see and read, we shall also be asking people to send a copy to their constituent MP, a copy will be sent to the Work & Pensions Committee, newspapers, TV companies, radio stations etc, we think this will show the wider public what can happen to them, what they may have to go through should they become sick, disabled through no fault of their own.
Being able to achieve this means that people have to make an effort to send in their stories, without those stories/experiences we will not be able to achieve our aims.
I'm quite sure there are thousands of people out there who have a tale to tell about their Atos experience, you can help this campaign by just emailing your story to us at atosvictimsgroup@gmail.com Please mark your email Atos Story.”
Quote from FMAUK website “Department for Work & Pensions (DWP)
“Professor Aylward, on behalf of the DWP, reaffirmed that the DWP recognises fibromyalgia as a real and disabling condition, and not just something that is "all in the mind". Even though the cause of fibromyalgia remains unclear, the important factor when deciding benefit claims is the effect the condition has on the individual. Medical Services doctors who assess people on behalf of the DWP are trained in disability assessment medicine; and the DWP is developing a training website for GPs, to raise their understanding of this specialised field.”
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Reminder of request for email friend
Can’t call it a ‘pen’ friend.  But if anyone would like to correspond by email with a fellow person with  fibro, please let me know. 
Details were in last week’s eNews. www.fms-sas.co.uk/eNews/2011/eN 11.08.06.doc
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Reminder of FMS Rendezvous at Wiston Tea Rooms on 20th August
Whether or not you attend the Brighton, Horsham or Worthing Support Group meetings, if you live within reach of Wiston (between Steyning and Ashington, Wwest SUssex) you will be welcome. 
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Rebecca Richmond says that meditation and hypnosis can help
Meditation and hypnosis both enable you to achieve a state of deep relaxation, which is an important part of a healthy life style.
More importantly, when you are deeply relaxed your negative inner critic shuts up and I used these deeply relaxed states to reprogram my thinking and behavior.  Read more-
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Worthing Group’s August Newsletter
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Co-cure/Listserve articles
1.      What's about overactive lifestyle in fibromyalgia and chronic fatigue
syndrome
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2.      The relationship between serum antioxidant vitamins, magnesium levels,
and clinical parameters in patients with primary fibromyalgia syndrome.
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Fibromyalgia and Pregnancy
This week I had the following query:-  “I have a friend who has been diagnosed with fibromyalgia and is now 6 weeks pregnant, is there any information or advice you or anyone else in the group could pass on that would help her, she is in a lot of pain at the moment and I think worrying about what lies ahead, how to deal with the pain while pregnant, what will happen during labour etc”
I have found the following sites with info on the subject.
mainmenu-135/231-pregnancy-and-newborns?showall=1
 If any of you can speak from experience on the matter, please let me know.  Thanks - Stella
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Lupus and Fibromyalgia
Lupus and fibromyalgia may look similar on the surface, but in fact they are very different disorders. Unlike lupus, fibromyalgia is not an autoimmune disorder and does not cause any inflammation. It also does not interfere with organ function. However, people with fibromyalgia are often misdiagnosed with lupus.
The confusion between lupus and fibromyalgia may be due to the fact that many of their symptoms are so similar. Like fibromyalgia, lupus symptoms tend to come and go, and can take the form of sudden flare-ups. Like fibromyalgia, lupus is also associated with extreme fatigue, muscle pain, and circulatory disorders. In fact, up to 30% of lupus sufferers develop fibromyalgia syndrome after they have been diagnosed. However, it is very rare for fibromyalgia sufferers to develop lupus.
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Here’s hoping things are going well for you.  Remember to pace your life; take that much needed exercise without overexerting; eat well and healthily; be creative. 
Until next week
Gentle fibro hugs
Stella

N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.
Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.  I also include various awareness and local issues as well as general health considerations.  Anyone wishing to reproduce any of the above items in printed form should seek permission from the originators.


Saturday 6 August 2011

FMSSAS eNews 11.08.06


Hi Everyone
I would like to thank all those members who attended the Special General Meeting held last Monday.  Although the majority were Trustees and Horsham Group members  a quorum was achieved.  Thanks go too to those who used their proxy votes.  The resolution: “It is resolved that the draft revised constitution be adopted in its entirety.”  was passed unanimously.  The presentation by Jeanne Hambleton and Simon Stuart about the FMS conference held in April was well received.  Members were inspired to consider attending the next one in April 2011.  More details will be available soon, but if you want to book or learn more please email fibcon2012bookings@gmail.com or tel: 0844 887 2508 or 07806 808862 for information.
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WORDz FOR THE WEEK
31.  And in the end, it’s not the years in your life that count; it’s the life in your years.
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FMS Rendezvous at Wiston Tea Rooms on 20th August
Whether or not you attend the Brighton, Horsham or Worthing Support Group meetings, if you live within reach of Wiston (between Steyning and Ashington) you will be welcome. 
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 Stress affects well being and wellness
Amongst other things about stress Rebecca Richmond says “On the 3rd and 4th September, I am running a two day workshop , where I will share with attendees information that has transformed my life. This is not a Fibromyalgia workshop specifically and is suitable for anyone who is suffering from stress or wants to make changes in the way they perceive their life and improve their well being.”
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Email Friend required
“I don’t know anyone with fibromyalgia and would quite like to be able to correspond with someone who also has it and is housebound like me. I don’t feel confident to use chatrooms so it would just be on an individual basis. 
I am 61 years old I think! I am an artist and spend all the time I can in my summerhouse painting. I have lots of interests. I live on my own with 2 cats. I was a nurse before I became unwell. I have problems with my spine and have severe pain. Hopefully I will be having surgery soon. “
Please email me if you are interested.  fmssas2@gmail.com
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Debbie Stevens’ Early Autumn Offers
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Side Effects of Tens Machines
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Openness to psychological explanations and treatment among people with Fibromyalgia versus Rheumatoid Arthritis.
https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1107e&L=co-cure&T=0&P=4141
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Metabolic Abnormalities in Pain-Processing Regions of Patients with Fibromyalgia: A 3T MR Spectroscopy Study.
https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1107e&L=co-cure&T=0&P=3777
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Holland and Barratt Sale
Buy one item, get another for 1 penny.  A good way to stock up on supplements.  346 products available.  Delivery is only £1.99.
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Daily Living with Fibromyalgia
Living with fibromyalgia or chronic fatigue syndrome is challenging, necessitating a variety of coping skills to help you make it through each day with a sense of satisfaction.
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Fibromyalgia Latest Research
Written by the OrganizedWisdom Team with Nicole Kinsey as the reviewer. All original content is supervised by the The OrganizedWisdom Medical Review Team
Fibromyalgia research focuses on the malfunctioning of the central nervous system. Researchers are also looking into medications that can help to reduce symptoms of the condition.
A selection of related articles
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Enough for now.  Must get back to knitting!  Any more offers of knitters?

Stella

N.B. I would like to point out to you all that the information in my eNewsletters does not necessarily infer endorsement by the charity Fibromyalgia Support for Surrey & Sussex.   Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. The charity cannot be held responsible for omissions and/or errors.
Sites I refer you to are for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.  I also include various awareness and local issues as well as general health considerations.  Anyone wishing to reproduce any of the above items in printed form should seek permission from the originators.